Taken off Dosulepin - pain has returned

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Taken off Dosulepin - pain has returned

Postby MinSuffolk » Thu Jun 07, 2018 9:24 am

Hello,

I am new to this forum and so thank you for letting me join.
I was diagnosed with Fibromyalgia 12 years ago and at that point was put on 75mg of Dosulepin (which I believe is an antidepressant used in low doses as a muscle relaxant) which has kept most of my pain symptoms (particularly in my legs and arms) at bay.
5 weeks ago my GP insisted that I stopped this drug immediately and has moved me onto 15mg of Mirtazapine.

I'm feeling a lot worse and am in grinding constant pain with my legs.

Im off to see the GP again tomorrow, could anyone please tell me what the up to date drug for muscle pain and stiffness is in the fibromyalgia toolkit?

Many thanks and hope you are all havin a good day.
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Re: Taken off Dosulepin - pain has returned

Postby *Lisa* » Thu Jun 07, 2018 9:54 am

Hi & :welcome:

Duloxetine is a commen anti depressant to help reduce some fibro symptoms.

There are many others out there though it’s a process of elimination.

Although I know atm that the NHS seem to be having a huge shake up of medications now for chronic pain. Taking away the big guns so to speak like morphine, diazepam and many more....

I saw a pain clinic consultant the other day and he was a really nice guy, we had a good chat. Personally to me I feel that for whatever reason, maybe costs, addiction, studies to show meds don’t help long term etc... that they themselves are now very limited and restricted in what they can offer.

The other medications they like to try is epileptic drugs like lyrica and gabapentin.

Some information here... http://ukfibromyalgia.com/pages/treatme ... cation.php

I hope you find something that helps.
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Taken off Dosulepin - pain has returned

Postby MinSuffolk » Thu Jun 07, 2018 10:33 am

Hi Lisa,

Thank you so much for your quick reply, its so frustrating having been in control of my symptoms and now suddenly not, but I will go and investigate the link you kindly posted immediately!

Melissa
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Re: Taken off Dosulepin - pain has returned

Postby perseus » Thu Jun 07, 2018 7:01 pm

I presume we are talking about Dosulepin (also known as dothiepin and sold under the brand name Prothiaden) not Duloxetine?

https://beta.nhs.uk/medicines/dosulepin/

The NHS issued a safety notice about it last year which might be why GPs are reluctant to prescribe it

http://www.dorsetccg.nhs.uk/Downloads/a ... ulepin.pdf

I was prescribed Dosulepin a long time ago and it had no benefit for me. Duloxetine which Lisa mentioned is more commonly used for Fibromyalgia and was more successful.

I've never heard of Mirtazapine before. There's some positive results with this drug for treating fibromyalgia published recently

https://www.empr.com/news/mirtazapine-f ... le/770696/
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia. Regards Stephen
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