Well, that's it confirmed :o(

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Well, that's it confirmed :o(

Postby Picklepudding » Mon May 20, 2013 2:45 pm

All blood tests and X-rays were normal apart from a vitamin D deficiency and some minor problem with my spine (He did explain it but to be honest I wasn't quite sure what he was talking about) So he's certain it's fibro. I've been sent away with a leaflet and told to start exercising (my most hated thing in the whole world), to lose some weight and to go to my GP to get amytriptyline

I'm a bit gutted to be honest :(
Crohn's, IBS, plantar fasciitis, psoriasis, Vitamin D deficiency, minimal osteoarthritis, possible Hughes Antiphospholipid Syndrome and fibromyalgia...I'm a walking medical encyclopaedia!
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Re: Well, that's it confirmed :o(

Postby kazza65 » Mon May 20, 2013 3:29 pm

Hi

i only got confirmed in april that i had got fibro, but one i knew i had i was relieved to find out what was wrong with my self. I know it must of come as a bit shock, but once i had got a name for it i was ok.....

I have be taking amytriptyline since april apart from a cock up by my G.P i have been fine with it apart from it seem to make you hungry all the time.. It also makes me have a reasonable nights sleep i don't get up total washed out like i was doing. I take 30mg at night and thats fine for me, i have seen on her that people take 75mg and are still in pain. So i guess its each to there own..

Good Luck....
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Re: Well, that's it confirmed :o(

Postby Fizzyb » Mon May 20, 2013 3:58 pm

Hi Picklepudding.
Sorry to hear you have Fibro. Amitriptyline is a good drug if you can tolerate it. I've been on 75mg for years then my other drugs were changed so, it went to 50mg but now I'm back up to 75mg. They did want me on 150mg but I said no as I'd be out of it what with drugs I have for RA also. I hope you don't mind me asking but did they say how bad you have it?

There's always people on here to chat to and it's a good site to know that you're not alone.

Sorry, its not much help.
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Re: Well, that's it confirmed :o(

Postby Iceskatemum » Mon May 20, 2013 4:58 pm

So sorry Pickle pudding , that you have finally been told officially that you are now part of our Fibro family. It is a shock to the system and one that take quite a bit of getting use to . Just remember that you have an enormous amount of expert advice on here...... after all it is written by those in the know.....fellow fibromites. :lol:

Try not to stress too much as it can effect your FM, rest and pace and hopefully you will be able to achieve a routine that eases the pain and lessens the fatigue.

take care
Gentle hugs :grouphug:
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Re: Well, that's it confirmed :o(

Postby Sandrachc » Mon May 20, 2013 5:36 pm

Have you asked your gp to refer you to a pain specialist ? He/She would have more knowledge on pain management meds......
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Re: Well, that's it confirmed :o(

Postby Alityke » Mon May 20, 2013 5:57 pm

Don't worry about exercise, generally this means walking, stretching and gentle Pilates or Yoga. Remember to pace your activities, try not to overdo it on good days so you keep a reserve for bad days. I also have inflammatory bowel disease and associated inflammatory arthritis. My recent fibro diagnosis also felt like a kick in the teeth so I have empathy for your situation.

As a previous poster said, do ask your GP for a referral to the Chronic Pain service. These have often been depleted due to NHS cuts so you may have to travel but they offer a holistic approach to care with physio, acupuncture, cognitive behavioural therapy, medication review and occupational therapy. They help YOU take control of this condition which really helps.

Good luck in the future and I'm sure this forum will be helpful
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Re: Well, that's it confirmed :o(

Postby Lizzyear » Mon May 20, 2013 6:39 pm

Hi Picklepudding,
I feel for you!
I also have just come back from my rheumy doc, I was told, well that's all part of MFP/fibro! :yikes:
He told me exercise............I didn't know whether to laugh or cry. I could no more exercise than fly to the moon!!! I could hardly walk in the surgery!
I know you will get good advice on here as to how to move forward. This is the best forum for help and support.
I will also be ready with great interest!
Gentle hugs. :hugs: :flowers:
Keep positive, I know that it's important to keep positive and work around the limitations of fibro.
You take care. Much support,
Lizzy
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Re: Well, that's it confirmed :o(

Postby FluppyPuffy » Mon May 20, 2013 8:13 pm

As much as you didn't want it to be FM that was the confirmed dx Pickle, at least you now know what it is that you're dealing with, so hopefully from there you can get things moving in a better direction for you :fingerscrossed: :fingerscrossed: :fingerscrossed:
:fingerscrossed:

Altho exercise can benefit us, docs seem to forget that it's not as straight forward for us to start doing something compared to a non~FMer :nono: :nono: :nono: :nono: For us, whatever the form of exercise, it has to be built up very very gradually so we don't end up setting ourselves too far back with blips, flares etc.

Looking into a referral to your local Pain Clinic/Services could be good thing to do. They tend to have access to additional services like those that have been mentioned already, and with their help you could find a suitable cocktail of things that helps you feel a step or 2 closer to being vaguely huu~mon again :-D :-D :-D :-D :-D
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Re: Well, that's it confirmed :o(

Postby Andreaagony » Mon May 20, 2013 9:16 pm

I found out I had fibromyalgia 3years ago and was relieved to be told what it was. At least there was a reason I was feeling so bad. :-D I went on a course at my local Hospital to learn how to cope with an ongoing illness and how to pace myself. I have pain injections in my back every 4 months and take nortryptaline at night and paracetamol throughout the day. I do still have good days and bad days but find that keeping in a routine helps. I've managed to keep working but do struggle some days.
Try to keep positive and with a combination of treatments hopefully things will pick up :-D
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Re: Well, that's it confirmed :o(

Postby painprincess1 » Mon May 20, 2013 9:20 pm

i no just what u mean hun. when u said u hoped it was something else we all do.every time i have a blood test i think pls be something else.only thing i can tell u tht does help is to move .it really does help stop the stiffness setting in. u dont need to run rings but swim walk alittle what ever u can do even 20 mins a day is better then nothing.even house work done bit by bit . i always feel worse if i have done nothing xxxx hugs xxxxx
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Re: Well, that's it confirmed :o(

Postby Picklepudding » Mon May 20, 2013 9:22 pm

Thank you so much everyone for all of your support. It really means a lot to know I'm not alone xxx
Crohn's, IBS, plantar fasciitis, psoriasis, Vitamin D deficiency, minimal osteoarthritis, possible Hughes Antiphospholipid Syndrome and fibromyalgia...I'm a walking medical encyclopaedia!
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Re: Well, that's it confirmed :o(

Postby LouLou » Tue May 21, 2013 10:38 am

Hi Pickle

Not much more I can add I just wanted to send you a :hugs:
What doesn't kill you will only make you stronger ;-)
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Re: Well, that's it confirmed :o(

Postby Gromit » Tue May 21, 2013 12:23 pm

Hi Pickle,

I am so, so sorry that you have had fibro confirmed. It is always a shock I think even when you are expecting it! I am struggling hugely at the minute myself so I wish you all the very best, do as much reading and research you can, get referred to the pain clinic (i was referred months ago and still havent got my place on the living with pain course, be prepared for a long wait) and be kind to yourself.

Gentle hugs,

Grom xxx
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Re: Well, that's it confirmed :o(

Postby lolo73 » Tue May 21, 2013 9:20 pm

Big gentle hugs.

I know it must be a shock for you but at least you have the answer to what is wrong, take some relief that it isn't a degenerative neurological disease or the likes, that is what I did. I was actually glad that after 15yrs of suffering I had an answer because at least I know what is wrong and the Dr's have an idea about some drugs that will ease the symptoms. x
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Re: Well, that's it confirmed :o(

Postby whoami » Wed May 22, 2013 5:38 am

It is such a relief getting a diagnosis.......

.anyone without fibro would think we are mad being so happy to hear we have a chronic, incurable, painfully debilitating illness, LOL

My one Dr said ...good news! I know what is wrong.

Bad news, you are going to live a painfully long life, LOL. He has fibro himself.

I was so happy I hugged him and cried...he understood!
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