upset by comments on my previous post

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upset by comments on my previous post

Postby linedancer99 » Wed Aug 29, 2012 3:36 pm

Hi again.

I am a bit upset by some comments about my previous post. :cry:

I would just like to say that I am in pain when I dance, I don't do all the steps or indeed all the dances. It is a part of my social life, I have been doing it since 1996.

I dla are fully aware that I am unable to walk very far without being in pain, also that I dance while in pain. I dont know what else to tell you all.

I am now sitting here thinking about comments made. :cry:
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Re: upset by comments on my previous post

Postby deanna dimech » Wed Aug 29, 2012 3:54 pm

You have to live , If you don't mind the pain dance and enjoy :-D
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Re: upset by comments on my previous post

Postby ermintrude » Wed Aug 29, 2012 4:07 pm

Sorry I missed your previous post.

Everryone on here should know were in pain and carry on regardless to get the job done or enjoy ourselves.

Besides dancing is a little bit of exercise which is good for you :-)
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Re: upset by comments on my previous post

Postby TeeferTiger » Wed Aug 29, 2012 4:42 pm

Not wanting to sound harsh, but this is the internet... you can't expect everyone to play nice all the time- a thick skin is needed. And you also need to bear in mind that a lot of tone is lost when it's typed rather than said. From what I've read, there wasn't really much to be upset about, other than it being pointed out that they seem to be getting stricter with their DLA stuff (which I can testify to) and if you can line dance, you can walk and therefore shouldn't qualify.

I was basically told at my DLA appeal that they "appreciate I have a debilitating condition" but I "can walk" and so therefore didn't qualify for any mobility allowance at all. And because I cut all my hair off so I could wash it easier in the shower as I find it difficult to stand there for long, and despite me saying I couldn't have a chair in the shower cubicle, and I don't eat if my hubby isn't home, I didn't qualify for anything either.

So, I'd be careful with this if I were you :(
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Re: upset by comments on my previous post

Postby babajane32 » Wed Aug 29, 2012 5:28 pm

dla mobility components criterier is soo strict..you either need help to be out and about (and if you can use a stick or propell your own wheel chair you dont need help in their interpritation..lol) or for high rate mobility cannot walk at all more than a small amount of yards the majority if not all of the time..unsure of exact distance but definately less than 150 meters.(i.e are unable to walk or virtually unable to walk) then you qualify for neiter rate of the mobility componant as I understand it and as their forms/guidance booklets seam to read....and they are more strict than ever in defining these areas at the moment....
I don't know what your previous post was, and it's never nice to feel upset by comments..so hopefully you'll view this as a bit of information and in no way am i in judgement of anyone.
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Re: upset by comments on my previous post

Postby crochetkid » Wed Aug 29, 2012 5:31 pm

This is exactly why I'm not claiming any benefit whatsoever and we're relying just on my partner's wage at the moment. Getting exercise and staying mobile, as well as staying sociable, is actually part of the treatment/management of fibromyalgia. I am unwilling, and well too scared really, to put myself in the position where I have to justify why I can't work and how working 40hrs a week makes me so ill that you can even see it.

We can't be made to feel guilty for being able to leave the house on good days, being able to socialise for small periods sometimes and pursuing hobbies, all of these things are part of the treatment/management of fibromyalgia and that's the problem with the new way disability benefits are assessed. They don't take into account that it's a fluctuating condition either, or the fact that you've probably managed to adapt to the problems fibromyalgia causes (e.g. cutting off your hair and not bothering to eat if you're home alone).

I know it's my right, to claim disability benefits, but at the moment I really feel that the whole process will worsen my condition because of the stress and the guilt we're made to feel. Even my GP and consultant agree, and say they have lots of other patients also going without their entitlements for the same reasons.
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Re: upset by comments on my previous post

Postby babajane32 » Wed Aug 29, 2012 5:38 pm

18 months of trying to get some help...and only then after years of struggling and threat of losing a roof over my head with nothing left to shop with at the end of the week.having been self employed for years due to not being able to do a 9-5 job ,went paaay past being able to work ,escersise, socialise or much else and still getting nowhere fast...the stress has definately made everything a heap load worse! thankfully(after years of waiting)in the last wee whiley OT and district nurse have come onboard with enough helpfulls to make life that bit easier on a practical level......there is light ahead...just not where the dwp are, time to give up the stress and accept it, and hope for better
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Re: upset by comments on my previous post

Postby linedancer99 » Wed Aug 29, 2012 5:42 pm

When I applied and fought for my dla, going through the appeals process. the criteria was how far can you walk withott being in pain, not how far can you walk unaided. at the time I only had a diagnosis of degenerative disc disease in my lower back and osteoarthritis in my neck. I had not been diagnosed with fibro at that time, although I am sure I had it then too.
Walking, and dancing always makes my pain worse.
I am finding it harder to dance all the time. I now use my stick when I walk as my knee will give out, or my ankle and I now sometimes lose my balance.
I assume this is just the progression of fibro.
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Re: upset by comments on my previous post

Postby FluppyPuffy » Wed Aug 29, 2012 5:54 pm

I'm sorry you've been upset by comments on your previous topic linedancer. One of the drawbacks of a forum is that it is easy to read what someone has posted and interpret it in so many different ways.

Reading thru what was said, the comments weren't posted to cause upset, it was related to how much tightening up there has been in the DLA system, esp for those claiming for the first time.

To borrow what Lisa has said on your other topic, there is a section on he claim form which asks about hobbies and interests, their effects on your health, any help you may need to be able to do them etc.

DLA isn't only for those who don't/can't work, it can also be claimed by people in employment as it is to help with mobility and care needs thru a day. There's no need for you to feel as if you need to explain or justify anything, and I can't see
that there is anything saying that you shouldn't be receiving what you currently are.

On a forum there will always be a mix of opinions on a subject, some of which we agree with, some of which we won't. It doesn't read as if there was any maliciousness in what was said, it was someone simply responding to what was being said.

If you still feel upset with what has been said, if you let one of us mods know, and we'll remove your topic for you.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: upset by comments on my previous post

Postby babajane32 » Wed Aug 29, 2012 7:21 pm

HI, it's different criteria for dla mobility for low rate and for high rate i think, yes walking without severe pain can be a factor in the claim (I have cheese grater feet from ppp and even standing can bring tears to my eyes, but that hasn't helped in my case - but it certainly should have..hence comments on tightening up me thinks)...I dont think the criteria has changed , but definately how they interpet and regulate has in my view.....means many dont get it when they need it ,..fluffypuffy is spot on about it supposed to be about dla helping you get about..be it to work or to get to your dancing! argggh dont we all wish we could get every single government or dwp or atos personel to walk (or not) in our shoes for just one day ...ther'd be different outcomes for sure!!! xx
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Re: upset by comments on my previous post

Postby lyndylou29 » Wed Aug 29, 2012 8:53 pm

hi.... just read your post,do what you can when you can we can't give in to this pain.I know from my own experience that if I give in I think depression would set in. I try to carry on as normal even though I am in a lot of pain whilst walking,don't get me wrong a lot of the time I can't move out of the house but i still try to potter around the house. :-)
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Re: upset by comments on my previous post

Postby wolfstar » Wed Aug 29, 2012 10:53 pm

I have read what i posted and without thinking it could come across different to the way i intended so if offence was taken then i feel i must say sorry for that.

Anyway getting back to dla/pip as of april 2013 it will be PIP so i have posted the latest points score list here -> http://www.ukfibromyalgia.com/forums/viewtopic.php?f=11&t=14723 so you could work out what they may assess you as, but as usual the final decission will be with the decission maker.
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