Introduce yourself ((xx))

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Re: Introduce yourself ((xx))

Postby *Lisa* » Thu Mar 30, 2017 10:30 am

:welcome: to the forum Kezzabella :-D

Alot of animal lovers here :dogrun1:

I have 5 piggies guinea_pi_1 guinea_pi_1 guinea_pi_1 guinea_pi_1 guinea_pi_1 and a dog :dogrun1:
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
*Lisa*
MODERATOR
 
Posts: 3786
Joined: Sun Sep 07, 2008 2:01 pm

Re: Introduce yourself ((xx))

Postby Tori1971 » Fri Mar 31, 2017 11:40 am

Hi, I'm Tori, was told about 3 weeks ago that I have fybro.

I'm new to all this and would like some advice about I can ease my symptoms please.

I'm 46, live my my better half and have a 17 yr old son and a dog.

Please, Please help?
Tori1971
UKFM Newbie
 
Posts: 1
Joined: Fri Mar 31, 2017 10:06 am

Re: Introduce yourself ((xx))

Postby *Lisa* » Fri Mar 31, 2017 12:37 pm

Hi Tori & :welcome:

What symptoms do you have that you need advice on as many of us have widespread pain and some have pain in located areas.

As you just been diagnosed what pain management have the doctors given?

There are many medications and therapies that can help ease symptoms but im afraid its a trial and error as we all respond to different treatments.

The doctors normaly start with Amitripyline and physio, this is standered in most areas but there is so much more that can help.

This link is a good place to start, gives you an idea of treatments... http://ukfibromyalgia.com/pages/quick-help.php

Remember to click on the bold words for additional information
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
*Lisa*
MODERATOR
 
Posts: 3786
Joined: Sun Sep 07, 2008 2:01 pm

Re: Introduce yourself ((xx))

Postby Akardy » Sat May 27, 2017 10:53 pm

Hello all,

I'm Oliver. I posted a little hello elsewhere on this site a couple of months back but I thought I might try posting on here to see if anyone wants to chat at all. I'm pretty stressed out at the moment, I've not been able to work for the last couple of years and have an appeal tribunal for my assessment of being fit to work in a couple of weeks and have no idea what I'm going to do if I lose. So would love to chat to anyone who's been through something similar there for one.

But also anything else that distracts me from that looming disaster for a bit is appreciated! Anyway, hope everyone's well!
Akardy
UKFM Newbie
 
Posts: 3
Joined: Sun Mar 19, 2017 11:11 pm

Re: Introduce yourself ((xx))

Postby *Lisa* » Tue May 30, 2017 11:41 am

Hi Oliver,

Im stressy to :crazy: waiting on PIP assessment outcome and need moneys for health desperatly so anxious times. If you fail you can re apply but not sure of time frame? maybe straight away. Would have a look for u but am bedbound with disc problems so bare with me.

I thunk there is info on the DWP boards that may help.
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
*Lisa*
MODERATOR
 
Posts: 3786
Joined: Sun Sep 07, 2008 2:01 pm

Re: Introduce yourself ((xx))

Postby LindyM66 » Tue May 30, 2017 1:08 pm

Hi Oliver,

I'm not knowledgeable about these things, so unfortunately, I don't have info that could help alleviate some of that stress.
I can imagine how stressful it must be though.
I still work full time - at the moment, however, I've been signed off at the request of Occupational Health Dept until mid July. If I haven't had MRI and various other tests done, it could be longer. Thankfully, I get full pay for 6 months, then half pay for 6 months.
But if I'm being honest, it has crossed my mind, " what if I can't go back to work?"
Blooming awful that the worry of financial stress, adds to the already debilitating symptoms.
Fingers crossed for a positive outcome, Oliver.

Much Love
Lindy x
User avatar
LindyM66
UKFM Member
 
Posts: 257
Joined: Wed May 04, 2016 8:30 pm
Location: Glasgow, Scotland

Re: Introduce yourself ((xx))

Postby Lolabean » Mon Jun 26, 2017 8:02 am

Hi, I'm Lorna, I was officially diagnosed with fibromyalgia a year ago but I have realised I've had symptoms for over twenty years. I have always worked inbetween crashing two or more times a year for weeks, months even years at time but it was put down to just my anxiety and depression.
Fast forward to now and I had to give up work a year ago due to the chronic fatigue, pain, mobility and all the other countless other symptoms I have. My life as I knew it is over, it's been flipped upside down.
I'm grieving for the life I had and I'm hear in the hope that I can make some sense of it and come to terms with my life as it now and move forward.
Thank you x
Lolabean
UKFM Newbie
 
Posts: 3
Joined: Sat Jun 24, 2017 8:12 pm
Location: Glasgow

Re: Introduce yourself ((xx))

Postby LindyM66 » Mon Jun 26, 2017 9:50 am

Hi Lorna, I'm Lindy. Nice to "meet you".
I can relate to what you say. It's very frustrating when life as we knew it, changes!. Even simple things, that used to come easy, are much more difficult, or unachievable. It's a pain in the a**!
I was also diagnosed last year, but like yourself, had symptoms for years previous. I came to a complete halt! My body seized up and I couldn't believe the pain all over.
After a month off work, I went back, and plodded on - until 2 months ago. I had to go off sick, after a fall. Been seen by neuro, and presently waiting on an MRI. Meds are being increased today, by my GP, on advice by neuro. It's going to take 6 weeks, for the gradual increase, for the dosage of gabapentin to be doubled to 1800mgs per day. So, rather than go back to work and risk going off again, if I can't tolerate the increase, Im asking for another 8 week line when the current 1 lapses on the 11th of July.
I have needed the break from work, to be honest. I didnt realise how exhausted I was. Gubbed, would be an appropriate word.
For someone who was very active, and always on the go, it frustrated me no end, that I couldn't do what I used to. Mentally and physically! The fatigue, pain, brain fog - the whole shabang.
However, all is not lost Lorna :-). We just have to learn how this condition affects us. In turn, when we know how it affects us, we learn to do things differently ( or find other things we CAN do) and we learn to listen to our bodies. I think that's the most important thing. I don't push myself further than I know what I'm capable of. There's no point, as it knocks me for 6 if I do.
What started as a " wee hello" , has turned to war & peace lol.
Anyhoo - you take care of yourself. You know your body better than anyone else.

Much Love
Lindy x
User avatar
LindyM66
UKFM Member
 
Posts: 257
Joined: Wed May 04, 2016 8:30 pm
Location: Glasgow, Scotland

Re: Introduce yourself ((xx))

Postby FluppyPuffy » Mon Jun 26, 2017 12:04 pm

Hello Lorna xx Glad you've managed to find your way to us xx You're in good company on here, so anything you want to know about, just ask xx Anything that is bothering or annoying you, let it out xx Pretty much all of us have experienced times and situations similar to what you are juggling with at the moment and we understand how it leaves you feeling downside up and outside in xx

Lindy has given you some great advice xx It takes a bit of practice to get into living life with FM and it's effects, so just go day~by~day or even hour~by~hour xx Anything that doesn't work out quite right when you do it, file it away under the naff experiences to learn from xx And when you find something that makes a difference pop that under the good/not so naff experiences to learn from xx
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12708
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Previous

Return to Where to Say Hello

Who is online

Users browsing this forum: No registered users and 7 guests