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Postby jeannie45 » Wed May 13, 2009 1:42 pm

anyone on here on facebook :wave:

jeanx
just because i have fms ,its still me inside
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Re: facebook

Postby unigirl1981 » Wed May 13, 2009 2:38 pm

i am, my real name is melanie birks (sheffield network) and my picture is a pot of pills tee hee!! add me if you like!!!!

can always do with more friends who understand!!! that goes for everyone here.

i have a private profile and you cannot see my details until i add you as a friend tho for privacy and safety so please ask my via facebook to be accepted!!
Just because you have to park in a blue bay doesn't make you any less of a person!

I am the Chair of Doncaster and District Fibromyalgia Support Group; working with FMAUK and loving it.
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Re: facebook

Postby shazq » Wed May 13, 2009 4:34 pm

i have closed mine down now, i did have a crohns group on there it done well, i had 140 members in it.
I had have my profile set to private, but was not sure if peeps in the group could still see my pics, and was getting fed up with it.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
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Re: facebook

Postby princess » Wed May 13, 2009 9:25 pm

i was but when my computer crashed i lost my password etc., so i just left it.
There was a lot of bad publicity about it a while ago
princess
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Re: facebook

Postby emilia13 » Thu May 14, 2009 6:42 pm

i m on facebook u can add me if u want my name is emilia greenfield :hugs: :grouphug: :grouphug: :hugs: :D
emilia xxx
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Re: facebook

Postby jeannie45 » Thu May 14, 2009 7:02 pm

hi emilia just added you onto facebook,my name is jean riley :wave:

jeanx
just because i have fms ,its still me inside
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Re: facebook

Postby Elsbeth » Sun May 17, 2009 8:56 am

I'm on there.

Erica Whitcher
it has me in a Bristol network een though I am in Swindon.

Feel free to add me.
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Re: facebook

Postby gillshutt » Sun May 17, 2009 9:47 am

Please remember this board can be seen by anyone not just members so be careful what info you give out please.
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Re: facebook

Postby jeannie45 » Sun May 17, 2009 12:45 pm

hi erica just sent you a mes on facebook hope i sent it to the right one there is 3 on face b with the same name :wave:

jeanx
just because i have fms ,its still me inside
jeannie45
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Re: facebook

Postby jeannie45 » Sun May 17, 2009 12:50 pm

thanks gill never thought of that .i t would be better if you pm me then it more private :wave:

jeanx
just because i have fms ,its still me inside
jeannie45
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Re: facebook

Postby sharon g » Sun May 24, 2009 11:24 pm

HI JEANNIE45. I,VE JUST JOINED THE UKFIBROMYALGIA WEBSITE LAST NIGHT(SAT 23RD MAY). I HAVE HAD FIBROMYALGIA FOR 3 YEARS AND I FIND IT VERY DRAINING, PAINFUL, SORE AND DEPRESSING. I AM ON FACEBOOK. I JOINED THE OTHER NIGHT, BY MY DAUGHTER HELPING ME. JUST TAP IN sharon gibson AND MY PICTURE SHOULD COME UP IN A PINK TOP, SHORT BROWN HAIR AND GLASSES. CLICK ADD A FRIEND IF YOU WANNA BE FRIENDS AND CHAT ON THERE AS WELL. LOOK FORWARD TO HEARING FROM YOU.
KIND REGARDS. SHARON. X. :)
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Re: facebook

Postby jeannie45 » Mon May 25, 2009 1:35 am

hi sharon iv aded you as my friend on facebook,my name is jean riley im on the right of the picture ,

jeanx
just because i have fms ,its still me inside
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Re: facebook

Postby gillshutt » Mon May 25, 2009 8:23 am

Sorry to keep butting in but could we please remember that captals is considered shouting in forum etiquette. It's too much for me to go in and change so I'm posting this instead.
Gill x
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Re: facebook

Postby Deegill » Mon Jun 01, 2009 7:45 pm

Hi, im on facebook.

Denise Browne. in red t-shirt with daughter in front of me to hide my fatness!

anyone feel free to add me, i am on there daily on and off thorugh the day, so am always happy to talk about anything, even if you want to use me as a sounding board go ahead!!!

Denise x
A smile a day keeps the doctor away!

Denise xx
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Re: facebook

Postby shazq » Mon Jun 01, 2009 8:15 pm

for your own safety, i would suggest you all pm your names to each other rather then post them on the forum.
This is a public site that anyone has access to, you don't have to register to be able to read the forum.
just be careful guys, we have had deceitful people which we have had to ban in the past. :nono:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
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