Goverments reponse to a petition

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Goverments reponse to a petition

Postby shazq » Thu Oct 01, 2009 4:55 pm

Hi

a while back i signed a petition asking the Prime Minister to "address the issue of
lack of specialised Fibromyalgia care by the setting up of dedicated
Regional NHS Fibromyalgia Clinics or Centres in Scotland, Wales, Northern
Ireland and England."

The Prime Minister's Office has responded to that petition and you can view

it here: -

Thursday 1 October 2009
FMClinics - epetition response

We received a petition asking:

“We the undersigned petition the Prime Minister to address the issue of lack of specialised Fibromyalgia care by the setting up of dedicated Regional NHS Fibromyalgia Clinics or Centres in Scotland, Wales, Northern Ireland and England.”

Details of Petition:

“It is accepted within the NHS that the prevalence of Fibromyalgia (FM) is between 2.0 – 4.5% of the UK population. FM is a debilitating, “invisible illness” affecting all aspects of life. Those with FM suffer chronic fatigue, widespread pain, extreme sensitivity to pain, cognitive problems & mobility problems. If the population of UK is 60,943,912 (July 2008) & using 3.25% sufferers as the average, there are approx 1,980,000 people with FM, more than the populations of Edinburgh, Dundee, Cardiff, Belfast & Leeds combined. FM is a complex condition & sufferers have great difficulty in obtaining treatment due to a general lack of understanding of the condition. The main NHS FM Clinic is run by Professor J E Davies at Guy’s Hospital, London. There is one in Poole and another in Bolton. Almost 2 million people are affected by FM and the NHS provisions for treatment are inadequate as this debilitating condition often precludes travelling long distances. There is little or no provision for those living in Scotland, Wales, Northern Ireland and most areas of England and this should now be addressed by the NHS.”

· Read the petition
· Petitions homepage
Read the Government’s response

Thank you for your e-petition. The Government recognises fibromyalgia as a serious condition and appreciates the effect it has on the lives of those with the condition.

It is for the NHS locally to decide how to provide the services that people in their communities need. The devolved administrations of Scotland, Wales and Northern Ireland have full discretion over how they spend their budgets and the day-to-day administration of health services is for the devolved administrations to determine.

However, the Government is working hard to make sure that people with fibromyalgia across the country get better services. In October 2006, it launched the Musculoskeletal Services Framework, which sets out guidance to provide high quality and integrated services for people with musculoskeletal conditions, including fibromyalgia. The framework was developed in consultation with patients themselves, and with organisations representing them.

The framework aims to improve assessment, diagnosis and treatment for fibromyalgia and other musculoskeletal conditions. It encourages the NHS to give more support for people to manage their own conditions and get access to better information and advice. It also provides a clearer focus on the needs of children and their families, and sets an 18-week target for referrals from GPs to the start of hospital treatment.

In August 2003, the Chief Medical Officer issued a newsletter that was sent to all doctors in England, specifically addressing the question of distributing information about fibromyalgia. The Chief Medical Officer raised awareness of the leaflet Fibromyalgia Syndrome, which has now been made available to all GP surgeries throughout the UK. The leaflet offers guidance on the main symptoms, diagnosis and treatment of fibromyalgia together with a brief summary of the current ideas for the underlying pathogenesis.

Detailed information including symptoms, diagnosis and treatment options, suitable for those newly diagnosed and for health professionals, is available on the NHS Choices website at www.nhs.uk. More detailed clinical guidance, suitable for general practitioners and consultants, is provided on the NHS Evidence website www.evidence.nhs.uk.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
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Re: Goverments reponse to a petition

Postby velvet » Thu Oct 01, 2009 10:58 pm

is it me or do i hear in the region of 2 million people screaming "ITS NOT A MUSCULOSKELETAL PROBLEM ITS A NEUROLOGICAL ONE AND WHILST DOCTORS KEEP THINKING ITS MUSCULOSKELETAL PROBLEM WE ARE STILL NOT GOING TO GET THE HELP WE NEED"
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Re: Goverments reponse to a petition

Postby gillshutt » Fri Oct 02, 2009 7:24 am

Oh yes Velvet, my thought when I got it exactly.. lets train up the wrong people to treat it wrongly.. way to go. Also a lot of spin and not much else. :evil:
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Re: Goverments reponse to a petition

Postby LinzWorld » Fri Oct 02, 2009 5:32 pm

Another nothing response from a Government that has given up. :roll:

But, TBH, Fibromites are awful about getting involved, raising awareness or campaigning. It is part of the problem. All Fibro charities and support groups struggle at times because Fibromites don't want to get involved but Fibro as a cause isn't attractive to people not affected by it.
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