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The UKFibromyalgia Forums • View topic - Whittmore Peterson Institute



Whittmore Peterson Institute

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Whittmore Peterson Institute

Postby Min » Fri Sep 21, 2007 8:41 pm

This is the fabulous new centre being built i America for people with fibromyalgia, M.E./ CFS & related disorders:

http://www.wpinstitute.org/
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Postby suep » Sat Sep 22, 2007 2:58 pm

It looks amazing Min, I just wish this country would catch up and do more for us.
sue x
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Postby pauline » Sat Sep 22, 2007 3:50 pm

Just took a look at the website. Wow such recognition. Will keep my eye on the site for more info..............pauline
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Re: Whittmore Peterson Institute

Postby Min » Wed Oct 21, 2009 3:26 pm

The Whittmore Peterson Instiute announced their exciting findings of the xmrv retrovirus that may be implicated in fibromyalgia:

Overview

"The spectrum of neuro-immune diseases including: Myalgic Encephalomyelitis (ME/CFS), Atypical MS, Fibromyalgia and Gulf War Syndrome, share common abnormalities in the innate immune response inc, which result in chronic immune activation and immune deficiency.

We have detected the retroviral infection XMRV is greater than 95% of the more than 200 ME/CFS, Fibromylagia, Atypical MS patients tested. The current working hypothesis is that XMRV infection of B, T, NK and other cells of the innate immune response causes the chronic inflammation and immune deficiency resulting in an inability to mount an effective immune response to opportunistic infections.
This discovery opens an entire new avenue of Neuro-Immune Disease related research and our discovery has brought to this field world-renown immunologists and retrovirologists building our team of collaborators to translate our discoveries into new treatments as soon as possible.

Because retroviruses are known to cause inflammatory diseases, neurological disease immune deficiency and cancer the discovery of XMRV has far reaching implications for the prevention and treatment of not only lymphoma, one of the potentially devastating complications of ME/CFS but prostate cancer and perhaps many others.

As National Academy of Sciences member and expert retrovirologist, John Coffin wrote in the commentary accompanying our landmark publication in Science "One New Virus-How many Old Diseases". We look forward to translating this discovery into treatment options!" "

_____________________________________________________________________________



"The XMRV Retrovirus & the Fibromyalgia Connection
Sunday October 18, 2009

The XMRV Discovery Series

Since news broke of the XMRV connection to chronic fatigue syndrome and possibly fibromyalgia, there's been a lot of confusion about just how strong the fibromyalgia connection really is.

According to the Whittemore Peterson Institute, one of the partners in this research, scientists tested some blood samples from people diagnosed with fibromyalgia and found a high prevalence of XMRV in those samples. However, they point out 2 major short comings of this research:

1. The small number of blood samples tested
2. The possibility that some of those samples came from people who were misdiagnosed or had undiagnosed comorbid chronic fatigue syndrome

The misdiagnosed/undiagnosed issue is a big one. Right now, both of these conditions are diagnosed based on symptoms, and their symptoms lists are very similar. Most doctors don't understand either condition well and may be unable to distinguish between them. Some doctors also believe fibromyalgia and chronic fatigue syndrome are really the same condition. Until we have a universal diagnostic test for at least one of these illnesses, we won't have a reliable way to separate test subjects. Once we do have diagnostic tests, it's likely that a lot of us will end up with different diagnoses than we have now.

The researchers behind the XMRV discovery are already moving forward with more research. Until they examine a larger number of people with fibromyalgia, we won't know for sure what this discovery means to fibromites."

http://chronicfatigue.about.com/b/2009/ ... ection.htm
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