Hiya! Im Lucy. I have a blog on living with fibro

All your fibromyalgia experiences, questions and answers.

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Hiya! Im Lucy. I have a blog on living with fibro

Postby lucybythsea » Fri Nov 09, 2012 10:03 pm

Hello
Im glad I found this site as i would like to connect with others suffering this horrible illness. I am 29, and I have severe fibro -I am unable to work or study. I have recently found blogging about my experiences very therapeutic. Here is my blog:
http://lucybythesea.wordpress.com/

I hope to meet others my age on this site, and looking forward to finding out about how others cope with such a restricted life.
:-)
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby lucybythsea » Sat Nov 10, 2012 12:14 pm

Hiya. thanks everyone for taking the time to come and check out my blog! Youve made my day. :o)
Hope you're as well as possible today, and are perhaps able to enjoy it.
Love Lucy x
Hello, Im 30 and have severe fibro. Come check out my blog: http://www.fibrofandango.wordpress.com
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby vampireangela » Sat Nov 10, 2012 8:35 pm

Hi lucy after this i am going to look at ur blog. Im 30 and have had fibro for 7 years diagnosed 4 years ago im on a shed load of tabs which does my head in as b4 this i wudnt even take headache tabs. I hate havin fibro because at my age people expect me to be fit and healthy n on the outside i look it, its a horrible illness. Ok im off to read ur blog now :-D
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby lucybythsea » Sat Nov 10, 2012 9:08 pm

I am also on a LOAD of meds - its horrible!
Yep - the pressure to be fit and healthy at our age is huge. people tell me -''youre still young!'' - grrrr!
x
Hello, Im 30 and have severe fibro. Come check out my blog: http://www.fibrofandango.wordpress.com
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby Puddycat » Sat Nov 10, 2012 9:54 pm

Hi Lucy after posting this I will read your blog we are of similar age :), I might pick up some tip.
My name is lisa and I'm 30 years old engaged with a little girl who is 5 in a few weeks. I work part time from home as an account manager for a veterinary pharmaceutical company. Richard (moh) works away in Kent during the week as he is currently on secondment until Feb when hopefully it will become permanent and then we will move down there. We currently live in Runcorn.

I was diagnosed in june after having symptoms since November I was luck really because I had a good gp who managed to get me diagnosed within 6 week of me going to her because I was fed up of feeling like I had flu all of the time.

It is taking along time to sink in and accept the conditions and to train my brain to listen to my body 
I was put on amis but the did do anything for me even a 100mg I felt no different at all.
I'm currently on pregabalin and tramadol when needed.

I started a course/fibromyalgia group yesterday which is run by the hospital by a physio eho has a lot of experience with fibromyalgia, this will run for and hour and a half for 6 weeks, the first on was great and I did learn a lot of new thing.
I look forward to being a part of this fibro family and meeting new friends as I think support is a good thing to have even though it is only virtual. Soft hugs xx 


Sent from my GT-I9300


Sent from my GT-I9300
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby PolkaBunny » Sun Nov 11, 2012 2:39 am

Hi Lucy! I will have a read of your blog now, I like reading fibro blogs, makes you feel less alone. and it very very therapeutic, I have been doing it too! http://thefibroeffect.blogspot.co.uk/ x
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby lucybythsea » Mon Nov 12, 2012 12:26 pm

PolkaBunny wrote:Hi Lucy! I will have a read of your blog now, I like reading fibro blogs, makes you feel less alone. and it very very therapeutic, I have been doing it too! http://thefibroeffect.blogspot.co.uk/ x


Hiya - checked out your new blog - its ace! Very professional looking. I would like to email subscribe but couldnt find that widget. have you added it yet? x
Hello, Im 30 and have severe fibro. Come check out my blog: http://www.fibrofandango.wordpress.com
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby lucybythsea » Mon Nov 12, 2012 12:31 pm

Puddycat wrote:Hi Lucy after posting this I will read your blog we are of similar age :), I might pick up some tip.
My name is lisa and I'm 30 years old engaged with a little girl who is 5 in a few weeks. I work part time from home as an account manager for a veterinary pharmaceutical company. Richard (moh) works away in Kent during the week as he is currently on secondment until Feb when hopefully it will become permanent and then we will move down there. We currently live in Runcorn.

I was diagnosed in june after having symptoms since November I was luck really because I had a good gp who managed to get me diagnosed within 6 week of me going to her because I was fed up of feeling like I had flu all of the time.

It is taking along time to sink in and accept the conditions and to train my brain to listen to my body 
I was put on amis but the did do anything for me even a 100mg I felt no different at all.
I'm currently on pregabalin and tramadol when needed.

I started a course/fibromyalgia group yesterday which is run by the hospital by a physio eho has a lot of experience with fibromyalgia, this will run for and hour and a half for 6 weeks, the first on was great and I did learn a lot of new thing.
I look forward to being a part of this fibro family and meeting new friends as I think support is a good thing to have even though it is only virtual. Soft hugs xx 


HIya Puddycat!
I am also on Pregab and tramadol as needed (which is basically everyday)
Im so glad you got diagnosed quickly - it makes such a huge difference to your health.
I am also doing a Pain Management programme run by a physio! he is the first health professional ive met who really KNOWS fibro. I have the second class in a few days. the first class we learnt about how the pain centre in the brain does not switch off with fibro -make sense!
Hope to see you around the forum.
love Lucy x :-)
Hello, Im 30 and have severe fibro. Come check out my blog: http://www.fibrofandango.wordpress.com
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby PolkaBunny » Tue Nov 13, 2012 1:16 am

An example of fibro fog! I forgot to add something like that, I have done now, thank you for reminding me!
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby LouLou » Fri Nov 16, 2012 1:45 pm

Hi Lucy

I'm going to check your blog out after posting this. I'm also 29 (30 nest year) but I feel like I'm about 100 most days lol. I hobble round like a lil old lady alot which makes my other half laugh which then makes me laugh - well I have to laugh or I'd just cry and not stop lol.

I've had fibro for about 2 years now, diagnosed a few months ago officially. I still work full time ish - had my hours cut from 45 a week to 30. I own my house with my other half so the pressure ir really on for me to still work for now.

I know what you and the other guys who posted on here mean by people thinking that we are still young and should be fit and healthy. I used to go the gym 4 times a week but now can only manage really light exercise every now and again. I try to get into a routine with exercise and some people have said it helps but I find it makes me worse. I've been told that as I'm young I have to do exercise to stay mobile and fit and I have to fight through the pain to do exercise. Well that's easier said than done lol.

Off to read your blog now but it's lovely to meet someone on here who is the same age as me.

Happy Friday!

x
What doesn't kill you will only make you stronger ;-)
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby lucybythsea » Fri Nov 16, 2012 9:37 pm

Hiya Lou lou! I also feel really old sometimes! My lifestyle is kind of like an old lady. And I know what you mean about laughing instead of crying too. You almost have to pretend to yourself everythings ok, just to cope.
Exercise is a tough one. I was told in pain management to do only a very small amount - like literally a few minutes of gentle exercise, and do that every day, and then v gradually increase it. Im trying to do that but its v frustrating - i want to do more!
x
Hello, Im 30 and have severe fibro. Come check out my blog: http://www.fibrofandango.wordpress.com
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby lotts » Sun Dec 09, 2012 8:01 pm

Hiya,
I know exactly what you mean about the age thing. I'm 24(was diagnosed when i was 22), i have to wear wrists supports a lot and people are always asking me what happened to me. i normally just let them believe whatever they want - fell over drunk is the most commonly assumed one - i wish! lol. i work in a restaurant so explaining to a customer who is out celebrating their birthday what is actually wrong with me is kinda out of the question..
FM does make you feel like an old person. it's just a horrible horrible s******* condition.
I look forward to reading your blog.
:)
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby Aliscat64 » Sun Dec 09, 2012 10:29 pm

Hello

I just wanted to say how stunning your photography is :-D

I could be your mum at the grand old age of 48 so not totally sure i fit in the new friend bracket...........lol

But I do have FM diagnosed in may and thought your blog very interesting/emotive..........keep it up I will carry on reading :-D
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby jennthefunkyranger » Sun Dec 09, 2012 10:41 pm

lotts wrote:Hiya,
I know exactly what you mean about the age thing. I'm 24(was diagnosed when i was 22), i have to wear wrists supports a lot and people are always asking me what happened to me. i normally just let them believe whatever they want - fell over drunk is the most commonly assumed one


Someone I work with kept pestering me one day wanting to know what I did to my wrist (I normally just have a support on one wrist), and his 'suggestion' is only suitable for an 18 plus forum... (I'll leave it to your imagination). I'm not much older than you, I'm 27 (though the other night couldn't for the life of me remember if I was 27 or 28)
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Re: Hiya! Im Lucy. I have a blog on living with fibro

Postby Pepperty » Thu Jan 31, 2013 8:14 pm

ohhh thanks for your blog link Lucy. Have added link and look forward to reading through :-D

I've set one up myself, I like to use wordpress for blogging, but then I've got some server space so I've added myself a diary online. I'm not brave enough to share my link though :oops: Maybe when I've kept it up longer I might? From 1st glance we do appear to write in a similar vein :-)

Its more a facility for me to offload at the moment. I find it difficult to be so honest (with the public) let alone myself :( I've lots of online pals, and many know I've got some health issues but I don't dwell or explain much as its hard to, with people who dont have fibro?.... Its mostly why I looked up forums and am making efforts to socialise with other ppl who may well understand and know what I'm feeling/meaning (or at the least, not laugh at my dreadful typos! lol)

Look forward to reading and getting to know you better ((hugs))
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