Young People with Fibromyalgia

Enjoy general conversation with other members

Moderators: perseus, *Lisa*, FluppyPuffy

Young People with Fibromyalgia

Postby Hayz543 » Fri Aug 12, 2011 5:51 pm

Hiya!

Is there anyone in their 20s with this illness? Need to get to know people around my age with the same condition as me :)

xxxx
Hayz543
UKFM Newbie
 
Posts: 2
Joined: Sun Jul 05, 2009 6:02 pm

Re: Young People with Fibromyalgia

Postby denys » Fri Aug 12, 2011 8:36 pm

We have a board for young people and there are quite a few of you unfortuantely I'm sure you will get loads of replies shortly :wave: :wave:
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
denys
UKFM Veteran
 
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm

Re: Young People with Fibromyalgia

Postby McVinster » Fri Aug 12, 2011 9:17 pm

I'm 23 and pretty convinced I've had Fibro since being about 11!
Image

"Time is an illusion; lunchtime, doubly so." - Douglas Adams
User avatar
McVinster
UKFM Member
 
Posts: 70
Joined: Mon Jul 04, 2011 1:02 pm
Location: Loughborough, Leics

Re: Young People with Fibromyalgia

Postby Ldyalb » Fri Aug 12, 2011 9:57 pm

:wave:

I'm also 23, been suffering with Fibro properly since shortly after my 22nd birthday 14 months ago but have had some little flares since I was about 15.
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
User avatar
Ldyalb
UKFM Regular
 
Posts: 1667
Joined: Sat Nov 13, 2010 6:46 pm
Location: Lincolnshire

Re: Young People with Fibromyalgia

Postby selbo28 » Sat Aug 13, 2011 2:39 pm

Hi, I'm 28 years old, symptoms started when I was 14 but docs always put it down to growing pains or just weren't interested!! I was only diagnosed last month after years of battling and now struggle to do anything most of the time and always use a walking stick.
I'm glad I have finally been diagnosed but also upset that I can't do anything I should be able to do at my age! I'm sure we all feel like this and it doesn't matter what age you are really, this condition is life changing but thankfully we can come on to this site and talk to people who really understand,not just pretend they do!!
I also have joint hypermobility syndrome which really adds to the pain!! :(
selbo28
UKFM Member
 
Posts: 17
Joined: Wed Aug 03, 2011 4:04 pm

Young People with Fibromyalgia

Postby Lorrie82 » Sat Aug 13, 2011 5:05 pm

I'm the same as u selbo82. I've been diagnosed 4 years now but docs reckon I've had it since I was 14 I'm also 28 and have hypermobility too .xxx
Lorrie82
UKFM Member
 
Posts: 66
Joined: Tue Aug 02, 2011 7:45 pm

Re: Young People with Fibromyalgia

Postby Ninja » Sat Aug 13, 2011 7:42 pm

I'm 21 and got diagnosed 2 weeks ago, had symptoms scince about 7 though and all put down to growing pains etc.

struggling a bit with coming to terms with it at the moment
Life isn't about surviving the storm, it's learning how to dance in the rain
Ninja
UKFM Member
 
Posts: 41
Joined: Sun Jun 26, 2011 10:23 pm
Location: Wigan

Re: Young People with Fibromyalgia

Postby McVinster » Sat Aug 13, 2011 9:00 pm

I put it down to growing pains myself when I was younger, it just hits you now how many of the little things you could have noticed before, but my Fibro honestly wasn't bad enough to properly bother me when I was young, I didn't suffer with fatigue at all then. I was part of the local track and field team (Wigan Harriers, I'm from Wigan originally) and did all sorts of things.

In my teens I went out every night for a couple of weeks one half term :lol: Even when I moved here 3 years ago I was feeling ok, with just some back pains I put down to me working at the off license, carrying heavy thing and being stood up for 5+ hours.

It was just after Christmas 2 years ago I started to feel ill, like I had a stomach bug. First week into the new year, I woke up at 3am in screaming agony with the worst stomach pain I've ever had. Boyfriend phoned an ambulance but they insisted it wasn't an emergency even though I could hardly walk and the pain was so bad it was making me throw up every few minutes. Managed to get me to the Walk-In Centre here by about 7am but by then it had faded enough. Doc thought it was probably a stomach bug but said to get some Buscopan for the cramps. I love those magic tablets! Nice that they also help with my car sickness. It went on for a few more weeks though, and it was DX as IBS. Wasn't for 6 months after that I started to get fatigue and joint pains properly.

I turned up to see the Registrar at my surgery, told him I thought I had Fibro and told him all the symptoms I have (which is about 90% of the common ones, though I have to say they've never been half as bad as some people here's) he did blood test (It came back "perfectly normal" lol they obviously never met me) and pressure point test, said I probably did have Fibro and that I could go to a rheumy or just start on Ami's and see if they helped. They did and with some jiggling of doses I now class myself as Not That Bad in Fibro terms :D
Still struggle with major fatigue and memory loss, but the pain is manageable most days, so I cope.

Phew that was a Short History of Me.
Image

"Time is an illusion; lunchtime, doubly so." - Douglas Adams
User avatar
McVinster
UKFM Member
 
Posts: 70
Joined: Mon Jul 04, 2011 1:02 pm
Location: Loughborough, Leics

Re: Young People with Fibromyalgia

Postby Ninja » Sun Aug 14, 2011 9:58 pm

I'm from wigan too (:

mine properly started with stomach pains in high school ended up in hospital a few times, that settles down then had achy back, put it down to work. now I have pain all over and the fatigue is horrendous. I also walk with a crutch when I'm bad.
Life isn't about surviving the storm, it's learning how to dance in the rain
Ninja
UKFM Member
 
Posts: 41
Joined: Sun Jun 26, 2011 10:23 pm
Location: Wigan

Re: Young People with Fibromyalgia

Postby Pheebz_Lou » Mon Sep 19, 2011 8:33 pm

Hi there, I am 22 and have been off work for 6 months now. Docs and specialists think it is Fibro and am going back to the rhmey on Wednesday where the doc thinks he will diagnose me.
My mum is convinced that i have always had this illness, as like many of you i had lots of 'growing pains' and terrible fatigue growing up.
I find it hard to accept that i have this illness!
I also think i have the beginnings of rheumatoid arthritis! Ahh well, fingers crossed its not!
How do you guys cope with the everyday aches and pains?
:fingerscrossed:
Pheebz_Lou
UKFM Newbie
 
Posts: 6
Joined: Thu Aug 25, 2011 7:32 pm

Young People with Fibromyalgia

Postby Lindsays82 » Mon Sep 19, 2011 9:05 pm

Hi there I'm 28 and recently diagnosed with FM, after months probably years of pain, always had every illness and aches and pains whilst growing up but never got to me at all.
I played rugby from the age of 10 and even joined the armed forces as a medic at 18 all was well until few years after I joined up when again seem to catch every bug going (some just a hazard of the job) also got a pretty bad back injury in 2003 whilst in Iraq, also nasty leg injury which plagued me for 3 years until operated on July 2010 - I had compartment syndrome in both legs

My nickname within months of qualifying as a medic was White cell as I was always ill.....makes sense now lol!

Since the diagnosis life has changed so much from worrying about day to day things and also admitting that my days are numbered in my current career - that's been the hardest part as it's all I know.


Sending gentle hugs to my fellow fibromites x
Lindsay

JUST BECAUSE I LOOK NORMAL TO YOU IT DOESN'T MEAN I AM NOT IN PAIN OR BEING LAZY!
User avatar
Lindsays82
UKFM Member
 
Posts: 58
Joined: Thu Aug 11, 2011 8:27 pm
Location: Gosport

Re: Young People with Fibromyalgia

Postby Kirsty-Ann91 » Tue Jan 24, 2012 11:16 am

hi sorry for the late reply i have only just joined this forum. I was diagnosed age 17 and am now 20. I had fibro symptome since the age of 8 But it was put down to growing pains until i stopped growing at 13 when the decided to look into wheather my pain was real or not ( the its all in your head speech) Had blood tests and scans and all kinds but nothing showed up so was sent to pain management then i was diagnosed.
Kirsty-Ann91
UKFM Member
 
Posts: 11
Joined: Wed Dec 14, 2011 12:37 pm

Re: Young People with Fibromyalgia

Postby tyrannosauRoss » Wed Jan 25, 2012 11:20 pm

I'm yet undiagnosed, but waiting so who knows what will happen.

I've suffered pains since the age of 10 and now being 23 they are seriously bad.
Again all put down to growing pains and various other problems like flat footedness etc.
tyrannosauRoss
UKFM Member
 
Posts: 108
Joined: Sat Jun 18, 2011 4:34 pm
Location: Edinburgh

Re: Young People with Fibromyalgia

Postby jenniferm202 » Thu Jan 26, 2012 10:46 pm

I am 16 and have fibro :(
jenniferm202
UKFM Member
 
Posts: 52
Joined: Sat Jan 14, 2012 3:35 pm
Location: Glasgow

Re: Young People with Fibromyalgia

Postby Matty » Sun Jan 29, 2012 9:46 pm

I'm 27 and newly diagnosed with FM. Had it for about a year now.

Used to play football 2-3 times a week, gym everyday. Sometimes I struggle to walk now, never have much energy to do anything strenuous. Still a learning curve atm.

Matt
Matty
UKFM Newbie
 
Posts: 8
Joined: Fri Jan 06, 2012 8:46 pm

Next

Return to General Topics

Who is online

Users browsing this forum: No registered users and 2 guests