HELP! Got pip face to face assessment on Wednesday 30th sept

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HELP! Got pip face to face assessment on Wednesday 30th sept

Postby Siennasbreeze44 » Sun Sep 27, 2015 9:57 pm

Hi
I am panicking ,as I have a pip face to face assessment on Wednesday 30/9/15.
I have been on DLA ,HRC HRM for four years now.was sent a letter inviting me to apply for pip as DLA is being fazed out gradually.
My daughter rang and started the first process off ,then received the how disability affects you form.which didn't give u is much time to complete before the deadline.Took us over two weeks to complete ,that's with her doing the writing .mentally exhausting for me having to explain it all verbally .
Even after being very meticulous in explaining how my fibro ,me .asthma ,postural hypertension and M.E affects me we ha e still been sent an appointment.i sent lots of reports from my consultants,care plans etc.was given a home visit for my ESA assessment two years ago .but despite our requests ,sending in a letter with questions about the assessment centre ,my daughter phoning several times .they are dragging there heals about answering the questions ,which are important .as looking where it is there is no car park outside the place or disabled parking spots and haven't confirmed whether the centre has disabled access and whether it I s on the ground floor .
I have to use a wheelchair now ,as it's not safe for me to try and walk ,as I have a very ungainly stiff waddle of a walk and suffer from dizziness and light headed ness ,due to postural hypertension ,which means I fall and faint ,made worse with fatigue etc.i am very sensitive to light ,have to keep room blinds shut at home and prescription dark glasses in when I go out ,even then my eye pain is still bad.i have blood vessels that burst in my eyes regular ..all I am told is connected to my conditions .
I desperately want a home visit as I panic and get really anxious in stressful situations like these and I'm worried that my brain will just go blank and forget what to say even with prompt written down .my daughter will be coming ,but she isn't that confident herself and I don't have anyone else who knows me well enough to take me instead.
Because of this I am bricking it and thinking that I will fail to get enough points cos I can't explain myself well enough verbally.
My form, was really well filled out and lots of detail included.we used the benefits for work members guides to complete it.
Also,because if I turn up to the assessment they will think I am not as bad abefore ,but nothing has changed just think I will be dammed if I do and dammed if I don't.
So scared il loose my benefits because of it .im a single parent with three kids,mortgage and have had to give up my job because of my conditions.i battled on for years before having no choice ,but to pack in .without the benefits I will loose everything and won't be able to continue with getting hired help.have heard the outcome of this assessment will affect my ESA too.
Anyway ,was just posting to ask if anyone could give me some advice on what to expect in the face to face .e.g what questions they ask so I can think about and make notes on what and how I am going to answer the usual questions.should I take some of my diary entries for examples of what I go through each day mentally and physically .
All this pressure and stress is causing a flare .ibs In full swing and vomiting today and we are only on Sunday .
Feel so alone in this ,no friends to help ,can't go out without help of my children ,even then only in my wheelchair on average that's only twice a month to hospital .
O.t's came to assess me again after my rise recliner broke ,said it was to see if I can have a replacement ,but the questions they were asking made me feel like I was having an ESA assessment .they definitely had an ulterior motive.told them I wanted to be left alone as they were interrupting my rest time ,I kept drifting off eyes shut ,when she was bombarding me with questions .but she wasn't bothered .just said we need to do this.as a result,I Was stuck in bed for 4 flipping days through their selfishness,because I didn't get my rest mentally and physically .my body went into payback mode.THanks adult social care!!! Or not so caring it would seem.
Should I take my latest report from my rheumatologist.it came the other day ,but doesn't state all my conditions .just mentions to my g.p that he should forward me onto the pain clinic and that she notices that I also have tennis elbow on top of my usual issues.
She didn't mention everything I said to her in the report .which is annoying.or would this report be of no help?
Had a letter from physio yesterday to saying he will refer me to exercise on referral at a gym ..that's a joke ,if I stand up and try to walk ,I pass out,and or fall ,so how the heck can I do gym exercise?i know I sound negative ,but I'm being realistic as I have learnt over the years what my limitations are.
Any advice ,thoughts and sample questions that any of you have had would be greatly appreciated.
I just want to crawl under a rock at the moment and shut out all this stress!
Gentle hugs to you all x
Siennasbreeze44
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Re: HELP! Got pip face to face assessment on Wednesday 30th

Postby Jeany » Mon Sep 28, 2015 7:59 am

You're explination of how your daily life is effected is much the same as mine, as I too have fibro, CFS, ME and several terrible stomach issues. I have be under going extensive test for digestive problems which have taken 8 months so far as I have to cancel so many appointments due to pain, but also anxiety & agoraphobia which cripples me and I have to be sedated with Diazapam which doen't always work.
I am like you terrified of my re assessment because they are so awful to people who are genuinely ill, and like you I would probably starve without my benefits. I like most of us have struggled with illness for years and worked, but had no choice but to give up due to ill health.

I wish you good luck, and please let us know how you go on.

Jeany
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Re: HELP! Got pip face to face assessment on Wednesday 30th

Postby Siennasbreeze44 » Mon Sep 28, 2015 11:55 am

Hi jeany,
Thanks so much for your well wishes.
As yet ,I still haven't had a reply via email or any other means from ATOS about the consultation centre facilities.
My daughter has asked for a same sex assessor as we both have suffered domestic violence in the past and panic around men we don't know.
So I'm really worried that ,because they haven't responded to this letter that they will not have organised a woman for us.
My diaghter is giving them until this afternoon then ringing them and chasing it for me.

Funny how they are quick to send me a text reminder ,rubbing it in about the appointment ,but don't bother responding promptly to our queries.if their are steps on the approach to the place or in the consultation centre I won't be able to go in,if there aren't any blinds or curtains up in the place to make it dark in the room be use of my really bad light sensitivity then I will be in so much pain with my eyes that it likely trigger a migraine and make me vomit
.be so much less stress and easier to do it at my home as it has been adapted for me.
But they are refusing to do a home visit.

My dad visited the centre I had to go to before for my ESA assessment .however,it was a different building .he went a few days before the appointment ,just rang the bell introduced himself and reason for calling they let him in.YEt ,when my daughter rang to say she wants to do the same again at this different centre.they lied and said its not a service they offer.Hmmm.do you think my daughter should just go to the centre do a recky and ring the bell ask to view the centre anyway like my dad did?

As a result of what my dad did ,ATOS rang and told them that he had been .the consultation centre appointment was cancelled and a home visit arranged .which meant I was more relaxed and they had a more accurate information /report as I was less stressed .although had to keep being reminded where I had got to in the conversation ..brain fog e,memory issues etc.
Would you take some diary templates with sample says on an average and a worst day?
Do I need to take a copy of my form that I filled out with me?

And another copy of All the hospital reports and various care plans ,even though they date back to 2011
I don't consider myself to have good days ,cos I'm in pain all the time ..which isn't how I was before I became ill.
I put that in my form too ,bet they frown upon that ,but it's true !
Any idea what the standard questions are they ask ?
other than do you have pets and children and how did you get here today and do you visit the supermarket.
I know about those and the cognitive counting backwards thing and remembering three objects.

Thanks for your support will definitely report back on here how it went ,when I've recovered from it ..which is likely to be At least 3-4 days of being in bed.when I say bed I mean my recliner hair as I can't sleep in a bed anymore due to the pain and pressure on my muscles and joints.
Hope you have a nice relaxed day xx
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Re: HELP! Got pip face to face assessment on Wednesday 30th

Postby Jeany » Mon Sep 28, 2015 4:06 pm

I insist on home visits because of my anxiety & agoraphobia, but admit they are trying to catch you out as if you are some petty criminal.

They even put on my assessment that I care for my cat...so what I have had him 14yrs do they expect me to throw him out ? All he does is sleep & have a little food & water for goodness sake.

I think you should have sent diaries etc with your forms, but take with you everything you have to prove your issues,and just be clear that this illness effects you night and day in dozens of different ways, and that you would work if at all possible.

Don't lie, but if you are asked if you can do something then if you couldn't repeat the task regularly say no, because they need to know what you are like at your worst.

If your assessment results are not good then appeal, and try get Citizens Advice or someone else to help with the paper work.

Jeany
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Re: HELP! Got pip face to face assessment on Wednesday 30th

Postby Siennasbreeze44 » Tue Sep 29, 2015 12:17 am

Thank you for the advice jeany,
Well ,we had an answer phone message at 5:30pm,rang while we were having our meal and my daughter didn't ,as he to catch it in time before answer phone kicked in.anyway,it was ATOS ,asking us to call back ,urgently.we did return their call .the bloke Thant answered said the woman who rang us had finished for the day ,but had not left any notes on the system as to why she called you.so we have to ring back in the morning .talk about last minute ,I'm hoping its to say ,they are going to offer a home visit instead..although I've got that gut feeling that they are not.
Well ATOS wil have a pink fit coming to our house,as we have 4 cats and two dogs.they aren't mine personally ,one dog is my daughters and the other my eldest sons who is nearly 18 .the cats are just part of the family ,had them years like you.
They make so many assumptions.i got cross with one of the o.ts who was clearly covertly recording my assessment for the chair supposedly .she was describing one or our cats as he came wandering into the room for a stroke. I just said before you say anything theirs not just me who lives in this house you know and the cats are part of our family ,my children share the responsibility of feeding them and walking the dogs!i glared at her.then my youngest son came home from school ,she started saying ..o he just cones in a slings his bag on the floor and goes to play out with his friends while clearly fiddling in her bag with her phone..what the heck.
One question they did ask me and I'm not sure I answered them right ,is do you get things for ourself when you are hungry ?
I said ,I try to ,but depends what my pain ,fatigue and stiffness levels are like.usually my daughter leaves me something out as she doesn't consider me safe I the kitchen without assistance .
I know what I need to say but under pressure my Brian just turns to mush and can't explain myself well enough..really frustrating as I was sharp as a pin before I became ill ,
Do you know if the health care professional will stop the assessment when I need the loo ?which will be several times as my its is in full force at the mo as is stressed.worried I won't make it there without pooing myself as its 25 miles away from our home.i can't wait when I get the cramps I have to go there and then .loperimide invariably doesn't work for me and isn't at the mo,guts are creasing me.
Was the health care professional nice to you?
How do I describe an average or topical day for me ,do I describe it as my worst day as an example or an average day for me ,which is when I've rested loads and could likely read for 10-20 minutes.
I told o.t's that ,then she started asking me what sort of books,do I listen to audio books.. Like opening a can of worms lol.
Hate discussing my conditions and how it affects my daily life ..depressing ,makes me feel even more down than I already do .
Just glad I have my children ,they are my glue that holds me together ,keeps me going and gives me some, purpose to life.
Really appreciate your input JEany.Gentle hugs to you and your furry friend lol.x
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Re: HELP! Got pip face to face assessment on Wednesday 30th

Postby Siennasbreeze44 » Tue Sep 29, 2015 12:28 am

P.s how did you get ATOS to back down and give you a home assessment?
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Re: HELP! Got pip face to face assessment on Wednesday 30th

Postby Siennasbreeze44 » Tue Sep 29, 2015 12:31 am

Was your last assessment successful or did you have to go through the painful process of appealing?
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Re: HELP! Got pip face to face assessment on Wednesday 30th

Postby Jeany » Tue Sep 29, 2015 8:42 am

I get home visits because I have battled with agoraphobia for 30 years, which I now find I'm losing the battle with as I am so ill with other things, so I rarely am able t go out. For medical appointments I have to be sedated, but as medication does not work very well on me I may have to cancel 3 or 4 times. I also had a complete breakdown in 2011.
I was lucky enough to be referred to the ME/CFS specialist team at Leeds about 18 moths ago, but after an assessment they said that I was to fragile to be put through their therapy treatment and they dare not risk me having another breakdown.

In the past I have had to appeal, u when the Leeds ME/CFS team sent their report I was changed into ESA support group immediately. How often do they do the assessments ? Like I say that was approx. 18 months ago, so I must be due again soon.
All my symptoms are much worse now and at 58 years old I feel 90 years old and that my life is over with little pleasure, and unable to do very much at all.
GP called this morning as to how I can get pain relief and some sleep as I am in agony from head to toe constantly. I have now been prescribed Tramadol but I am concerned as to effects as I live alone. I'm also being refered to a pain clinic.
Awaiting bone scan results, and then may be tested for MS.
Things are dreadful at the moment.
Good luck everyone and keep pushing for fair treatment. x
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Re: HELP! Got pip face to face assessment on Wednesday 30th

Postby Siennasbreeze44 » Mon Oct 05, 2015 7:53 pm

Just to let you all know
After a lot of persistence form my daughter .Atos have finally agreed to do a home visit.so they cancelled the appointment at the centre.
Although I am little happier that it's going to be at home I am still worried.
O.T's haven't helped as they keep bombarding me with questions when they come ,despite me telling them I am too exhausted and can't think straight.some of the questions sounded like I was having a pip assessment ,nothing to do with what they supposedly came for.
What bugging me is ,why they kept saying you are right handed aren't you ?
What relivance does that have to pip or an o.t assessment?funny enough my consultant asked the same the week before.
I can't think quick enough to ask them why they asked that question ,cos I'm all foggy and mind goes to mush when under pressure and stress.which they were causing.
Caused a flare the day after their visit and went in for 3-4days after
Don't think my assessment will be fair anyway as they are coming first thing in the morning when I'm at my worst ,will be too groggy ,stiff and in too much pain to answer their questions properly .which is a worry.
Plus I am unsure as to how to answer the question of describe a typical day ,good day and bad day ,as I am in pain all the time ,I don't feel I have good days because of this.i try to stick to a routine but is difficult due to fatigue and pain etc,plus I have terrible insomnia ,so my body clock is the wrong way round .
Anyone any ideas tips ?
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Re: HELP! Got pip face to face assessment on Wednesday 30th

Postby kally » Mon Oct 12, 2015 6:53 pm

Hi all,recently diagnosed with fybro and angina,I had a face to face assessment two weeks ago in Chester.anyone facing this should stay calm and collected,easier said then done I know but its important to show them that you are in control,two bits of advice I followed were,ask the full name of your assessor and ask what medical field they specialize in,there have been reports of atos using unqualified people to do the assessments.ive been told to expect my claim to be rejected,if this happens I will ofcourse appeal.i was also told not to hide my pain or discomfort,if you need to stand up during the interview just say so also if your asked to do something that you know you cant do or would cause you pain to do simply say,I cant do that.they cant make you do anything.i wrote a list of the primary things that cause me pain,when asked why I had a list with me I explained that my memory is poor.im not sure how the meeting went but I hope for a positive outcome.good luck to all awaiting a face to face and please don't be scared.xx
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Re: HELP! Got pip face to face assessment on Wednesday 30th

Postby mrselizabeth » Mon Oct 12, 2015 10:37 pm

Hello

I totally agree..A face to face is nothing to worry about. Especially if it is in your own home as mine was.
You are more relaxed in your own property, rather than an office.Just tell them the truth of your daily activities, and if you are unable to do tasks as they request...then just say no as I did. I were on a bad day when she came here, and was questioning me for 2 hours...But it was on I were rewarded full PIP... :-)
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