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The UKFibromyalgia Forums • View topic - fibromites, fibro survivors, fibro sufferers???



fibromites, fibro survivors, fibro sufferers???

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fibromites, fibro survivors, fibro sufferers???

Postby Deegill » Wed Aug 10, 2011 9:46 pm

What are we? my friend is writting a letter to companies asking for donations for a raffle. she doesnt want to put fibromyalgia suffer with carers, don't want to put fibromites, what would you say?
A smile a day keeps the doctor away!

Denise xx
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Re: fibromites, fibro survivors, fibro sufferers???

Postby cherryblossom » Wed Aug 10, 2011 10:45 pm

Hmmm, difficult! We never want to admit what we are do we? Perhaps something along the lines of 'owner of Fibromyalgia, a neurological, cognitive, painful and debilitating illness, often suffered in silence, known by very few'.
Ok, it's a bit long, but maybe somethng simliar! lol! Hope you are able to come up with something :fingerscrossed:

Take care Cherry :hugs:
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Re: fibromites, fibro survivors, fibro sufferers???

Postby denys » Thu Aug 11, 2011 12:01 pm

Fibro sufferer too I only use the expression fibromite on here as it sort of signifies a group but not the sort of thing I would use in general especially in a letter, survivor to me means you've beaten it and got over it which we havent :dunno: :dunno: :dunno:
Denys

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Re: fibromites, fibro survivors, fibro sufferers???

Postby shazq » Thu Aug 11, 2011 5:35 pm

Fibro suferers sounds better. :clap: :clap:

fibromites is ok being used on the forums as its just what we call ourselves and like the others have said survivors would make it feel like you have beaten it. :dunno:
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Re: fibromites, fibro survivors, fibro sufferers???

Postby FluppyPuffy » Thu Aug 11, 2011 6:23 pm

Fibro sufferers would be my choice as well, or what about fibro fighters or battlers, as we're all waging war on or against it :? :? :? :?


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Re: fibromites, fibro survivors, fibro sufferers???

Postby Deegill » Sat Aug 13, 2011 11:37 pm

Thanks all, I like Fibro fighters, I think it sums it up, as we are fighting it daily,

Thank you everyone for your suggestiongs, my RC says fibromites, i know alot of people do, but im going of it, as it was mentioned sounds like bugs - but then - most of us got fibro via a bug - (virus!!!!)

Off to Somerset tomorrow for a few days, take care xx
A smile a day keeps the doctor away!

Denise xx
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