Another Newbie

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Another Newbie

Postby TraceyG » Tue Jan 09, 2007 1:59 pm

Hi all

Just wanted to come on here to introduce myself. I am 36 (37 in March) and was diagnosed with fibromyalgia in November 2006.

I basically went off work at the beginning of October 2006 with severe headaches initially. There had been other things going on but I thought they were independent of each other but it turns out they were most likely the FM.

I'd suffered from back problems since I was 16; had loads of tests and x-rays etc and muscular spondilytis and muscular spondilosis were both mentioned (can't remember what the 'final' diagnosis was) and I was told basically just deal with it and get on with my life, which I did and had some bad and not so bad times.

More recently (started 3 years ago) after having problems with my ear (ringing which sounded like a generator amongst other symptoms) they ruled out a brain tumour and I had a diagnosis of tinnitus, which again I was left to just get on with. Seems worse when I get stressed out.

Then about a year and a half ago my right knee started locking and giving way then I noticed my left hip was painful like a big bruise when I got into bed. I had bad headaches most of 2006 and thought it was down to my hayfever and sinus or something. After having tests done on knee, guess what, they found nothing, same with hip. But the specialist said that all my other symptoms sounded 'systemic' and referred me to rheumatology, esp when I mentioned that they found the rheumatoid factor in my blood in 2000 when I thought my crunching knees after having a baby was a deficiency of some sort.

Rheumatology specialist did tests inc FM and with all symptoms (I typed up a history in case I forgot everything, which I haven't listed on here) got FM diagnosis with 16 out of 18 tender points too. Still waiting for results of blood tests on x-rays though to totally rule out RA too though.

The thing for me though is the unpredictability of FM though, new pain catches you off guard, oh and the headaches too! Two weeks before I saw my own doctor I saw another and he said stress which really p'd me off... Because of existing back problems, my back is affected more which has a knock on affect with walking (can't walk at normal or quick pace as I get shooting pains down buttocks and back of thigh). Then there are my knees, shoulders, neck, elbows and so on. Stairs are a REAL BIG problem too and I have to heave myself up. I feel such a fraud when we're out when I'm getting the lift and hubby and daughter take the stairs.

I'm currently on Amitriptyline (started with 10mg, then 20mg, now on 25mg and to double it to 50mg in a few days as per Dr's instruction).

Anyway, enough said - I am so glad I found this forum.
Tracey x
UKFM Member
Posts: 49
Joined: Thu Dec 21, 2006 6:54 pm
Location: Northumberland

Postby Graham » Tue Jan 09, 2007 9:58 pm

Hi Tracey

Welcome to the forum.

Your story sounds a depressingly familiar one, you are right about it being unpredictable, I never know from one day to the next how I am going to feel, I have good days when I think I can do anything but then a bad day comes along and its a struggle to get out of bed let alone anything else.

I too am on Amitryptyline (40mg) and I am sure it helps me, the doctor wanted me to drop my dosage as he said it was a high dose, but when I tried knocking it down to 30mg after a couple of days I started to feel absolutely awful until I put the dosage up again. I have since found out that some people are on a lot more than 40mg, so it seems to depend on which doctor you see.

Hope the tablets work for you, above all keep smiling. :wink:

UKFM Member
Posts: 56
Joined: Thu Oct 19, 2006 5:09 pm
Location: Notts

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