Do GPs *really* know what they are doing?

All your fibromyalgia experiences, questions and answers.

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Do GPs *really* know what they are doing?

Postby Tel1 » Thu Feb 21, 2013 7:44 pm

Hi all.

HUGE long story short.... I have experienced, numb hands, tingling in the fingers and feet, pains with a burning sensation in my
arms legs, with a weird off balance feeling, IBS, fuffy fingers, dizzy spells but to name a few which I have had for years.
After ending up in A&E several times with terrible back pain going through to my chest and after years!! and blood tests for
nearly everything they can think of, plus 5 chest Xrays, ultra scans, CT Scans, MRI scans, my GP and his partner finally decided
that I have Fibromyalgia... I asked them twice if this is what I *actually* have and they said without a doubt Yes:)) I said could
you put this wirting for me .. but they wouldn't.!!
I am currently waiting to see a Rheumatologist and now during my wait to see this specialist, I have seen my GP a couple of
times and still asked him if what I am experiencing IS Fibro... and now they are saying well it probably is, but we will let the
specialist cross the Ts and dot the eyes so we know 100%... but I went on to say, but you have told me twice already that this is what I have?? I just wanted to see a Rheumatologist just to see what they could do for me on top of what the GP has suggested..
I will be interested to know if anyone else has had this happen to them....
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Re: Do GPs *really* know what they are doing?

Postby marianne » Thu Feb 21, 2013 8:07 pm

I had just the same thing doc said I had fibro more than once but when I asked for a leter to suport my E S P clam he said that he could put that I did he could only wright that I had the symptoms of fibro gggrrrr
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Re: Do GPs *really* know what they are doing?

Postby tonydin » Thu Feb 21, 2013 8:40 pm

hellow tel1 i have a carbon copy of your history , but my gp suspected fibro and the rumy confiemed it 90% in his letter no one can be 100% certian of fibro they just cant anything that showes positive fot owt else
chest pain through back and rushing to a and e oh yes i remember it well . now i check my lips arnt blue and do some exersise untill it goes away :roll: :roll: :lol:
tony
s
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Re: Do GPs *really* know what they are doing?

Postby Tel1 » Thu Feb 21, 2013 8:48 pm

Hi TonyDin

Thanks mate:)) I too have had that horrendous dreadful pains going from my back to my chest as well.....It IS a nightmare!!!
If you look at my other post you will see what happened to me:)) Do you get this often, or was it the once?
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Re: Do GPs *really* know what they are doing?

Postby anita-jayne » Thu Feb 21, 2013 9:39 pm

Hi
I really hope they do after too ing and froing from the drs for nearly a year , numerous bloods taken ( as I have an under active thyroid and kidney problem already) it was discussed last Wednesday that I have possibly got FM , however my Dr said he would hold up treating it until I had seen my kidney specialist tomorrow , I am already feeling they want to palm off or treat my individual symptons as different illnesses and not just the one. My Dr has asked for a follow up appointment which I have next week , I think I will push for an MRI and to see a rheumatologist or neurologist.
We know our bodies and we feel real pain and fatigue sometimes it is difficult to tell from our exterior when we put on a brave smile to the world, but it is very real. I would push for your diagnosis sometimes we may feel too tired to fight but it seems its the only way.
Thoughts with all that suffer
Xx
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Re: Do GPs *really* know what they are doing?

Postby LouLou » Fri Feb 22, 2013 11:05 am

Hi Tel

It's me again lol I've just replied to one ofyour other posts. It's like you are posting straight from my mind lol. It took about a year for my GP to actually diagnose FM, even though a specialist at A&E when I was rushed in in agony said I had FM. I still had to wait to see another Rheumatologist to get the diagnosis confirmed and I had to have so many tests.

The thing with FM is that it is so similar to so many other illnesses that GPs tend to try and rule out every other possibility before diagnosing FM. There isn't a specific test for FM either just a number of symptoms and factors to piece together.

I hope that helps
xx
What doesn't kill you will only make you stronger ;-)
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Re: Do GPs *really* know what they are doing?

Postby charley » Fri Feb 22, 2013 10:49 pm

From what I've experienced, and from what I've heard from other people, it seems to vary from Dr to Dr and practice to practice. The problem is that there is no way of making a firm diagnosis. When I was diagnosed it was after 4 years worth of blood tests, x-rays, ultrasounds and MRI's. One visit with a registrar on my consultant's team, a pressure point test (if that's what it's called) and I'm told I have fibro. It's one of those illusive conditions that people know about but don't understand :/
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Re: Do GPs *really* know what they are doing?

Postby *Lisa* » Sat Feb 23, 2013 1:00 pm

I think the way the GP's work is they eliminate all other conditions and then when they feel fibro is the diagnoses then off to the consultant you go for the confirmation.

At least then you will have a diagnoses letter for future needs.
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Do GPs *really* know what they are doing?

Postby Tel1 » Sun Feb 24, 2013 6:07 pm

Hi Lisa

Yes that is what it now seems is the *done thing* by sending someone to the Rheumatologist for 100% comfirmation... but
then my two GPS at the same practice said that I had Fibro, I asked that twice, have I got Fibromyalgia 100%? and they said, yes you do:) but now that I am going to see the Rheumatologist they are
now saying, well you probably have it...Obviously I don't want *any* of it:)) but I just wanted to know one way or the other.
I will post on here what the Rheumatology dept says to me... I shall scream soon:)) :yikes:
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Re: Do GPs *really* know what they are doing?

Postby fatanne1 » Sun Feb 24, 2013 6:58 pm

a big fat no,,,,, is my answer to this question especialy older gps as if theres no scientifict proof it dosnt exsist,, I always come home in tears after visit to docs,, they make me feel fatn and lazy.... :( well that's wat me thinks.. lol gentle hugs to all. xx
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Re: Do GPs *really* know what they are doing?

Postby jennthefunkyranger » Sun Feb 24, 2013 7:51 pm

I was diagnosed by a GP. I've not been sent to a rheumy yet, though she's said that'll be the next course of action of I'm still suffering (though from what I've read on here, I presume I'll be sent back to the GP - I saw a rheumy in April who didn't diagnose me with anything, and only sent me for more bloods when I got upset as I knew something was wrong).

I've seen various GPs in the practice (it's a large practice). Some have been rubbish, and very dismissive and I refuse to see them, some have listened, and sent me for further tests, though have ignored me when I've pointed out I'd been tested for that not that long ago, and finally, I went in with a list of everything that was wrong, saw one really nice doctor, and she diagnosed me from that. I now will only see her as she actually listens, and is really nice and friendly.
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