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The UKFibromyalgia Forums • View topic - sacrcoilliac joint problems



sacrcoilliac joint problems

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sacrcoilliac joint problems

Postby shayne » Wed Sep 26, 2007 10:34 am

Hi all,
I have decided the colds i think i keep getting aren't really colds after all, its just me being extra sensitive to something , cause if i sneeze once in a day theni sneeze a thousand times if you get my drift ! :roll:
I am wondering if anyone else on here suffers with their sacroilliac joints. I have been told mine are too far apart, which makes my pelvis very unstable. the result of which there is alot of pain, cant walk far at anytime , cant get comfy in bed, cant do too much exercise. Put this with the fibro which they say well and truley aggrevates it, and its agony.In truth i haven't had a good day what with that and the fibro for about 4 months now ! If I have a day when i feel the fibro has eased a little then my back plays up more, so i never seem to win. Off to the job centre tomorrow to do with incapacity benefit, wish me luck :) Its cold out but the sun is shining, so lets make the most of it , winter is just around the corner. gentle hugs to all .Shayne. :)
shayne
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Joined: Thu Sep 13, 2007 10:50 pm
Location: Radstock

Postby suep » Wed Sep 26, 2007 6:39 pm

Hi Shayne
Up until recently I thought Id had sciatica for the last few years, but after being checked over recently by a physio I was told it's the sacrolliac joint. I wish I'd asked him more at the time as I don't know if it's fibro in there or arthritis now ! It is really painful and I have trouble walking too. I've had a steriod jab and an epidural there but neither worked for more than about 2 weeks so I've just got to put up with it :(
I am going into hospital on the 15th for 2 weeks of therapy on the rheumi ward though, I've done it before when I've been really bad and it's daily hydro and gentle stretching exercises plus relaxation. It does help a lot while I'm in there and I'm really hoping it helps with this sacrolliac pain, but I usually end up slipping back into bad habits once I get home again.
sue x
suep
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Postby Ally » Wed Sep 26, 2007 10:02 pm

i was told by the first physio i saw that i had that joint prob in my pelvis, the rheumatologist then shook his head an said no no, i want u to go to the hospitals physio cos i think its polymyalgia and the physio shook his head an said this looks like fibro !!! so i went back to the doc shaking my head and almost my fists and he didnt shake his head but sent me back to the rheumatologist ( another one ), she said nope, its fibro and the bone scan comfirms arthritis. Ive just been back to the first rheumatologist who said yep, arthritis and fibro and ill send u for more x rays and more blood tests. Why dont they do ALL the blood tests and ALL the x rays at one time, i mean ok maybe it costs them money but how much does it cost for repeated appointments when they dont pinpoint whats wrong in the first place ?
Better still, why dont they stop treating people as they know whats wrong before u have even opened ur mouth.
And another thing, wen they thought it was polymyalgia i was sent to be measured up an fitted for insoles for my shoes because my toes and heels kill me, the insoles are in a drawer, ide rather spend a week fire walking with a sack of spuds on my back, talk about crippling, they dont even fit in any of my shoes!!
I watched an episode of the simpsons once where bart was sent to medical specialists, he went home in a denture brace, built up shoes and jam jar spectacles, wen i left the hospital wearing those insoles that episode came to mind.
By the time i had got to the bus stop i was in agony with them. I rode home with a face like a battered bucket. When i got off the bus i was saying to myself, just a few more steps, i can see my house, keep going and then u can get ur shoes off !!
I went to the doctors today, i said when the doc gave me my script for amitriptiline it didnt have a repeat script thingy on it, receptionist said " well thats means u have to see him before u get any more " i said but im runnin out and its gonna take me days to get an appointment with the new system !! she said " well given the nature of these tablets i can see why he hasnt given u a repeat " !! i said but the rheumatologist said the dosage was to be increased not stopped !! she said " well im sorry but ur gonna have to keep trying to see the doc" and wot did she mean " given the nature of these tablets" hardly class A !! i cud feel everyones eyes on me in the waiting room, can just imagine wot they were all thinking !
They will have me on daily visits to the pharmacy soon, signin a book an being given one tablet in a disposable cup to take there and then !!!
Dear God im not a junkie i just want a decent nights sleep !!
Ill stop ranting now but it makes my blood boil, every single bit of it !!
Ally
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Postby suep » Sat Sep 29, 2007 3:18 pm

Thats awful Ally, I can understand why you feel so frustrated with the treatment you've had, but at least you finally have a dx now even if the treaments not working. I had lots of tests and Xrays before I was dx with FMS 11 years ago, but since then anything nnew thats come up has just been put down to FMS and I've had no tests. Ive had this pain in my lower back/ right hip for about 6 years and was told it was sciatica ( without any tests) earlier this year I was given an epidural which helped for about a couple of weeks and then a steriod jab which didn't help at all. I went back and saw a physio who actually checked me over and asked me to show him where it hurts and he said 'Oh thats the sacrolliac joint'
I didn't ask him what he meant by this, is it arthritis or FMS ? I was in so much pain and just wanted to get home. I've not been offered any more treatment for it although I recently started to take a low dose of Lyrica which isn't doing a thing yet, Im waiting for the dose to be put up.
The pain is really getting me down now as nothing seems to help,I feel like Ive tried eveything, heat pads/ tens/ hot baths /resting etc. Has anyone got any other ideas ?
sue x
suep
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