Hell on Earth

All your fibromyalgia experiences, questions and answers.

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Hell on Earth

Postby Tel1 » Thu Feb 21, 2013 8:43 pm

Hi All

Has anyone experienced this.

I woke up at 4.45am a little while ago... and I thought my life had come to an end.
All I can say is, I was fast asleep and then all of a sudden I was woken suddenly by this dreadful horrific pain..
It was like as though I had been thrown off of the 5th floor of a building and the pain was like impact.. It was
just the most terrible thing tha I have *ever* gone through in my life.... my partner was on the phone to the
emergency services and when I was passed the phone over, I just could not speak, breath, move, I just cried out
get someone here please quick!! The pain was in a huge area.. it kind of went from the middle left side of my back up
my side across my shoulders to my chest.... I thought it was a heart attack, but I could breath ok, which was the most
strange thng about it... and yet I really really thought I was dying. I was taken to the hospital with flashing lights
and about 10 mins after I was in a waiting bay to be seen, the pain just went.... they put me on a drip, and made me
stay in all that day and let me go the day after.....one of the doctors who doing his rounds but wasn't dealing with me
as such said hello to me, and we were just talking in general about things, and in this conversation he asked me, did I
have Fibromyalgia? I didn't even know what it was then, so he just said to me, ok thats ok, I hope you feel better soon.
Naturally throughout the last 4 - 5 years I have experience long term, pains, pins and needles, numbness, IBS, aching
arms and puffy fingers....It wasn;t until December last year that my GP said to me that I have Fibromyalgia!! so I am just
wondering if anyone else has had that dreadful dreadful pain that I mentioned that woke me up.
Thanks ALL.
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Re: Hell on Earth

Postby shazq » Thu Feb 21, 2013 9:49 pm

Hello Tel1 :welcome: to the forum

I have never had the pain in my chest but have had the pain in my back & shoulders. Some days i dont know what to do with myself as the pain is so bad, its hard to get comfy, i try laying down, walking around. I take my strong pain meds which take the edge off the pain away but its never gone.

I find a Tens machine helps and hot water bottles.
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Re: Hell on Earth

Postby Tel1 » Thu Feb 21, 2013 10:55 pm

Hi Shazq

Yes I get that as well what you get.....I just stand still leaning forward when I get what you get and * eventually* it goes:)
But that morning I explained in the previous post, It will be interesting to see IF anyone has had exactly that:))
This whole Fibromyalgia thing is a nightmare..... I think it is our bodies being tricked by ourselves? it must be, as how can
people like us have ALL these symptoms all mixed in one so called condition?? crazy isn't it... I think there is more to this
Fibro than anone yet knows.... what do you think.
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Re: Hell on Earth

Postby mumstheword1954 » Fri Feb 22, 2013 12:07 am

Hello Tel1,
Welcome to the club Hun, Over time you will get used to the pain and to a degree you'll accept that this is how things are from now on. Medication helps, thats Amitryptaline, pain killers, Tens, Hot Water bottles, resting and pacing yourself in what you do and when you should do it. Thats the hardest part, trying to pace yourself through the day so you have some feeling of independance. But remember your not alone there are loads of us about, everyone of us has been right where you are now and will always be here for a moan, a chat whatever.
:-)

Chris x
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Re: Hell on Earth

Postby LouLou » Fri Feb 22, 2013 11:02 am

Hi Tel

I experienced something very similar which kind of paved the way for my road to a diagnosis of FM. A couple of years ago I started to feel the usual FM symptoms (though not realising at the time it was FM) and my GP was running tests and things to try and find out what was wrong with me. Anyway I got back from a weekend away with the other half - just a few days in Blackpool lots of chilled out walks and talks nothing too active. Well we got back on the Sunday morning and I started the feel the same kind of pain you described all over my body. I didn't get the chest pains you got but it was everywhere else. I spent the whole day sobbing non stop I was that bad to the point where my Other half picked me up and took me to A&E.

My other half explained all the stuff and sypmtoms I'd been going through the last few months and tests etc so they looked at my records and said I needed a specialist Rheumatologist to see me. They called one in and within 5 minutes he said I had FM. Like you I'd never heard of FM before that night. He did a great job of explaining it to us and told me I needed to see my GP in the morning and tell him I had FM and to get some painkillers started to help the pain.

I spent the whole journey home crying and telling my other half to leave me for someone who was better for him etc etc.

That night was the only time I have felt the pain that intensley and it really freaked me out, I too felt like I was going to die and this was it. I think a few times I even said that I just wanted to curl up and die. So I know what you mean about the intensity and thinking this is it. I have bad flare ups sometimes but nothing has come close to that night and I hope and pray it never does.

I hope things have settled down ok with you though.

Lou
xxx
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Re: Hell on Earth

Postby *Lisa* » Sat Feb 23, 2013 1:09 pm

I have experienced many horrific pains that were frightening along the years and this is were we need to be careful because im sure that one day im gonna double up in pain thinking its the fibro and it actualy being a heart attack or something else :yikes: its always better to be sure and i always point out to the doctors that i come in as on many occasions i have put symptoms down to fibro and it was actually some thing else. They then seem ok with this.

There is an associated condition that i have which is very comman in fibros called costochondritis this can cause alot of pain in the chest also.
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Re: Hell on Earth

Postby Jules Robin » Sat Feb 23, 2013 10:39 pm

Hi Tel1, Yes I have had exactly the same pain as you described. First happened on the first night of arrival on a trip to Greece. Was awoken in agony , like a bolt out of the blue. Was certain it was a heart attack and woke my partner crying out for help. Back, chest like I'd neve r had before. My partner immediately got me to take a strong pain killer and a diazepam. The pain persisted for almost half an hour at that extreme level and then began to subside. I was exhausted from the journey and my fibro was at its worse, so I can only assume it was the result of being exhausted and the stress of the journey. It happened again on our second night, a gain in the early hours of the night and I promptly took same med as before.
Since then I've had it several times, comes without warning and lasts for 10 -30 minutes, gradually subsiding as med takes effect and body begins to relax. Each time it comes ,I think I am going to die and panic sets in. It was in 2009 had 1st attack and have told doc about them. Had ECG and heart monitor and blood tests but nothing untoward showed up that would indicate a heart problem. Seems to me that the large muscles that come from the back round to the chest go into a massive spasm.
So, if you do have another, perhaps you might try a similar stragety and take something to counter the spasm and help the muscles and you relax. It's horrendous and frightening and I hope you remain free of them. Don't know your age, I'm 66, but fibro and its symptoms shows no mercy from what I've read on the forum so far! Take care Tel1, hang on in there. Love Jules (Robin)
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Re: Hell on Earth

Postby Tel1 » Sun Feb 24, 2013 6:01 pm

Hi Jules

My GOD:)) thanks for letting me know that I am not the only one who has this!!
Like you, I DREAD that I will get it again one day... what a way to live eh, in fear
that something is going to happene like that again especially when the hospital
didn't know what it was....They say those who are worried about Dying, can't live:))
The crazy thing that *seems* to be coming over from everyone who I have spoken
to in general and on hear as well...is that IS Fibromyalgia causing all this? or is it
that we are just the type of people who get everything like this? :yikes:
I have had twinges of it trying to start again, but thankfully I have never had it
like that again since....If I have it again, I will just sign myself into a mental unit :yikes:
The only way I can descibe it was, like waking up in a car crash with impact...so if
that was like you had, we seem to be the only two on here who have had it *exactly*
the same...I think all the people that have been in touch with me, and who I have
been in touch with, we all seem to have the same kind of symptoms..I often get the
feeling that I feel off balance, then I am ok, then I'm not, then I am, I also get a
sensation feeling going down one side from my head ot my foot on the left side,
I have often thought, oh no!! this is a stroke that wont go away...Anyway the more
people like us talk and communicate with each other, the more we will know about
this Fibromyalgia. Look after yourself... :-?
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Re: Hell on Earth

Postby Jules Robin » Mon Feb 25, 2013 8:59 pm

Hi Tel1, thanks for your reply, glad you haven't had a reoccurrence of the horrific chest and back pain. You also described the sensation running from your head to your foot on your left side. I too have a rippling nerve type sensation running from chest down leg to foot also on left side. When I get worked up or overly anxious it becomes stronger in intensity and Im much more aware of it.
I've told doc about it, and nothing shows up on ECGs, so I have to assume its an over -sensitive nervous system. Its rippling as I type this but some days it disappears completely!! Seems the body is doing what it likes, when it likes, to make life miserable. However, I don't intend to let it have its own way and keep on making plans to enable me to have as normal a life as possible. All the best and hope you've had a good day, Jules (Robin)
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Re: Hell on Earth

Postby Tel1 » Wed May 08, 2013 1:01 am

Hi there

Well I still keep getting what I described before... I was hoping that I never had it like that again, but I have, but not SO bad!!
I think I will end up in a mental unit if I have to cope with that pain again:)) We will have to see how things go, and keep asking each
other how we are getting on from time to time eh:))
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Re: Hell on Earth

Postby painprincess1 » Wed May 08, 2013 8:44 am

hi Tel.
bare with me here ok lol.my knees pop out the pain is like nothing u would wish on anyone, what im getting at is try not to sit there and worry about when it will happen again. as u cant do alot about it hun .thing is fibro is nasty and has a way of creeping up o u,try to think of what u were doing a few days before it happened , sometimes the things u do one day u will hurt for the next.xxxx
smiles and the world smiles with you. cry and you cry alone.
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Re: Hell on Earth

Postby Jules Robin » Wed May 08, 2013 8:49 am

Hi Tel1, so sorry you are having reoccurrences of such extreme pain.....not at all easy to cope with especially when it shocks you awake in the night. It causes a lot of anxiety and that just adds to the tension in the chest and back. Fortunately I haven't had an attack for a while and the only thing I can think has made the difference is the fact that I've been on Mirtazapine since the new year and apart from helping me to sleep much better, my anxiety levels are a bit lower (therefore I'm a bit more relaxed if you follow) . Do hope you've recovered from the nasty attack and that you are able to rest and enjoy your day a bit. Gentle hug and take care......Jules
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Re: Hell on Earth

Postby Tel1 » Wed May 08, 2013 1:49 pm

Hi There

I have never had it as bad as I did on that dreadful morning, but I would say that I have had it up to 60% on occasions in
recent times. It is so hard to actually know if it IS the Fibro that is actually causing it.... but my GPs tell me it is.
The hardest part of all is, how do each of know what each others pain as really like,,, are we all the same? but then
thinking about it, how can we be as everyone has a different story of how they feel....I expect that you yourselves Pain princess and Jules you could also explain in mega details about yourselves as well like I have tried to put into words... I am in the Bournemouth
area, and I would love to have say 10-12 people round my place for an evening and talk in detail about each others experiences, it would certainly be a good thing to do I think.. Another very difficult thing to take on board is...when people like ourselves have this that and the other happening to us, is it actually the Fibro doing it? we all know Fibro has a lot of elements and symptoms to it,
but is it all part of it or not? :yikes: I have often thought of signing myself into a mental unit because at times, the symptoms that I have are so great with overall pain and distress it is very hard to cope sometimes... :yikes: :crazy:
In the meantime, keep well, and look after yourselves
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Re: Hell on Earth

Postby LouLou » Wed May 08, 2013 2:02 pm

Hi Tel

Thanks for the update on how you're getting on. I'm glad to hear that you haven't had an episode as bad as the one you had before.

I actually had a few occassions over the last few months where I've had that intense pain and the best way I can describe it is to say it felt like a pressure was building and building all over my body and would only ease when I moved, but then within seconds it would start again until I moved and so on and so on.

I actually saw my GP a few weeks ago and he said it sounded like Restless Legs which is something quite a few fibro sufferers have experienced. Bad news is there is nothing but home remedies that can help with this. I have been taking a magnesium/calciium/vitamin D supplement for the last month and since then I haven't had this feeling so fingers crossed it's helping that.

I know what you mean about describing our pain to compare. My normal FM pain is like a constant throbbing ache which is there all the time and varies in severity.

In terms of knowing if a symptom is fibro related, it's always best to get any new symptoms checkedwith your GP, as even though a lot of what we experience is FM related it could always be linked to something else and it's always best to double check.

Hope that helps a bit Tel1. Take Care of yourself, rest when you can and try to keep smiling. We are all in the same boat. Sending you lots of :hugs: :hugs: :hugs:
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