Newbe - Trying to do voluntry work

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Newbe - Trying to do voluntry work

Postby woodbon » Mon Oct 08, 2012 11:10 am

Hi, I'm new to this site but I've had a lot of the symptoms for several years, in fact looking back it must be quite a few years since things started to slow me down and I found odd pains ect.
I've had to give up paid work as it was too much for me, that was a couple of years ago. I've been feeling low and depressed and useless so I decided to try and give myself a new thing to do. I am training as a CAB advisor, which is very interesting I've only been once! I was there for about 4 hours, just sitting in on interviews, but when I got home I was so tired, I slept for the rest of the day! The next couple of days and I was so tired, 'brain dead' and in a lot of pain. When I got up in my dressing gown, even that hurt my skin.

Dispite all this I am not going to stop, as I think the strain of being in a new environment gave me a bit of a flair up, but if I give myself more rest the day before I go, I may cope better. I didn't this week, I did lots of housework, which was stupid. I am seeing my GP next week to see if he can suggest the best way to get my body back into better condition, if thats possible! I am worrying that I'm doing the right thing, but I don't want to give in and I feel mentely I need to get out. I hope as I get fitter, I'll be better able to cope, or am I being silly? Has anyone got any tips about coping? I need to do something, its so lonely at home.
Thanks for reading this. Love Suexxx
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Re: Newbe - Trying to do voluntry work

Postby Katehalfpenny » Mon Oct 08, 2012 11:31 am

Hey Sue - I'm in the same boat! Been feeling totally useless since having to leave paid employment. I took up voluntary work in a Cat shelter, 1 day a week for approximately 4 hours and I find I'm wiped for the next few days. My doc advised me to not push too hard and just keep going at that one day a week for. It may be that over time you'll notice you're not as wiped out for as long after volunteering and could move it to two days but well spaced apart? =] Kate xxxx
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Re: Newbe - Trying to do voluntry work

Postby TeeferTiger » Mon Oct 08, 2012 11:53 am

I do admin work for Cats Protection and a few other charities on an as and when basis. I find it's better for me as I can do it when I feel well enough-be that 1am when I can't sleep!

I don't have to commit to doing certain days or certain hours which is why I would struggle with paid work now.
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Re: Newbe - Trying to do voluntry work

Postby woodbon » Mon Oct 08, 2012 11:05 pm

Thank you for your replys and I think you'r right, their's a lot to get used to. I never realized that working for 1 day a week would be so tiring, but I will keep it at that level for now. I suppose, even when I was well starting a new job would be more tiring for the first weeks, so I shouldn't be surprised. Also this time of year isn't the best, we've had very damp, cold mornings and its started to make my aches and pains a bit worse, but in some ways the sheer tiredness is harder to cope with. Sorry, don't mean to moan! Suexxx
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Re: Newbe - Trying to do voluntry work

Postby woodbon » Fri Aug 02, 2013 3:10 pm

Hello,
Sorry not to have come back to you and telling you the outcome of my voluntry work. Firstly, I have been given Power of Atturny over a relatives affairs, which are quite complex and involve a lot of paper-work and telephone calls. At the beginning I didn't know the full extent of the proplems I have to sort out, which is made difficult by living about 150 miles away! She's a young person and has gone into a residential care home, where thank goodness, she is quite happy and now has a busy social life, but I've given up my Citizens Advice training, since May, as it was too much to cope with. I'm deciding now whether to go back or not. I loved it but if I do too much it brings on the FM flares, so I have to decide.

I've seen the Rheumy at the hospital. She specialises in fm and after an MRI on my spine, which shows some damage from inflammatory Arthritis, which is not active any more, I have an official diagnosis of FM which is causing all the symptoms. So now I really do know the problem. For me its facing the fact that I have to learn to live with this, not just hope its going to be a tempory thing, but I knew that, really and my GP was sure I had FM so really it should be no suprise, but seeing the letter from the hospital saying in the last line 'So the diagnosis is that the symptom and pain are caused by Fibromyalgia,' looked a bit bleak.

On the other hand, now I feel I can start to really try and learn to live with it, pace myself, let some things go and live my life! I am going to do something voluntry, talk to my trainer and see what they can offer. Well thats enough of me going on! Thank you for lisening, Love Sue xx
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Postby HazelB » Fri Aug 02, 2013 6:08 pm

I do voluntary work, and I find it really helps me keep positive about my FM. I started off doing an hour or two a week, and gradually worked up my hours and now manage 16 hours. I work Mon, Wed and Fri so that I have the day off inbetween work days. It's a very fine balance being able to work without bringing on a flare xxx
(soft hugs)
Hazel xxx
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Re: Newbe - Trying to do voluntry work

Postby woodbon » Fri Aug 02, 2013 10:38 pm

Finding a way of coping must be hard and its good to know that things are working for you. II think that you did things the sensible way, taking on a more when you felt able rather than me jumping in at the start! II took on too much too quickly when I first started. I did 3 days, Monday Wednesday, Thursday as well as staff meetings and training sessions. I think that I just felt I had to prove something and agreed to what was suggested, even though I could have done less. I think I wanted to prove something to myself. I also had homework to do! :-? Still, I hope I've learnt! xxx
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