Sleep Aponea

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Sleep Aponea

Postby robbiecramp » Mon Nov 17, 2014 6:10 pm

I am not entirely sure if this is associated with Fibro but it did sort of start around the same time as was being treated for fibro but when I was on meds to start with would find myself sleeping a lot but would have broken sleep as would always wake up.

Does anyone have this as I have been diagnosed with it and could not use the CPAP machine so when saw sleep doctor she said it was only thing that was available to me any ideas
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Re: Sleep Aponea

Postby whoami » Mon Nov 17, 2014 7:35 pm

I also have sleep apnea. Why can't you use the CPAP if I may ask?
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Re: Sleep Aponea

Postby Gracious » Mon Nov 17, 2014 9:38 pm

Sleep disturbance is associated with Fibro, sleep apnea is not. Not to say you can't have both Fibro and sleep apnea. But having fibro does not mean you will get sleep apnea.

My father and my ex-boyfriend both were diagnosed with Sleep Apnea. I did a letter for my ex-boyfriend's doctor to help get him referred to a sleep clinic. He was really bad. There are about five different types to sleep apnea. He had most of them. He snored so loudly he was only 4 decibels lower than a hammer action drill. His breathing pattern was centred around a six breath ritual, in the middle he would have a breath hold of 21-30 seconds, then a gigantic gasp of air, as his body woke up to realising its being starved of oxygen. He eventually got the CPAP machine.

The specialist told him that his body was basically running a marathon every night, because of his apnea. No amount of sleep would help, for on waking he would always feel absolutely shattered and exhausted beyond belief, which would continue all day. The CPAP made a huge difference, but he hated using it and went back to not. It put so much strain on his heart that he eventually had a bad turn and needed a pacemaker. Now he uses the CPAP machine all the time.

My father has AF and sleep apnea and I am trying to get them to give him a CPAP machine, its the best thing to help.

Bar a good exercise routine, maintaining a healthy weight, not smoking, avoiding the foods, drinks and medications that can contribute to the condition and having a good night time routine (i.e. not going to bed with a full stomach etc), which I am sure you have tried.

The CPAP tends to be the best and last resort for most cases as surgery is provent to be less effective. If the CPAP is really impossible for you to use, I dont know of any other options out there, that would have not already have been told to you by the sleep clinic.

If its the mask thats the issue, there are options, my ex had the full mask for nose and mouth and hated it, now he uses the mask just for the nose, this helped him to feel more comfortable.

Dont know if this is much help, but hopeyou find a helpful solution soon.

With loving kindness
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Re: Sleep Aponea

Postby Diane64 » Tue Nov 18, 2014 10:40 am

Hi,

Have to say sleep apnea IS part and parcel for some with Fibro as well, I had no idea I was suffering from it until went on holiday with a friend and scared the living day lights out of her, when spoke to my husband about he agreed that my snoring and breath holding was getting out of hand but bless him didn't want to say anything to me, if you google sleep apnea/fibro there is a lot of info re this issue.
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Re: Sleep Aponea

Postby whoami » Tue Nov 18, 2014 12:30 pm

Sleep apnea is not only presented at night during sleep. I wear a CPAP at night but I also stop breathing during the day. I will be doing things and forget to breath. Then all of a sudden I have a huge gasp. When I talked to the Df at the sleep clinic he said it was a type of apnea. It is a strange thing.
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Re: Sleep Aponea

Postby robbiecramp » Tue Nov 18, 2014 4:38 pm

Hi thanks for the replies it is the CPAP mask for both so will ask for one for the nose and see what they say. The clinics at my local Royal Hospital are really good but the sleep clinic was just you have this now you need to wear this and that was that
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Re: Sleep Aponea

Postby robbiecramp » Sat Sep 19, 2015 10:11 pm

Hi guys sorry been so long just had a awful few months and before that on January 1st moved to my own little flat.

Had consultation with sleep clinic and they put my sleeping down to my medication or even possible CFS so hoping to get a referral to them.
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Re: Sleep Aponea

Postby Jull » Sat Mar 18, 2017 11:30 am

Did you mean sleep apnea?
According to this article https://authorityremedies.com/home-reme ... eep-apnea/ it said " Different causes can be noted to explain for sleep apnea. The old tend to suffer from this problem more frequently. Those who are obese are also likely to experience sleep apnea. Besides, the habit habits, such as smoking or drinking too much alcohol, are responsible for this problem. On the other hand, if you have nasal problems, then sleep apnea will possibly take place." "Sleep apnea can bring a lot of symptoms, most of which are annoying. Sufferers may undergo some problems related to sleeping, such as insomnia or snoring. Besides, in the next morning, their mouth is going to be dry and headache is recorded frequently."
So those natural remedies they recommend in the post can be helpful to cure sleep apnea.
At least I have strong believe that chamomile tea is really effective for those who get insomnia!
Hope you will get better soon!
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