esa and pip success rate

Moderators: perseus, *Lisa*, FluppyPuffy

esa and pip success rate

Postby phoenix67 » Mon Jul 13, 2015 12:58 pm

Hi, I was diagnosed with fibromyalgia in around 2006 and m.e./CFS in 2010 and suffer severely with both.

I'm waiting to receive the ESA and pip forms but was wondering just how successful people have been in getting the support group and getting pip. I have done the usual physiotherapy and CBT/get and psychology aspects that the hospital recommends but didn't find it of any benefit really. Its been years since I've seen a fibro consultant as they say theres nothing more they can offer.

Did those who have been successful have a lot of medical backup? Did you keep it brief and handwritten or long, detailed and typed?
I'm so stressed about the whole thing and very worried. I've tried reading things but can't keep it in my mind at all as my memory has deterorated so much that anything I try to explain just does not sound right.

Any help would be great.
phoenix67
UKFM Member
 
Posts: 16
Joined: Sat Jul 04, 2015 9:54 am

Re: esa and pip success rate

Postby lynda 24 » Mon Jul 13, 2015 1:15 pm

hello am currently on the sick due to artihitis and fibro as my job as a carer was too physically demanding for my body.
Advice that i have been given is to contact your local disability organisation and they will help fill in forms for you , you will automatically be refused pip but please do request mandatory decision then later possible appeal aganist the dwp decision, most individulals i know who have gone through this process it has taken about a year to get , it is back paid from the date you first claimed. i myself am still at the mandatory decision and as i am receiving sick pay i cannot get esa as yet, good luck and keep perserving with your benefits
lynda 24
UKFM Newbie
 
Posts: 6
Joined: Sun Jan 11, 2015 1:23 pm

Re: esa and pip success rate

Postby migrembe » Mon Jul 13, 2015 2:56 pm

It took me a year to get ESA support group but around the same time i received DLA high rate mobility and low rate care, no PIP in my area yet. When i reapplied last year i received both without medical for a further 3 years. I hadn't seen any specialist since i was first diagnosed 5 years ago. It is not supposed to be granted on what condition you have, but how it affects you day to day.

They tend to turn people down or give them the work related group, but ask for reconsiderations and appeals if necessary.

Good luck, Beverley x
migrembe
UKFM Member
 
Posts: 429
Joined: Fri Feb 24, 2012 8:23 am

Re: esa and pip success rate

Postby phoenix67 » Mon Jul 13, 2015 4:44 pm

Thanks you both for replying..

Migrembe, - at least some people are managing to get I to the support group then. Can I ask if you sent any medical support letters with your form then, and what did you find helped you the most when filling in the forms.? Did you keep it simple or did you add lots of additional info.?
phoenix67
UKFM Member
 
Posts: 16
Joined: Sat Jul 04, 2015 9:54 am

Re: esa and pip success rate

Postby scaboo » Mon Jul 13, 2015 11:47 pm

Send as much evidence as possible copies of letters from doctors ,hospital, lists of medication anything you have been sent from anyone that is related to your conditions and also add as much information as possible even on the extra information how your conditions effect what you do eg how your medication effects you , and give examples if you can , remember ESA is not a medical its whether you are fit to work and reasons why your condition affects your ability to work ,how it affects you day to day ,
Pip is a little different but again send photocopies of everything you send to esa as above and again as much evidence and information on how your conditions affect your everyday life ,I even took all my medication with me and someone came with me .I found website http://www.benefitsandwork.co.uk as they have the criteria and points system for both benefits I hope this has helped a bit and good luck
scaboo
UKFM Newbie
 
Posts: 9
Joined: Sat May 11, 2013 11:08 pm

Re: esa and pip success rate

Postby phoenix67 » Tue Jul 14, 2015 1:00 pm

Hi scaboo,

Most of my letters are many years old and don't really contain anything useful other than saying what condition I have. They are quite brief ones.

I've been looking at guides to help with ESA and pip but trying to get the words down on paper and have them make sense is proving impossible for me as my head is so muddled up. Everything I read is forgotten minutes later. I wish there was someone who can look at the letters and tell me if they are worth sending or not.

I really haven't a clue what I'm doing. Did you manage to get into the support group for your fibromyalgia?

What was the medical like?
phoenix67
UKFM Member
 
Posts: 16
Joined: Sat Jul 04, 2015 9:54 am

Re: esa and pip success rate

Postby UnderSiege » Tue Jul 14, 2015 8:24 pm

Hi everyone.

HEEELP!!!

I'm freaking out.

Just today I received notification from Atos (having dealt with them before for my ESA claim I call them A-TOS(ser) btw which I'm sure many of you will agree is fitting) for my PIP appointment of Friday this week... is it just me or have they not given me enough time to prepare? I mean, 3 days! Also, I only sent the forms off last month, I thought they took ages over it...

Anyway, I'm not sure I'll attend because I have no way to get there except public transport which screws with me every time I bother using it, I can't muster any back up to help fight my case there and... I'm freaking out most of all because what with fibro and OA being very variable I'm worried they'll think I'm just a malingerer and cut of ALL my benefits.
Just because I COULD possibly work to some extent for a handful of days a month at a huge stretch even though it would leave me knackered and writhing in pain for days afterwards doesn't mean any old employer would just be ok with that right? I mean, I wouldn't employ me knowing I might not be in at the drop of a hat and could be off for an indeterminate length of time even if I can occasionally mow the lawn (if I don't the council will fine me btw). Would you?

Like I say, this has got me stressing.

Any advice anyone can give me would be most appreciated.
UnderSiege
UKFM Member
 
Posts: 112
Joined: Mon May 18, 2015 1:26 pm
Location: Englefield Green (up the hill from Egham) UK

Re: esa and pip success rate

Postby *Lisa* » Wed Jul 15, 2015 12:02 am

Your being assessed for PIP? You can still work and get PIP

PIP is for all your care & mobility

So they will ask questions in relation to how you manage to get dressed/washed/bathe/cook and do you need some one to do this for you /assist you.

Do you need help in mobilising for example, do you need some one to hold onto when walking etc....

Do you need help with taking medications and so forth.
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
*Lisa*
MODERATOR
 
Posts: 3901
Joined: Sun Sep 07, 2008 2:01 pm

Re: esa and pip success rate

Postby UnderSiege » Wed Jul 15, 2015 12:53 am

Hi Lisa.

Long time no talk. Hope you're as well as can be :-D

Knowing I can work and claim PIP is good to know. In the future if I get pacing etc nailed I'd like to do something to earn a little extra or even offset PIP on the days I can stretch that far (I can hope right?)
As for mobility and such, I can still get from A to B most days... it just takes so much longer (down to the village shops used to take 15 mins tops even with the OA flared up. Now it can take up to an hour, grunting and grinding teeth every step of the way) I've really slowed down a huge amount and it costs a lot in pain and knackeredness. Some days I can be up and dressed inside an hour and other days... forget about it... I don't even bother getting out of my PJ's... getting socks on my feet is the hardest.
There's days when I can mow the lawn and not suffer much (until later. It always catches up eh?) Other days getting out of the car or stumbling slightly on rough ground or loose carpet is a yell-of-pain-and-frustration-inducing movement.

I do wonder, is it just me or does anybody else get it so bad in such an absolutely annoyingly stupid, farcical and tragic way?
I mean, being immobilised and cramped up in pain for several minutes for stumbling on the edge of loose carpet... who knew that would ever be a big issue?
And lets not mention being literally floored by a sneeze....

Sorry I know it's just as bad for everyone. It just gets to me is all. I just can't get used to it.

Have a good one!
UnderSiege
UKFM Member
 
Posts: 112
Joined: Mon May 18, 2015 1:26 pm
Location: Englefield Green (up the hill from Egham) UK


Return to DWP, Working & Benefits

Who is online

Users browsing this forum: No registered users and 4 guests