Help! Fibro so bad I am sleeping in toilets on lunchbreak

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Help! Fibro so bad I am sleeping in toilets on lunchbreak

Postby cocobella » Sun May 19, 2013 3:57 pm

Hi everyone, I am so sorry but this is going to be a long one again!! Just a rant, and really in need for some support/advice. This is not a sympathy beg, it is just the truth.

I was dx in Feb 2013, although I think I had symptoms for about 3 years beforehand. I am 26, was off sick from my fulltime job for 3 months at the beginning of the year because my fibro symptoms had become SO bad that I could not walk, my body ached ... you all know the rest memory, mood, fatigue bla bla bla lol.

Anyway, I returned to work 4 weeks ago on a phased return. I am now due to start fulltime working this week as I have built up my hours over the past 4 weeks. I must admit, I am not coping. Simple as, I haven't really told anyone I am not coping, but I know I am not and so does my mum. (still living at parents, moving out in July). When I have been finishing work at 4, I have been coming home and sleeping the rest of the night, maybe get up for something to eat then straight back to bed until the morning. This is how my routine is, as I am SO exhausted. My pain has been so bad recently that I was pretty much shuffling along with my walking stick to get into work, and was pretty much bent over. For a 26 year old I do not think this is normal. My bones ACHE!!! I was on gabapentin, duloxetine and amityrptaline for 3 months but I can honestly say none of it is helping. Duloxetine helps my moods, thats it!!! I do manage to get to sleep etc, but when I wake I never feel refreshed. My fatigue was so bad this week that twice I ended up sleeping in the toilets at work on my lunch break! I work in IT so I am at the computer a lot, I do a lot of intricate work and I feel my concentration level has completely diminished and I think people are starting to notice!! They understand I have been ill but I was signed "Fit for work" by my GP so they assume I am. I honestly, love my job, my boss is great and so are my colleagues, but I am struggling to do a fulltime job. My boss has said I can go part-time but that will affect me majorly financially, as I am due to move out in July, and how on earth can I hold down a house, a car, with bills etc? if I am working part-time and am not entitled to any benefits?! My parents never help me with money and I don't expect them to either, but I know they would not supplement me. I have even thought of taking a bank loan to try and help me which I know is bad. My other half gets back from working abroad in September, and I cannot wait that long to get a house of my own, living with my parents is driving me MAD because my dad does not get my condition. He will be moving in with me in September therefore there will be a joint income and I could probably think about part-time then, but up until then what the heck do I do? Suffer in silence?

Saw my GP on Friday, who changed me from Gabapentin to Pregabalin, I told him that these medications are not killing my pain or even making it any less. I told him I have to take dihydrocodiene (Which makes me drowsy) or really strong diclofenac as that is the only thing killing my pain, so why on earth did he prescribe me something that is not working?? I am due to see the pain clinic in 2 weeks, but who knows what they will do. Already I am wearing a tens machine to work to get me through the day and trying to drink lots of caffiene to stay awake. That isn't normal for a 26 year old is it? Then when the evenings and weekends come I cannot go out with friends or do very much as I am EXHAUSTED and with exhaustion comes pain!!
I also mentioned to my GP that my pain is JOINT and BONE pain, not so much the muscle (the pregabalin maybe helps that side of things). I was diagnosed with SECONDARY Hyperparathyroidism in February due to a vitamin D deficiency, however since then I have had two really bad bouts of kidney inflammation to the point where I thought I would die with the pain and the fever!! No infection was found and no investigations any further. My guess is that I have kidney stones due to the elevated paratyhroid. I also have a big swelling on the front of my neck, YES! A multinodular goitre!!??? Is it just me or does anyone out there think I might have primary hyperparathyroidism rather than fibromyalgia?? As this would explain the bone pain, bending over whilst walking, kidney problems, brain problems, and moods?? oh yes and awful constipation?? I just feel as though my GP is not listening anymore, and now I have been diagnosed with fibro "this is it", no further tests needed. I am due to get my bloods done again in June for my parathyroid hormone/calcium and vit D, although I feel I should really get it done now, because if I do not need to be taking drugs like pregabalin then I certainly DONT want to be taking them.

Sorry everyone.....I am so exhausted and frustrated - you are all probably getting that vibe. Any advice would be SO much appreciated

Coco xxx
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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby lolabolla » Sun May 19, 2013 4:26 pm

Hyperparathyroidism can be caused by a benign tumour on one or some of your parathyroid glands, there are four in total which are situated at the back of your thyroid.

In my case the tumour was affecting my calcium levels, making them dangerously high, hypercalcemia. I was also diagnosed as being vit D difficient at the same time.

After spending a week in hospital on a drip to get my calcium levels down, I was given numerous tests and scans to find the cause, which of course turned out to be a benign tumour.

My symptoms at the time were much the same as fibro symptoms.

Just like you, I was dragging myself to work and going home at night in complete agony and exhausted beyond belief.

Even after having the surgery in 2010, I still continued to have the same symptoms although my calcium and vit D levels were now normal.

After further tests, MRI's, lumbar punch, and numerous blood tests, I was finaly diagnosed in 2012 with fibro and hypermobilty syndrome.

Maybe I had fibro at the same time as the benign tumour, who knows, but my symptoms have only got worse unfortunately.

I would push your GP to investigate your symtoms thoroughly.

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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby FluppyPuffy » Sun May 19, 2013 4:47 pm

First of all Coco, you need to explain to your boss just how much you are struggling with work. If they don't know about things, they can't try to help you with them. I know it can be :oops: :oops: :oops: :oops: :oops: to admit you're finding things difficult, but at times acknowledging the :oops: :oops: :oops: :oops: :oops: :oops: stuff is what is needed to take thing forward. And try not to make light or play down anything, without the full, true and clear details, the exact things that you need may not feature in revised plans to help you.

Do you feel the phased return was done too quickly?? If so, you could suggest that it be extended for a period of time to see how it helps. Once you get into work, are you straight to your desk and there until lunch time?? If so, then maybe factoring in some regular breaks thru the morning and afternoon could help. They don;t have to be long ones, just a few mins away from your desk, maybe go outside for some fresh air or to listen to something that can help you relax a little and focus your mind again, there are all sorts of little possibilities that could help make things more manageable. You also need to be sure that you are sat in as comfortable a position as possible. Again these are all "reasonable adjustments" that can be brought in to make your job as FM~suitable as possible. If you need/want any advice about what other factors could help, depending on the size of the company you work for, your Occy Health~type people should be able to help, or there are Disability Employment Advisers based in JobCentres who can come in to help.

The living with parents but being desperate to get a place of your own is something that most of us have gone thru, so you're in good company. Unfortunately, having FM thrown into the middle of plans and hopes quite often screws them up :facepalm: :facepalm: :facepalm: :facepalm: This doesn't mean they aren't achievable tho, but you do need to be prepared for things to twist and turn and change, as well as take a little longer to come together. At the moment you have a lot of stress and worry about work, so adding something else in, such as moving into your own place, isn't necessarily the most sensible thing to do. What would help make things a little easier to manage is concentrating on one area at a time. So for now, concentrating on getting yourself more settled and sorted at work might be what you need to do, and put thoughts about getting your own place a bit further down your To Do List for now. I know this would mean you would still be living with your parents for a while longer, which isn't ideal, but does come with some benefits. Hopefully then, when your boyfriend comes home in September, you will be in a better place to start your new lives off living together :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed:

Sorry if I sound a bit mumsie about this, it's just that I went thru some similar situations myself and made some very silly mistakes, as well as ending up with some rather unpleasant problems along the way. No advice on the Hyperparathyroidism I'm afraid, as it isn't something I've experienced myself. However, Lola has given you some very useful suggestions which will hopefully help you :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: And if your GP is still refusing to consider these problems seriously, consider seeing a different one about this to try and get things investigated :goodluck2: :goodluck2: :goodluck2:
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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby painprincess1 » Sun May 19, 2013 5:11 pm

darling i used to go to sleepat work all the time .in the end even with help from work i had to stop.didnt want to but had to.also i no u say your bones hurt but fibro does feel like that, all the ligerments are hurting and they happen to bein the same places as your bones as u no. so u can really belive it bone pain.i have days where i walk like an 90year old.get yourslef sizned off work for a month if not more and see if u can try some new meds while u at it . lest u will get sick pay and get some needed rest .xxxxx
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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby shazq » Sun May 19, 2013 5:41 pm

Hi
You should ask your work if you can stay on reduced hours for a bit longer, explain to them that you are not ready to return to full time yet, explain what meds you are taking and how they make you feel and how fatigued you are every day.
If they are not happy about it ask your gp to write a letter backing you up. :goodluck1:
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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby denys » Sun May 19, 2013 8:02 pm

I cant add much to what has been said already, I would push your doc for further investigation so that you know for definite what is going on :fingerscrossed: :fingerscrossed: and good luck
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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby cocobella » Sun May 19, 2013 11:27 pm

Aw thank you everyone! This forum is such a saviour for me. :-) Fluppy - you are correct about adding a house move into the equation. I think it will probably kill me. I maybe am best just waiting until my other half is back and atleast I would have an extra pair of hands too to help me move out.

With regards to work, I am using my tens machine in work, and have brought in various aids - chiro cushion, lumbar cushion. I was at OHSAS whilst off sick - I work for NHS. They stated I must leave my desk every hour and go for a walk even on days where im bad. So that is good as my manager knows this is what I have to do, although he is a human manager lol so he understands my health condition in a humanly manner rather than a manager manner which really is a godsend and I feel very lucky. My last manager was a dragon and completely drove me into the ground. Anyway, as it is relaxed in my office, I do get to listen to my ipod and I usually have lots of relaxation music on it, I drink plenty water, take regular walks (and sleeps lol), so I suppose I am doing all the right things. By the time Wednesday comes though, I feel washed out, by Friday I pretty much can't communicate. I spend whole day Saturday resting, then Sunday I feel a bit normal again (still in pain though) then back to it all again on Monday! Not really much of a life just now but hope it improves because I can't go on like this.

I definitely need to push for the parathyroid tests again to find out if the vitamin d i am taking 4 times a day is working.

Thanks for all your great advice it really really helps xx
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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby anonymouse » Mon May 20, 2013 12:25 am

Hi Cocobella,

Thank you for sharing your story, I really feel for you and your situation. It seems to be your in the situation where you feel like your loosing your grip, or loosing control on all aspects of your life. I have also been there, I was diagnosed with Fibromyalgia when I was 24 and had my first major flare at 26. I was a police officer at the time and lost my job because of it, this was supposed to be my life career and I had lost it within three years.

It is a very difficult situation, you don't have all the information, don't have time to get the information, its effecting your whole life and there isn't much you can do about it and there is nothing much anyone can do to help. The only things I can do are: tell you a little about my situation to over a shred of support in the knowledge I have been in a similar situation and pick up on a few things you have said great give me a few little clues about what you can possibly do.

Firsty all this stress will be adding to your health problem as I'm sure you know, other than trying to keep calm and taking things one step at a time I haven't got much more advice to give.

Work: You have mentioned how understanding your boss is about your health. That's great news, in reality the law should protect you although we all know its totally different in reality and how could you ever afford to pursue a legal case? Etcetera etcetera. If he is supportive try and keep him at the loop, as people have said think about any reasonable adjustments that could help you at work, obviously its entirely depended on your work situation but have a little look for ideas like, could you do half a day, return home for a few hours to sleep then return and do the rest of your day? Could you reduce your hours to allow a later start, earlier finish, longer breaks? If you can establish a honest, open and candid relationship with your employers, it would be rare, but if you can it could prove to be a goldmine in terms of your health etc.

Medically: I hate the way most doctors attribute everything to Firomyalgia when it us plainly nothing to do with it. To cut a long story short I have a mechanism in my body that makes it react a certain way to blood tests, it shouldn't happen, shouldn't be possible, but its real. However, if I mention it in a consultation and ask for help, I will be firmly told its "fibromyalgia" and they will end the consultation there and then, opening the door and will usher me out of the room as fast as they can. I told my dad about it and I thought he believed me until I took him along to a consultation, it happened and my dad was completely shocked and speechless. Quite simply they don't know what it is, they don't know how to go about solving it and know if they acknowledge it they may be stuck with me as a patient and might not be able to get rid of me, so they literally eject me out of the room.

Now I don't know a lot about your thyroid problem and I'm not a doctor but I have experience and have picked up a few clues. Firstly your Vitamin D deficiency can on its own cause most of your symptoms, I'm not saying it is, but it can. I'm sure you know the importance of it etc but I just wanted to mention it so you can keep "on it" with your docs and its great news you have a blood test lined up to recheck it. I am also Vit D difficient. Diclofenac shouldn't really be giving you relief if the problem is only Fibromyalgia, you should not be having any inflammation with Fibro and it may offer a clue about some of your pain being down to inflammation which would point towards a catalogue of other possibilities. Problem is you would need a specialist about pain perception or inflammation to look into it for sure. Its just something that I wouldn't worry about, but that I would keep at the back of my mind as your researching etc, for example have you been tested for inflammatory markers in your blood etc, are there physical signs of inflammation, is it localised etcetera etcetera. Obviously your thyroid problem could also be the cause of a lot of your symptoms too so I suspect multiple overlapping medical problems and wish you look with isolating each one and getting treatment. You have mentioned constipation, try and get your doctor to prescribe you movocol (check spelling) I use this for my problems, I now go about once a week, but at worst I didn't have a bowel movement for over a month! If your doctors and specialists are not helping do your own research, if its something obvious there missing then ask for a second opinion, referral to another hospital, try another GP in your practice or even move practices if its a major problem to you. Some doctors don't even believe Fibro exists so can be totally useless when it comes to helping you, its probably one of your top priorities to solve as they need to be taking better care of you and keep an open mind about other problems, virtually no-one with Fibro ONLY has Fibro.

Benefits: its a bit of a minefield in itself, you want to be looking into things like working tax credits if your reducing your hours as you may be entitled to additional income. If your mobility is effected or if you need certain help with your care (for example meals prepared) and it has been at least this bad for a while and isn't temporary you could be eligible for Disability Living Allowance, you can get this while you work and its specifically to help with the extra cost of mobility or care needs from your disability. I will offer a word of warning through, the benefits system is getting extremely complicated and sometimes going through the processes takes years and its almost like an additional full time job. So any take this on if you know your elligible and you think you could cope with it. However charities and CAB can help too as already mentioned. You could be entitled to ESA if you loose your job and you could continue to get it if your placed into work for a limited time, through their schemes.

I can certainly understand your frustrations about living at home, I left as soon as possible as I was in an abusive family and needed to leave for my own physical safety as soon as possible. In your case your frustration may be contributing to your problems as well. Although be honest with yourself, how much help do your parents provide, ie meals, washing etc etc? Are you able to do this all yourself when you leave, can your partner do it, how would your situation change. These are only questions you can answer but I'm trying to offer some ideas to help ease your frustration and help you change your situation for the better.

For the last three years I've been 95% bed bound, I was put on morphine a few years ago and due to very poor managment from doctors I am now morphine dependent. This causes further problems including damage to my pituitary which has caused my body to stop producing enough testosterone. All because the primary condition of fibromyalgia. There are lots of different theories about fibromyalgia, if it exists, and all the rest of it. I have my own theories too and believe its real but is a term of diagnosis for a group of conditions that result in similar symptoms but are beyond our present scientific and medical knowledge to solve. There is more and more evidence of physical differences in the brain and it seems to be something to do with a faulty Central Nervous System, this then throws out other bodily balances and sends everything into chaos.

For the last three plus years I haven't has a great life, I would do almost anything to stop you getting into a similar situation. I have spent all my bed bound time horitontal or building my website about everything Fibromyalgia. I know there are some great websites out there for help and support on the medical side, benefits, products to help like your TENS, medications and even all these subjects combined. Now I'm not allowed to start listing them all for you on this forum but they are out there and can be a great help. This forum is simply the best for support and access to others in similar situations and you have had some brilliant replies so far from some really nice and usefull people. I hope my post hasn't sounded patronising in any way, I don't know what you do and don't know and although you seem like your on the ball I have answered like you don't know huge amounts to cover all bases for you.

I really hope you find some relief soon as you certainly sound like your in a very difficult cycle, I have plenty of contacts when it comes to young people with Fibro, Fibro and work and the odd person without Fibro but with similar thyroid problems. If you want to know anything just ask, feel free to PM and I will mention your post to a few people I know, you never know you may like to get to know them to provide some mutual support, who knows. Let us know how you get on too, it could make my day finding out you have caught a break with all your problems.

All the best and take good care....

Anonymouse.
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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby anonymouse » Mon May 20, 2013 12:30 am

Between me reading and posting you have replied back too, just youth know I replied before reading your update. It's funny you say you work for NHS IT, so does my best friend and his partner is a nurse with fibromyalgia so you never know why your boss might be so understanding! It's a small world and all that! And as you know its probably best to leave the house move until your other half gets back or I fear it might just push you over the edge, lol. ;-)
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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby anonymouse » Mon May 20, 2013 2:01 am

Just a further thought as I can't sleep a the moment. If your current medications are not working and you have a period of a few months where your treatment plan isn't going to change it might be an idea to suggest you try dosage increases or different Fibro drugs.

A lot of drug treatments are littereally trial and error, they work for some and not for others. No-body knows why, in fact some of these drugs were originally meant to treat a different condition but accidentally a benefit to someone with Fibro was found. Often when there are a lot of changes in treatment plans you go up and down but can not attribute the benefit to one treatment alone. This is why a lot of specialists say try this and review in 3 to 6 months. The downside is you constantly feel like your just wasting years trying one drug after another and you may even suffer side effects. But if there is a natural period of a month + and you have a willing doctor/specialist you might as well try nothing, especially if your quite sure your current medication is giving you no benefit. The standard set in the UK are Amitryptilyne, Pregabalin, Gabapentin and Duloxetine. Then anelgesicly paracetamol, codine, dihydorcodine, tramadol and opioids (special care there) (some may be spelled wrong too).

However in the USA there are far more licenced and off licenced fibro medication, if your into doing your own research look into books and websites from their to give you info on other medications to discuss with a helpfull specialist if your lucky to have one.

Just a side note: There are a lot of different theory's about Fibro and some claim that taking lots of medications is completely the wrong way to treat Fibro, they may be correct, they may not be and were not doctors either! It's just an idea for people who are stuck on the same medications with know benefit. As always check sources, don't believe everything you read, watch out for scams, never self medicate and always always consult your doctor before changing treatment, taking different medication or even Suppliments and alternative medicine.

I promise I will limit myself to three posts for now, people must be sick of me sometimes. Lol :-)

Anonymouse x
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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby cocobella » Mon May 20, 2013 6:53 pm

Anonymouse - Aw thank you soo much for all your information. That is really useful. It sounds as though your life has been really really difficult the past few years and I can completely sympathise with you. With regards to the morphine, I feel as though I really need morphine some days. lol! I can't do much on my own when I flare up therefore it probably would be a bad idea moving out until my other half gets back. I will go back and read your story again because I know I have probably missed a few things out xxxx
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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby LouLou » Tue May 21, 2013 10:42 am

Hi cocobella

Sorry for joining the thread a bit late - been a bit foggy the last few days lol. I work 30 hours a week and there used to be days where I'd hit my head off the keyboard for falling asleep at my desk doing my impression of a nodding dog lol :oops:

For the last 2 months I've been taking a Magnesium/Calcium/Vitamin D supplement (2 tablets with a main meal once a day) and I've found it has really helped the fatigue. I haven't had a nodding dog moment at work since I started them lol, and though I still have tired days it's not as bad as it was before.

I'm not sure which of the 3 vitamins is contributing to this but it's definitely helping me. I take the ones from the Osteocare range and they do a wide variety of vitamins. May be worth asking your pharmacist about which onces can help with what and if they go with your current meds?
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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby anonymouse » Tue May 21, 2013 1:06 pm

Yea thanks for sharing that LouLou, I'm hearing a lot about vitamin D in particular at the moment. It seems to go hand in hand with Fibromyalgia. However I have had some people without Fibro showing the symptoms and after suggesting Vitamin D they have been to the GP found themselves to be difficient, sorted Suppliments and are feeling much better.

I think with the climate change were experiencing, the long, cold, dark winters a lot of people just haven't been getting enough Vitamin D for at least 6 months if not far more. Vitamin D goes hand in hand with calcium too and its something I am keen to push as it seems to be effecting so many. As I've said before many of the symptoms of Vit D deficiency are exactly the same as Fibromyalgia and even with blood tests working out what is Fibro and what is Vit D diffidency is almost impossible. For people who are really suffering and struggling to hold onto "life" as they know it I would defiantly say "treat both" to give the best chance of a success when you need it most. (Always through your GP of course).

As for everything I have put in the other posts, I hope they made sense. When I read your post I had so many ideas that, by the time I started writing, they get all muddled and sometimes they end up being "vomited" out all over the page! Good old Fibromyalgia in action as I'm sure people will relate too. If you need to ask any questions, discuss ideas or anything feel free to post or PM if needed, its really usefull for people to find an initial problem but also a possible solution or various solutions when they browse and search for help. It's also nice to know people have had little victories as well, as like yourself everything is just getting on top of them and its not nice to see people in such difficult situations.

Once again all the best

Anonymouse x
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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby LouLou » Tue May 21, 2013 2:18 pm

anonymouse wrote:When I read your post I had so many ideas that, by the time I started writing, they get all muddled and sometimes they end up being "vomited" out all over the page! Good old Fibromyalgia in action as I'm sure people will relate too.


I know that oh so well anonymouse lol

When my Gp was investigating my symptoms, despite him thinking it was Fibro al along it was only through blood tests that he found my Vitamin D was seriously low (this was last year middle of winter) He put me on prescribed Vitamin D tablets and had to take them for about 6 months and be retested. My levels are all fine now but there was no actual change to my pain levels which then led to the Fibro diagnosis (among other indicators)

And even though the supplements I'm taking haven't helped my pain, just easing the fatigue a little has made such a difference. I can handle pain on it's own and fatigue on it's own but when both hit me with high levels that's when I am wiped out!

anonymouse wrote:However in the USA there are far more licenced and off licenced fibro medication, if your into doing your own research look into books and websites from their to give you info on other medications to discuss with a helpfull specialist if your lucky to have one.


I found your posts really interesting to read. My uncle lives in Canada and is keen to do some research on this.

Hope all is well with you anonymouse (and post as much as you like I found it all really interesting)
xxx
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Re: Help! Fibro so bad I am sleeping in toilets on lunchbrea

Postby anonymouse » Tue May 21, 2013 4:43 pm

Haha, excellent! When I first saw the page and the fact you had quoted me I though "oh god, what have I gone and said this time" as I clearly associate quotes in forums with people disagreeing with everything I say and every way I say it........ So when I read it I had a pleasant surprise!

If you like my "vomit" analergy you might like my last tweet that I sent before checking this reply: "@My_fibromyalgia: Waist down = freezing, Waist up = boiling, Catch 22 criteria = met. #impossiblefibro day! #Fibromyalgia #fibro #ROAR!!! Yours?"

Its interesting to know about your findings with your supplements, what they help with, what they don't, how you have come to be one them too. I find it very interesting when it comes to you fatigue v pain conclusion and when I come to think about it then its the poly-symptomatic way Fibro presents that is the most annoying. Also like Cocobella it seems to be effecting many different of areas of her life at the moment which makes it so hard to deal with. I have noticed an improvement with fatigue come to mention it since taking vitamin D, its hard to pin it down to exactly vitamin D as in the couple of months after i changed my treatment to include vitamin D I noticed no difference, after then I added testosterone, then after that I upped Amitrip from 50mg to 75mg. It's only in the past few weeks that I've noticed a difference in my sleep recovery. By that I mean the period it takes you from the moment you wake from a "normal length" sleep to the point you feel like you can comprehend the world and think about getting out of bed. It used to be like 2 to 3 hours on average but I've been noticing less than an hour for a few weeks on occasions. Logic tells me its the increase in Amitrip however every medication is different in the time it takes from first taking to benefit, sometimes its overnight sometimes its six weeks and you can go on studies to work out roughly when your supposed to feel a benefit but in reality its very very subjective and you have to take into account a million and once factors..... So I'm not 100% sure what to put it down too at the moment, although I'm probably going to step up the Amitrip again soon so that may give a better indication.

Anyway, waffled enough, but thanks for sharing your info, it all gets collected (in my head) and recycled (out of my mouth) and given to (or sometimes "vomited" at) people that ask for advice (and the occasional one that doesn't) so its all good (for me, mostly others, but not always) hahaha!

anonymouse x
Fibro, Chronic Pain, Insomnia, Psoriasis, Migraines, Light & Hyper Sensitivity & Joint Subluxation but apart from that I am perfectly healthy & battling for ESA & DLA. - Twitter: my_fibromyalgia - Facebook: myfibromyalgia
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