Fibro on 'This Morning'

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Fibro on 'This Morning'

Postby Min » Tue Apr 08, 2008 12:30 pm

Glamour model Jo Guest discusses her diagnosis of fibromyalgia and how it has affected her life on April 10th 10:30-12:30 on the 'This Morning show'
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Postby suep » Tue Apr 08, 2008 8:03 pm

Thanks for this Min. :D
sue
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Postby Angel31 » Wed Apr 09, 2008 12:21 pm

hopefully with someone famous highlighting this illness, we might actually get the recognision we deserve.

and people will take us a little more seiously.
I know some of my personal experiences people tend to think i'm making a fuss over nothing !!!

Thanks
Chloe xxx
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Postby LADYB » Thu Apr 10, 2008 10:51 am

fantastic awareness interview.......hopefully people after seeing this will undersatnd a bit more about how we feel......
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Postby Min » Thu Apr 10, 2008 10:58 am

I've just watched it, it was a very good description of our illness.The doctor rightly said that our quality of life was horrendous. I was interested that her fibro was viral onset, as mine was too.

I've been taking d-ribose for 3 months now but have not seen any difference in my energy level.

Tramadol does nothing for my pain.
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Postby LADYB » Thu Apr 10, 2008 11:08 am

itrs funny you say that about tramadol as it has no effect on me at all....been taking amitriptyline for a week now def getting better sleep, but the pain is just as bad during the day am on taking 10mg very low dose and the specialist said I could take 20mg does anyone think by uping my dose it will help me during the day, also started physio yesterday, but was told there wasnt alot she could do right now as I have a biomechanical problem, hypermobility problem too and needs me to see a podiatrist who I am seeing on Sat....the story goes just goes on and on......I just want to be normal!
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This Morning ITV

Postby janham » Thu Apr 10, 2008 11:58 am

For those of you who sat like a lemon this morning hoping to see something about fibromyalgia wiith Fern Britton - we missed it. Apparently it was yesterday. But do not despair. Some kind person - thanks Hana - sent me the link - not that it says a lot but presumably the word was mentioned a few times.

Hope this helps

Janham aka Jeanne

http://www.itv.com/Lifestyle/ThisMornin ... fault.html
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Postby velvet » Thu Apr 10, 2008 1:27 pm

LADYB wrote:itrs funny you say that about tramadol as it has no effect on me at all....been taking amitriptyline for a week now def getting better sleep, but the pain is just as bad during the day am on taking 10mg very low dose and the specialist said I could take 20mg does anyone think by uping my dose it will help me during the day, also started physio yesterday, but was told there wasnt alot she could do right now as I have a biomechanical problem, hypermobility problem too and needs me to see a podiatrist who I am seeing on Sat....the story goes just goes on and on......I just want to be normal!


i have just upped my dose to 20 mg after about 18 months on 10. i am sleeping better but wake up more confused than ever and pain has not been affected this time. going to discuss pain meds with doc next appointment.
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Postby jess » Thu Apr 10, 2008 5:47 pm

Jeanne it was on this morning
but at least them saying fibromyaglia afew time is better than never at all
talking of meds lol

i m on tramadol 100mg 4 times aday with 2 paracetamol but doesnt stop
all the pain but makes it a little more bearable
and now i also take 35mg of amitriptyline every night so i sleep and now managing 4to 5 hours
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Postby Min » Thu Apr 10, 2008 7:17 pm

I wondered how much the d-ribose manufacturers were paying the doctor to promote their brand? I buy mine very cheaply on ebay.
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Postby claire edwards » Thu Apr 10, 2008 8:53 pm

Hi all
managed to miss "this morning" this morning, and i usually wake up to it as well, needed me sleep i guess.
hope all is well
take care
claire
Diagnosed with fibromyalgia, it would be good to hear from people as a form of support and to support.
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this morning

Postby Brens » Thu Apr 10, 2008 9:15 pm

OK I missed it too, thats the problem with fms we need 'this morning' to be on at 3pm , we should all be up by then !
I did though watch the interview with Jo Guest go on line to itv catch up .
I will tell Dr Chris that tramadol doesn't always work (far from it).
There is also a forum page , lots of comments on Fibromyalgia day,
If any one is interested . brens.
Ever hopeful !
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Postby claire edwards » Fri Apr 11, 2008 8:07 pm

Hi Brens
I know tramadol doesnt work on its own, but i have it with lyrica on top and its made a difference with me, maybe worth a try?? just a thought.
take care
claire
xx
Diagnosed with fibromyalgia, it would be good to hear from people as a form of support and to support.
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Postby Brens » Fri Apr 11, 2008 8:30 pm

thanks clair for reply I'm a sad allergic case on lyrica, maybe there will be something else to try one day brens
Ever hopeful !
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Postby claire edwards » Fri Apr 11, 2008 9:16 pm

Hi Brens
sorry, i didnt know...good luck on finding something else then.
take care
claire
Diagnosed with fibromyalgia, it would be good to hear from people as a form of support and to support.
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