Fibromyalgia/ME

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Fibromyalgia/ME

Postby Soeurette » Tue Sep 19, 2017 9:57 am

Hi
I was diagnosed with Fibro last month by my Rheumatologist. I visited my doctor 2 weeks ago to get my medication and on his notes he wrote Fibromyalgia/ME. I questioned the ME and he said very casually oh they are the same thing. I said I didn't know this and he said yes they are. This left me very shocked. I have since done research and posted on the Facebook Fibromyalgia UK site and its obvious that the conditions are different.

I am due to go back to my doctor in a few weeks time and I want to go in with proof that these conditions are different or push to be tested for ME. Do any of you have a similar experience as I'm not sure how to go about this.

Any help would be really appreciated.

Many thanks

Soeurette
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Re: Fibromyalgia/ME

Postby perseus » Tue Sep 19, 2017 8:42 pm

Soeurette

It's not surprising that some GPs consider them to be the same, as they have overlapping symptoms and may have a similar underlying cause, a dysfunction of the central nervous system. However, ME is more likely to have been precipitated by a flu type illness with the most predominant symptom being fatigue, whereas with Fibro the cardinal symptom is an increased sensitivity to pain, especially in certain key points. Since there is no straightforward objective diagnostic test for either illness, and some medical professionals still believe them to be psychological, it's a matter of finding a GP and specialist you feel comfortable with. Personally I wouldn't choose one who couldn't understand the difference between the conditions or treats them as psychological, but patients are different and some might benefit from a healthy mental attitude whatever the cause.

You may have come across this article in your searches
https://www.verywell.com/is-it-fibromya ... ome-716181

For what it's worth, when much younger I became ill with flu type symptoms and was diagnosed with depression by some specialists and ME by others. However, at that time I didn't suffer with severe fatigue, pain or depressive symptoms, so I refused to accept either diagnosis and sought further tests, leading to serious friction with the medical establishment. About eight eight years later a Hospital GP examined my neck and told me to stop running as he felt the pounding would results in adverse forces on my hunched spinal column which could be causing the symptoms. After stopping, over the period of about a year the symptoms subsided and almost disappeared.

Then a few years later, I received a severe head jolt (whiplash) when my car was written off from behind. This started off the pain symptoms typical of Fibromyalgia. These have been eased but not cured using specialist antidepressants such as Duloxetene, which block pain messages to the brain, which is were I find myself today.

You can see why I feel the root cause of the problem in both cases was trauma to my neck all along, and indeed the two sets of symptoms were related.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia. Regards Stephen
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