working.

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working.

Postby Trish140363 » Fri Jan 23, 2015 10:54 am

Can I please ask, how many of you are still able to work...what job do you do.. and do you struggle? X
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Re: working.

Postby SchroedingersCat » Fri Jan 23, 2015 11:18 am

Me. 37 hours a week, office based admin role, 2 hours commute per day, not really, but I do have days when I am in bed by 8. When I started with this I was doing 7 day weeks in a high stress job!
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Re: working.

Postby Brian » Fri Jan 23, 2015 11:24 am

After working for 17 1/2 years I had to stop,I'm physically and mentally not able to but try telling that to atos
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Re: working.

Postby smig » Fri Jan 23, 2015 11:34 am

Hi, I am about to go back to work, I work for the railway and I do understand their worries about me working when I am drugged up to the eyes :-D , I have a meeting next month with my manager and HR to see what we can arrange. I don't feel that I could do my normal job. Maybe time to learn an office job. :shock:

Kind regards. Steve
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Re: working.

Postby Theresa34 » Fri Jan 23, 2015 11:43 am

I don't go out to work. But I do look after 3 kids, two dogs and run the household. I do want to go back to work at some point but honestly feel frightened at the prospect :shock:
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: working.

Postby lynlyn1212 » Fri Jan 23, 2015 1:43 pm

I still work. I am a primary school teacher and I find it really hard. Love being with the kids but the paperwork is killing as it needs doing when I am often too tired. I have had to reduce a day this year so have a 3 day weekend which helps. I am a fighter and very determined to keep working but it is getting harder and harder each year that passes. This is my 16th year teaching and my 13th with fibro symptoms even though only diagnosed 2 years ago! I don't know how long I will be able to keep it up though. Given a choice I would stop working but financial situation means I can't really. :cry: You do have to have a particular mindset to keep working when it is SO hard. Incidentally, I have never taken a sick day off for fibro symptoms but evenings I sometimes crash. Fortunately working with infant children they distract me all day from thinking about the pain and fatigue. I do sometimes power nap in lunch breaks.
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Re: working.

Postby Gingermama » Fri Jan 23, 2015 8:15 pm

I work 4 mornings a week as well as having 2 kids. Work is about the only time I function. I work as a specialist support practitioner. It involves driving to appointments which usually last about an hour where I do some 1:1 work with children and offer advice and guidance to adults involved with child.

I love my work but it does mean I am then exhausted most afternoons so my own kids never get the best of me or my time.

I'm actually going back to uni this year so will be studying full time, working part time and looking after the kids and the house... I'm pretty daunted by it but determined that I'm going to do it! Always wanted to go to uni but never knew what to study til now so just gotta suck it up...
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Re: working.

Postby fruitloop » Fri Jan 23, 2015 8:34 pm

I work full time in a finance office based role. It is incredibly hard to keep going sometimes (I have ME/CFS as well as fibro). I agree with other comments above about a particular mindset helping. Sometimes thats easier said that done, we all have our bad days :) The biggest help to me has been the adjustments - I dont have to start until 11:30 (so long as no meetings planned etc) and can work until 7- so long as I fulfill my contracted 35 hrs.
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Re: working.

Postby Kerrybelles » Fri Jan 23, 2015 9:15 pm

I work in an office based job. I find it a good distraction from the pain. It gives me something different to focus on. I do tend to keep my leave days for flare ups.
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Re: working.

Postby bubbles1977 » Fri Jan 23, 2015 9:16 pm

I run a cafe with my husband which we opened 2 years ago... I get 1 day off a week, got diagnosed with fibro last year and it is hell I'm in so much pain all the time xx
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Re: working.

Postby mel.morris29 » Fri Jan 23, 2015 9:28 pm

I work 40 hour week as Manager of a charity shop. Hard work. Often falling asleep on way home. Paperwork can be a nightmare when i have a foggy day. But i need my job so i keep going.
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Re: working.

Postby carolad » Fri Jan 23, 2015 9:42 pm

I am a librarian. I used to work full time (37 hours a week) but last year reduced my hours to 30 hours a week, so I have a shorter working day. It has helped - I don't have to sit in rush hour traffic and I'm home earlier which means I can actually make dinner before going to bed! When I was full time, I would often come home and be too tired to cook or eat so I just went straight to bed. But now I can make dinner and still be in bed for 8pm (which I need to be to be able to function at work the next day).

Like Kerrybelles, I find work is a good distraction for me, it gives me something to focus on and stops me feeling too sorry for myself. But it does mean that work takes all my energy, meaning I don't really have a life outside of work. In an ideal world, I would drop my hours to about 20 hours a week, and then I might be able to have a life :roll: But I can't afford it so that's not going to happen!
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Re: working.

Postby nichgem » Fri Jan 23, 2015 9:48 pm

I used to be a full time Nurse but found i couldnt do the shifts anymore i was just in pain and exhausted all the time. I couldnt live with the thought of not working, it would be the end of me. So... i opened my own care business and now i work when i want and for how long i want and i have a bed in the staff room for when i need a rest. My slippers are now a part of my uniform and i honestly love my job.
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Re: working.

Postby daisyp59 » Fri Jan 23, 2015 11:20 pm

I worked until August last year and then had to admit defeat! x
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Re: working.

Postby catrina » Sat Jan 24, 2015 12:56 pm

Iv had to give up my barber shop as haven't been able to work for a year now. Insurance and reumatologist said I was a liability. My hands drop everything and the day I nearly took a wee pensioners eye out it was time to give up.
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