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The UKFibromyalgia Forums • View topic - oh my legs !!!!!



oh my legs !!!!!

All your fibromyalgia experiences, questions and answers.

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oh my legs !!!!!

Postby ouchiemama » Fri Apr 26, 2013 9:44 am

My legs are sooo sore, like jelly but also like lead,buzzing, throbbing, durling!!

I am on ami 40mg at night and 2 solpadol 30/500 4 times a day - which I think are helping my back & shoulders as they still hurt but not as bad all the time like before... but my legs have now taken over in the pain department & im just so fatigued no matter how much or little sleep I have, its always broken anyway by trips to the loo & crazy vivid dreams!!

:crazy: Has anyone got any advice on what I can do to ease them as Im seriously struggling with it! I just wanna chop them off!!

Sorry its a bit of a rant but am hoping someone here understands & even if you dont have a solution to know that someone knows what Im on about will be a help in itself.

xx
Oh and Ive not been diagnosed yet by rheumy, still waiting for appt but doc thinks its fibro so is treating me as if it is.

Does this sound typical of fibro??

Thanks in advance for any replies..
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Re: oh my legs !!!!!

Postby Genge333 » Fri Apr 26, 2013 11:20 am

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Re: oh my legs !!!!!

Postby zaralala » Fri Apr 26, 2013 11:24 am

Hiya,
Lower back pain is the constant with me, but I have neck, knee, hip, ankle and foot pain that comes and goes.
No matter what I take the pain does not go, but is eased by painkillers.
Unfortunately its a learn to live with pain!
Hope you get relief soon.
Gentle hugs.
Sarah x
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Re: oh my legs !!!!!

Postby lindka » Fri Apr 26, 2013 12:19 pm

I had a very similar problem last night - hot bath didn't help, nor massage nor ibuprofen but, I did get up at 2am and took 2 Kalms (herbal) tablets and, whether it's a coincidence or not, they are a lot easier now - hip pain's still there on the right but the excruciating leg pains are much easier, almost non existent. Don't know whether you've tried Kalms - I use them to help relax - not regularly. But I'm sure they did something last night to help me.

http://www.kalmsstress.com/

Hope you feel better soon.
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Re: oh my legs !!!!!

Postby anonymouse » Fri Apr 26, 2013 12:33 pm

Sorry to hear about the problems with your legs. I used to have very painful legs almost all the time, it felt like there was massive air pressure on my legs like it was crushing them. However, I was prescribed Duloxetine by my Rheumatologist and as soon as I started taking them it stopped, now the problem is very rare, maybe a day or two a month max. You can start at 20mg a day and go to 60mg and my Specialist Pharmacist wants me to go higher. Obviously there is no guarantee that you have the same problem, or that Duloxetine would work with you but I thought I would mention it. It's an off licence use of the drug but you can still get it, just be aware that its mainly used to help stress incontinence in older women, when I first go mine my pharmacist gave me a funny look and asked me to go into the consultation room, the following conversation was very very funny and we laughed about the whole thing (although he was a great guy). You can take with Amitryptaline with it too (although there may be a theoretical risk of Seratonin Syndrome but I'm not 100%, I take them both and its fine.) Also they would probably be happy with stepping your Amitryptaline up to 75mg/day and some specialists go higher but I think its 75mg max in the BNF.

The only other thing I find that helped was a warm bath, afterwards I used to put long johns or a long tubiegrip bandage on them (just one layer) to help keep them warm. I think it may be down to bad circulation but I am not sure. I wish you all the luck I can in getting it sorted and I it was one of my more worse symptoms when I had it.

Take good care
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Re: oh my legs !!!!!

Postby WendyAitkenhead » Fri Apr 26, 2013 1:16 pm

I know what you mean - My legs kill me most days!! My other half has just brought me some "Bamboo tea" which he was told helped someone with restless legs... I'll let you know if it helps!!
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Re: oh my legs !!!!!

Postby FluppyPuffy » Fri Apr 26, 2013 2:30 pm



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Re: oh my legs !!!!!

Postby LouLou » Fri Apr 26, 2013 2:51 pm

Hi ouchie

I get my worst pain in my legs and feet and some days it can feel like I've ran a marathon when all I've done is got out of bed lol.

I'm taking co codamol and tramadol (prescribed strength) which does help keep the pain bearable but there are days where they don't even nudge the pain.

I swear by my baths like Fluppy and electric blanket in the bed. I also use hot water bottles on my legs (I line them up lol) which does help instantly and eases the pain and stiffness. Just make sure you don't put them on bare legs and you have a towel/blanket betwen the bottles and your legs to avoid burning them.

For my feet (but also helps my legs) I use a vibrating foot spa. It has different settings for the vibrations and a heat option and I find popping my feet in there for 15-20 minutes while I watch the telly helps ease my feet and legs after a long day.

Hope that helps ouchie.
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Re: oh my legs !!!!!

Postby painprincess1 » Fri Apr 26, 2013 6:48 pm

i saw on here a while ago about putting a bar of soap in the bed by your legs and it works for some ppl.
is cheap and u got nothing to lose trying it x
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Re: oh my legs !!!!!

Postby ouchiemama » Fri Apr 26, 2013 8:21 pm

Thank you so much for all the replies :-D

Ahh I would love a bath but unfortunatly only have a shower...i am seriously considering getting a bath put in though!

I did stand in it today holding the shower over my legs - still clothed on my top half, as I really couldnt stand the thought of having it all over me & having to get dried - bit weird but hey, lol!! It helped for a bit!

Il search out a hot water bottle, sure I have one somewhere! & i will read over the replies again tomorrow when I can concentrate better..been a long day, in bed now :sleep:

Thanks again :-D
xxx
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