LDN - Low Dose Naltrexone

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LDN - Low Dose Naltrexone

Postby TheHud » Sat Nov 14, 2015 10:13 am

Hi

passing this message on

My pain specialist would like to contact GPs in UK who are prescribing LDN to help him prepare a case for prescribing it to fibro sufferers in Liverpool & Merseyside. This post is on FB page - Fibromates - North West Fibromyalgia Support Group

Is anyone on here being prescribed LDN, I have looked at this and discussed with hubby this is a link to some information.

http://www.cortjohnson.org/.../low-dose ... ne-ldn.../


This sounds very promising for us.
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Re: LDN - Low Dose Naltrexone

Postby cherryscone » Sat Nov 14, 2015 11:00 am

My sister, has ME and has been taking LDN for some time, she has to get a private prescription and buy the drug herself, we live in Manchester, she has said it helps her no end. I have Fibro and the article is interesting, my concern is it is an opioid blocker, as some one who cannot use NSAIDs it would leave me without any realistic pain relief, my sister still takes her pain meds.
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Re: LDN - Low Dose Naltrexone

Postby TheHud » Sat Nov 14, 2015 11:34 am

cherryscone wrote:My sister, has ME and has been taking LDN for some time, she has to get a private prescription and buy the drug herself, we live in Manchester, she has said it helps her no end. I have Fibro and the article is interesting, my concern is it is an opioid blocker, as some one who cannot use NSAIDs it would leave me without any realistic pain relief, my sister still takes her pain meds.


Thanks Cherryscone, is it possible to say where your sister gets the LDN so that the pain specialist looking for this information can contact them?
Hubby firmly believes that paracetamol is still an understated pain med and they frequently find they get better results than opiates with people who have been over prescribed and/or are oppiod intolerant. I have tried various types of oppiod based and do take a codeine 30mg x 2 which I use lesser to control IBS and to create drowsyness. My GP and hubby firmly believe that opiates are not effective for the symptoms of fibro. Certainly did not work for me. I take lyrica and that helps significantly but I titrate up and down to maintain effectiveness. I also do no codiene for a week or so to avoid resistance developing. I have to take antihistermines with them to counter the itching.

When you look at the pain management scale, the pain release that scores highest is when codiene is combined with paracetamol, it is significantly more effective than many other opiate meds available. So yes that would be removed, however, paracetamol on it's own if the LDN worked may provide a very good alternative. Hopefully if they can look at how this is used, we may have other options.

:)
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Re: LDN - Low Dose Naltrexone

Postby TheHud » Sun Nov 15, 2015 7:35 pm

Just bumping this as a pain management consultant really needs to find people on this drug. It could really help us all.
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