Does anyone with fibromyalgia

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Does anyone with fibromyalgia

Postby Rachellou » Sun Feb 02, 2014 6:34 pm

Hi,

Does anyone with fibromyalgia claim the PIP allowance,

Many ppl might remember me, I was on JSA then moved to ESA, I am currently still on ESA and the doctor has said I am still not fit for work,

I have posted on the forum a number of times since, I had a question does anyone who suffers from this condition claim PIP, the reason I asked is because someone mentioned it to me.

Kind regards
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Re: Does anyone with fibromyalgia

Postby fletch » Sun Feb 02, 2014 8:21 pm

Im trying it going for the face to face consultation in 3 weeks

If fibro is limiting your every day activities like cooking washing getting about then try to claim PIP
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Re: Does anyone with fibromyalgia

Postby FluppyPuffy » Sun Feb 02, 2014 8:35 pm

PIP can be claimed regardless of your illness/condition/disability. It is paid depending on how your condition affects you, not because of the condition you have. Provided you meet the eligibility criteria, then you should be able to make a successful claim.

With PIP rollout taking longer than anticipated by those involved, and due to not enough staff being recruited tp deal with each stage/part of the claim process, there are currently massive backlogs all thru the system, so not a lot is known about the success rate of claims at the moment, or what sort of awards are being made.

This linky has more info about PIP. To see if you might be eligible to make a claim, or for more info/understanding, you might be better seeking advice from a Benefits Adviser, such as the people at Citizens Advice Bureau, or other similar support organisations in your area.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Does anyone with fibromyalgia

Postby leigh73 » Sun Feb 02, 2014 9:52 pm

After reading the hassles & stresses people are put through to claim pip I'm not bothering as I don't feel I have the strength in me to go through the process & the judgement from atos that haven't a clue on this illness. If the 'medical' was done by my doctor or a rheumatologist then I would. Just going through the esa process was bad enough. Luckily I went on income support as I'm a carer for my daughter. Until they start recognising this condition I can't put myself through it. Good luck to you if you do claim
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Re: Does anyone with fibromyalgia

Postby Rachellou » Mon Feb 03, 2014 7:25 am

Thank you all for your replies,

I think I'm going to give it ago, I've been struggling a lot since before Christmas,

I struggle to even walk up our street, I've currently got widespread eczema which is making matters worse my right hand is swollen and crack due to the eczema that I can no longer use my hand it's difficult to even hold a pen,

I'm going to see a rheumatologist on the morning of my birthday who is looking at specialising in this condition so fingers crossed I shall be getting some help
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Re: Does anyone with fibromyalgia

Postby pepperflo » Mon Feb 03, 2014 12:34 pm

Good luck, I have Fibro and RA, had my ESA stopped last year as they said they only pay it for 12 myths, I lost my DLA tribunal to try to get my mobility side of it blows. I too don't have the strength to argue,as all this happened just after my husband got diagnosed with Acute Myeloid Leukaemia, and is still really poorly and trying to find the right treatment to keep him alive after the chemo didn't work.
I went to my local job centre for one if them meetings you have to attend, and they said what about trying a job, I said I would love to go no to work have worked all my life until 4 yrs ago, but not sure the employer would be too happy with me, I could go in.one day fine as you like but the next day be ringing in sick as I'm.in so much pain I can't get out of bed.
I get low,rate DLA as I struggle to cook a warm.meal as I can't hold pans,or bend down to get anything out if the cooker,they totally bypassed my struggle to wash & dress every day my incontinence because I can't get to the loo in time.
Go For it and fight, at least if one if us gets it it will be one in the eye fir this British government.
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Re: Does anyone with fibromyalgia

Postby zappa20 » Tue Feb 04, 2014 4:37 am

Rachellou wrote:Thank you all for your replies,

I think I'm going to give it ago, I've been struggling a lot since before Christmas,

I struggle to even walk up our street, I've currently got widespread eczema which is making matters worse my right hand is swollen and crack due to the eczema that I can no longer use my hand it's difficult to even hold a pen,

I'm going to see a rheumatologist on the morning of my birthday who is looking at specialising in this condition so fingers crossed I shall be getting some help


If this is your first PIP claim would really advise you get professional help from either CAB or a similar welfare organisation. To be awarded PIP you have to show you've had these care or mobility needs for a certain amount of time and it's unlikely to improve within a certain amount of months. Even people with experience in filling out the older version DLA forms are advocating getting ehlp with the form.

There's also been huge delays in the process with decisions taking anything up to 9 months from first requesting the form to getting any decision. Thought I'd mention it in advance this as many people have become really stressed and anxious with the time the process is taking. On the basis of if you know it's going to take a while to get a decision you might be able to avoid the frustration they've had, as stress can make Fibro symptoms feel worse.
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Re: Does anyone with fibromyalgia

Postby zappa20 » Tue Feb 04, 2014 4:46 am

pepperflo wrote:Good luck, I have Fibro and RA, had my ESA stopped last year as they said they only pay it for 12 myths, I lost my DLA tribunal to try to get my mobility side of it blows. I too don't have the strength to argue,as all this happened just after my husband got diagnosed with Acute Myeloid Leukaemia, and is still really poorly and trying to find the right treatment to keep him alive after the chemo didn't work.
I went to my local job centre for one if them meetings you have to attend, and they said what about trying a job, I said I would love to go no to work have worked all my life until 4 yrs ago, but not sure the employer would be too happy with me, I could go in.one day fine as you like but the next day be ringing in sick as I'm.in so much pain I can't get out of bed.
I get low,rate DLA as I struggle to cook a warm.meal as I can't hold pans,or bend down to get anything out if the cooker,they totally bypassed my struggle to wash & dress every day my incontinence because I can't get to the loo in time.
Go For it and fight, at least if one if us gets it it will be one in the eye fir this British government.


Really sorry to hear about your husband being so ill and the circumstances of your DLA Tribunal. Have you sought advice from a welfare advisor or spoken to someone who can do a full benefits entitlement check to see if there's anything else you can claim to help ? Was wondering if your husband had med rate care of PIP or DLA, can you claim Carers allowance to look after him. As long as it didn't contradict anything on your DLA mobility claim it should be possible I think? A professional benefit advisor would be able to tell you all the options available to see which combination would work out best for you both.
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