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The UKFibromyalgia Forums • View topic - new to forum and fibro



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Moderators: perseus, *Lisa*, FluppyPuffy

Postby Min » Sun Sep 16, 2007 9:26 am

Hi Shayne & welcome. I'm in Frome not far from you. Do ask to be referred to a pain clinic if you can't cope. Do you go to the Bath Mineral hospital too?

(You might find that Gabapentin or Tramadol will help you, I'm having trouble with pain now Co-Proximal has been withdrawn. My GP has given me Codeine to which I am allergic, & paracetamol which does nothing.)
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Postby Joo » Sun Sep 16, 2007 12:26 pm

Hi Shayne, like Pauline I want to say 'Hi' too and to totally agree with everything she just said!!! :lol:

Take care of Number One for a while, probably the hardest thing to do I know, but a skill you may need to learn for self preservation. You sound a typical fibromite - you put others needs before your own and end up suffering for it. Take a while to learn how to cope with your own diagnosis and you'll find your new road in life much easier to travel.

Chill.............. Joo x
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Postby aster » Sat Sep 22, 2007 8:46 pm

Hello everyone, I'm new , Reading through the posts I realise how many of us are suffering, at some time, or the other with similar problems.

We live about 14 miles from Manchester My husband was born here,, me I'm from Cambridgeshire........ and my son & his GF live near Cheadle Hulme,

I have to say that the Clinic in Bolton has been brilliant in helping me......

Aster.
Its not as bad as it looks, as tomorrow is another day
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Hi I'm Lesley from Cardiff

Postby Lesley34 » Thu Sep 27, 2007 1:56 pm

Hi All

I was diagnosed with fibromyalgia in 2004 but reckon I've had it most of my life with the unexplained symptoms starting around 1995. I have been on 20 mg of amitriptiline which certainly helped to dampen my symptoms. But when I went on holiday and forgot to take the amitriptiline with me all of my symptoms came back with a vengeance! I soon learned that all of the usual painkillers don't help and just take Nurofen Plus for bad headaches but not for any of the other aches and pains.

I read about the drug Lyrica in Family magazine and went to see Professor Davies at his private clinic (I spent £295 on the consultation and injections). Prof Davies is really lovely and extremely empathetic and wrote to my GP in Cardiff suggesting that he prescribe me the Lyrica. My GP just doesn't understand fibromyalgia and was reluctant to do this until he'd consulted with Mr Camelleri at the University Hospital of Wales (just a couple of miles away from my home). Mr Camelleri said ok to try this as the drug is authorised for use with neuropathic nerve pain in the UK. My GP said that at £1 per tablet its very expensive so will put me on a trial basis for 3 weeks. The first week I'll take 25mg at night and if I can tolerate this then will double the dose for the next two weeks.

I thought that I would keep you all posted on my progress and if it works for me then suggest that you all see your GPs/Specialists asap.

Ive been on some of the NHS websites and there is a great emphasis on self reliance but sometimes when the pain gets too much and you can't function like the other members of your family and friends then its important for us to share our experiences and anything that can help.

I have come across one or two "quacks" who feed off peoples fears and make money that way. I think exercise and a healthy diet definitely does help to improve the situation as does a positive frame of mind.

I'm lucky in that I'm self employed so have no boss to nag me over sickness record (which happened to me in my previous employment where I was on a sickness action plan!) :oops:

Personally, I'm 50 next month, live with my partner Kelvin who is a ROCK and between us we have 4 grown up children and 2 cats!

I'll post again after my 3 weeks trial on Lyrica. 8)
Keep smiling, Lesley x
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