Pain fre days??

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Pain fre days??

Postby dotty lotty » Sun Jan 13, 2013 9:01 am

So far I have found the forum very helpful. What I am wondering is after 14 months of varying pain/stifness can I look forward to any pain free days? I have posted this on private messages as it took me ages to work out how to post a message :facepalm: One other question do the symptoms worsen over the years.
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Re: Pain fre days??

Postby jamieww » Sun Jan 13, 2013 10:15 am

Pain free days.... well thats a new concept for me... I've not had a pain free day in 22years...BUT... we are ALL different... I have a few fibro friends that after a major flare they say that they have, ranging from, one or two, to even a whole week followed by low level pain until the start of their next flare and then back into a viscous circle.
Hopefully you will have a long period of pain free or virtually pain free days!!
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Re: Pain fre days??

Postby AJay71 » Sun Jan 13, 2013 1:59 pm

Hi Dotty Lotty,
My pains started almost 20 years ago. Mild at first and I was able to continue at work. A few years later more pain and more tests and more specialists. But still no proper diagnosis.

To cut a long story short, I've had long periods of unemployment due to the pain, interspersed with trying different jobs until I was virtually unable to walk!

I have a worn down left hip and a broken bone at L5 but my Fibromyalgia was only diagnosed a few days before Xmas 2012.

I would most definitely say this syndrome IS progressive, although everything I read disputes that.

I'm sorry to hear you are in so much pain, of course we are all different in our severity.... but I cannot remember a pain free day for at least the last 10 + years.

Now that I've been diagnosed, I am. Hoping that my GP will get my medication right. I live in hope!
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Re: Pain fre days??

Postby Poseypig » Sun Jan 13, 2013 4:30 pm

Pain free? Nope, don't remember what that is. Sorry to tell you but for some of us the fibro doesn't have those periods when the pain disappears. My experience over the last 14 years has been a constant level of pain. A flare means an increase in the pain to a point where I can't function. It takes a lot of trial and error to find the things that help with the pain when it gets to that point. For me cold helps, if its bad enough I have been known to have an ice bath! Massage is useful if I am in a place to stand the pressure on my skin:/ good luck x
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Re: Pain fre days??

Postby dotty lotty » Sun Jan 13, 2013 4:47 pm

Thanks for the replies and although not to hopeful at least knowing what to expect is helpful. I need to learn to pace myself but that is not easy :crazy: and I get so frustrated I have to have a :scream-1: . This forum offers a lot of support and many members are so much worse of than me . I am going to try and stay positive
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Re: Pain fre days??

Postby shazq » Sun Jan 13, 2013 5:01 pm

Hi Dotty

I dont get pain free days :( my pain is with me 24/7 I do get flares where my pain will increase then this will become my new level of pain until the next flare comes along. :(

I know we are all different and we do hear of some people who do get a good few days in between there flares so you never know. :dunno:

Its best to just take it day by day and learn to listen to your body, if it needs a rest then rest. Learn to pace to recharge your batteries. :goodluck1:
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Re: Pain fre days??

Postby Soapbubbles » Sun Jan 13, 2013 7:08 pm

Dear Dotty Lotty,

Everyone's experience is so different and its not necessarily all doom and gloom.

Both my sister and I have FM and she is having a period of respite at the minute and seems much better than she was a few months ago. She had to give up work as she was so bad.

However I've recently had a flare up, but it is improving after rest and medication (10mg amitriptyline - think i spelt it right this time). Although there is often what I call background aches there I am lucky that I can ignore them although there is usually some other FM related symptom going on most days, eg. restless legs, arthritic pain, irritable bowel problems, insomnia, anxiety etc. These in fact are often more of an issue for me than the pain.

Perhaps I am just one of the lucky ones. I do exercise gently and follow a careful diet too which have helped enormously.

Best of luck.
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