Need some help with fatigue

Any tips on what helps you including alternative medicine.

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Need some help with fatigue

Postby ToughCookie » Thu Aug 21, 2014 9:46 pm

Hello all.

For those unfamiliar with me, I was diagnosed with fibromyalgia in May this year after about 9 years of symptoms.

So far I've been taking 20 mg of amitryptiline and its really seemed to help with my joints, but I usually go down hill massively in winter so the next few months will be the real test.
I also suffer from crohns disease and right now I'm in a huge flare.

As a result of this and the fibro I am totally exhausted. Every small thing I do feels like it's ten times harder than it used to be.

I'm having regular blood tests so I don't think I'm anaemic and I take vitamin D supplements every day.

I'd really love some advice for dealing with the fatigue side of things, even if I get 12 hours sleep I still feel like I could sleep for another week.

Incase it's relevant my current medications are -

Prednisolone (steroids) 20 mg daily. Pentasa (crohns med) 2g daily.
Tramadol 50-100mg as needed
Vitamin D 1600iu twice daily.
Omeprazole 40 mg daily
Buscopan 20 mg as needed
Amitryptiline 20 mg at night
Cerazette 75 mg daily
Paracetamol as needed
Nicola - 21- South Wales - diagnosed with Fibromyalgia 05/2014. - Also have -Crohns - Asthma- Coeliac disease - Osteopenia - High blood calcium - Tachycardia
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Re: Need some help with fatigue

Postby rich44 » Thu Aug 21, 2014 10:27 pm

Yeah I'm like that with the fatigue, I slept until 11am today but still shattered.

All you can really do is look at pacing so you don't overdo things.

Have you had a referral to a pain clinic at all? They can send you off for other things like hydrotherapy, help you with pacing and I dare say they will go on about graded exercise therapy too (not a fan but does help some ppl)
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Re: Need some help with fatigue

Postby ToughCookie » Thu Aug 21, 2014 10:35 pm

I've not been referred to a pain specialist, I was seen by a rheumatologist who examined me and did scans to rule out arthritis and he diagnosed then passed me back to my GP who put me on amitryptiline and that was that.

I've figured out for myself that tens helps my joints.

I think one GP did say I could have a referral to physio if I wanted but no one has mentioned a pain specialist. So that's something to look into. Thanks!
Nicola - 21- South Wales - diagnosed with Fibromyalgia 05/2014. - Also have -Crohns - Asthma- Coeliac disease - Osteopenia - High blood calcium - Tachycardia
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Re: Need some help with fatigue

Postby rich44 » Thu Aug 21, 2014 10:55 pm

The pain clinic in Norwich where I've been a few times (but not treated yet) it's a one stop solution so they have a physio, occupational health, clinical nurse, psych people etc all under one roof so you get access to all of that from one referral.

I've been referred from there to a rheumatologist, hydrotherapy and a look at what drugs they can offer. So in theory it might be really helpful if your local NHS has something similar setup.

Also that vitamin D isn't very high for "us" that's not much more than a maintenance dose. Have your levels of vit D been checked recently?

The dose I've just had is 40,000 units a day

Good luck with it
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Re: Need some help with fatigue

Postby ToughCookie » Thu Aug 21, 2014 11:40 pm

Hm that sounds good. I'll have to find out if that's available for me. I know my sister had a pain specialist but don't know what they really do.

The vitamin D is actually more aimed at my crohns than my fibromyalgia, it's because I'm on steroids. My vitamin D was low before but that was corrected and it's well within normal limits now, and I've had bloods in the last six weeks which I think included all that. My crohns specialist is pretty thorough.

As far as fibromyalgia management goes I've literally had the amitryptiline script and some information from patient.Co.UK and then just got on with it. So I don't really know much about what vitamins I should be looking out for.

They keep wanting to put me on calcium. But I have a condition where my body doesn't regulate it in my blood properly and it can go to almost emergency level without me feeling a thing. So that's a no go.
Nicola - 21- South Wales - diagnosed with Fibromyalgia 05/2014. - Also have -Crohns - Asthma- Coeliac disease - Osteopenia - High blood calcium - Tachycardia
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Re: Need some help with fatigue

Postby carolad » Thu Aug 21, 2014 11:54 pm

rich44 wrote:The pain clinic in Norwich where I've been a few times (but not treated yet) it's a one stop solution so they have a physio, occupational health, clinical nurse, psych people etc all under one roof so you get access to all of that from one referral.

I've been referred from there to a rheumatologist, hydrotherapy and a look at what drugs they can offer. So in theory it might be really helpful if your local NHS has something similar setup.

Also that vitamin D isn't very high for "us" that's not much more than a maintenance dose. Have your levels of vit D been checked recently?

The dose I've just had is 40,000 units a day

Good luck with it


40,000 units a day? :o And I thought I was taking a very high dose at 4000 a day :)
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