Fibro and pregnancy - can't cope

All your fibromyalgia experiences, questions and answers.

Moderators: perseus, *Lisa*, FluppyPuffy

Fibro and pregnancy - can't cope

Postby BuzzyB » Fri May 24, 2013 12:03 pm

:too-upset: I think that pretty much sums up how I'm feeling right now.

I'm 34 weeks pregnant. The doctors took me off my codeine and amytriptaline early in my pregnancy so for pretty much the entire thing I've had absolutely nothing to help with my regular fibro issues, never mind the additional strain of pregnancy. Thanks to the pregnancy I now have SPD and low iron levels in my blood. I get such bad pains in my stomach that feel like I'm actually being ripped apart. My anxiety and depression levels are through the roof. I've got some ridiculous pain right up under my ribcage where I'm sure the baby can't possibly reach (had for weeks already) but it got dismissed as 'baby kicking'. I'm getting to the end of my tether.
I know they're all probably normal pregnancy symptoms but I'm sick of having every pain instantly dismissed as 'normal'. I wish they'd at least consider that fibro amplifies pain so what may feel 'normal' to other people is debilitating to me and I don't see how they can just dismiss that.

My midwife dismissed my depression (I'm on some crazy long waiting list to see someone about it) saying it can't be too bad because I'm not on medication. I'm not on medication because I chose not to take it when I first got pregnant.
I'm told to take paracetamol for any pain and call up if it doesn't go away. Of course it doesn't go away, paracetamol hasn't been able to kill my pain for years, then when I speak to them again they just tell me immediately that it's normal and to take paracetamol.

I know nothing can really be done about it but I usually discuss these things on a pregnancy forum where I don't think they really understand that my pain, fatigue and coping levels are different and really wanted to talk to people who know why I find every symptom being immediately dismissed so annoying.
Bluffy the Fibro Sleeper
User avatar
BuzzyB
UKFM Member
 
Posts: 52
Joined: Wed Feb 22, 2012 3:55 pm
Location: Derby, East Midlands

Re: Fibro and pregnancy - can't cope

Postby lindaloola » Fri May 24, 2013 12:25 pm

Damn I often wondered what it would be like to be pregnant but I suspected I couldnt cope and definately couldnt cope witha kid 24/7 .
Really feel for you not being able to take medications. Can you take ibuprofen? I find it works better than codeine anyway if you can.
Ill just stick with cats although I do envy you hope it all goes ok. x
have you heard about low dose naltextrone? Its a very low dose that kick starts a reaction in your immune system. It may bge something you can try, your doctor probably wont prescribe it though I get mine online , I find it helps with the pain a lot. x
User avatar
lindaloola
UKFM Member
 
Posts: 42
Joined: Fri May 13, 2011 10:42 am
Location: Southport .Merseyside

Re: Fibro and pregnancy - can't cope

Postby cate2979 » Fri May 24, 2013 1:10 pm

I really do feel for u and know how u are feeling, u may forget about complaining to the health 'professionals' it doesnt work.
But.... look at you, ur almost there and u have done amazing, ur baby will be so proud of u. Take it easy for the rest of the time xxxx
cate2979
UKFM Newbie
 
Posts: 8
Joined: Tue Nov 22, 2011 10:54 pm

Re: Fibro and pregnancy - can't cope

Postby LouLou » Fri May 24, 2013 1:46 pm

Hi Buzzy

I can't say I know how you feel as I'm not expecting but I am currently on Tramadol and Co Codamol which I am trying to cut down on so I can try for a baby. I too find paracetamol doesn't even touch me and hasn't done for some time, so the thought of surviving on that alone when pregnant really scares me.

cate2979 wrote:But.... look at you, ur almost there and u have done amazing, ur baby will be so proud of u. Take it easy for the rest of the time xxxx


Completely agree with cate there Buzzy you are so nearly there, rest, put your feet up and do what you can to get to the end and it will all be worth it when you hold that tiny baby in your arms (getting tearful and broody just thinking about it lol)

Take Care of yourself Buzzy
xx
What doesn't kill you will only make you stronger ;-)
User avatar
LouLou
UKFM Regular
 
Posts: 1009
Joined: Thu Oct 06, 2011 10:40 am

Re: Fibro and pregnancy - can't cope

Postby not.giving.in » Fri May 24, 2013 1:55 pm

I was undiagnosed with fibro when I had twins, I went full term. That and a subsequent pregnancy were painful, and yes my ribs were agony and I couldn't bear the pressure of a bra towards the end. I got some bad pain when a baby lay against the ureter between the kidney and the bladder - renal colic. That might be a cause of some of your pain, but it goes off when the baby moves. But babies are worth the pain :-D

34 weeks is fantastic, well done you! You can be proud of yourself. Sometimes a warm bath might help. But most of all look after you, do what your body needs as far as you can, you are so close now to holding your baby. Focus on the good things and try not to dwell on the difficult too much, what you are thinking affects how you feel about the day.

All the best and a gentle hug,

Jules
not.giving.in
UKFM Member
 
Posts: 36
Joined: Wed Apr 20, 2011 6:32 pm

Re: Fibro and pregnancy - can't cope

Postby Iceskatemum » Fri May 24, 2013 2:53 pm

You're on the home strait and have done wonderfully well to get this far. I am so sorry you have had to deal with SPD as well as everything else I appreciate how painful, tiring and debilitating it can be . Have you seen a physio for your SPD hopefully she will have given you some exercises to help or even some hydrotherapy sessions as the water takes the pressure of everything.
An osteopath can also be helpful but if going to use one remember to check they are familiar with SPD.

I know paracetamol may not seem much but something is better than nothing, just remember to keep taking it so that it is always in your system, if in doubt check with GP that this is OK.

Next time someone in the medical profession says its normal to feel the way you do .........just think of all the things you could do to show them what normal feels like !
Not sure they would like being wrapped in barbwire ,and being kicked black and blue from the inside out, all the while thinking your lower body is going to just fall apart !
Sometimes I find silly thoughts like this can get us over some of the pain or you could just try relaxing and thinking or visulising something special to yourself , warm sunny days some where nice, the beach, a woodland glade or sipping something nice over lookig a view .

As everyone has said this is your time, so try and rest as much as you can , enjoy what ever sunshine is about, the Vit D will do you both good. If you can afford it why not treat yourself to a facial or something. Some beauty salons do mums to be pamper packages, maybe family & friends might chip in ?

Even for someone without FM the next few weeks seem to drag so you are not alone, take care and let us all know how you get on. After all your bump has loads of virtual aunties and grannies to fuss about him or her :lol:
Iceskatemum
UKFM Regular
 
Posts: 1599
Joined: Thu Jul 12, 2012 4:20 pm

Re: Fibro and pregnancy - can't cope

Postby BuzzyB » Fri May 24, 2013 6:09 pm

I'm certainly thinking that I should have stuck with cats as well. Nope, ibuprofen not allowed. I haven't heard of naltextrone but I'll look it up.

Cate, I agree with you about the 'professionals'. I can't remember the last time I came back from one not feeling utterly disheartened. I really hope the baby will be proud of me. I have a couple of friends whose mum has fibro and the older one has complained that she 'plays the victim' and similar things that show me he doesn't understand how his mother feels at all. It scares me senseless to think that one day this little baby might talk about me that way.

Good luck trying for a baby LouLou. I better start listing the positive parts of my pregnancy so I don't scare anyone off trying to conceive! If you see a doctor who already understands your illness and that you've cut down on your medication I think that would help fibro pregnancy a bit easier.

Jules, I'm going to admit that I'm in awe that you could do this with twins and still want to go through it again! Either you're superwoman or babies are magical.

Physio gave me some giant tubbigrip and told me to do kegals. I keep considering calling them again but somehow never quite convince myself to.
Not sure they would like being wrapped in barbwire ,and being kicked black and blue from the inside out, all the while thinking your lower body is going to just fall apart !

That is a pretty good description!

Thank you all for making me feel a bit better. I need to keep reminding myself that I'm nearly done with pregnancy but it feels like a very long home stretch from where I'm sitting. I hope this baby knows he's going to owe me a lot of cuddles to make up for this :-)
Bluffy the Fibro Sleeper
User avatar
BuzzyB
UKFM Member
 
Posts: 52
Joined: Wed Feb 22, 2012 3:55 pm
Location: Derby, East Midlands

Fibro and pregnancy - can't cope

Postby lrgatrell88 » Fri May 24, 2013 6:40 pm

Hi. I'm sorry you're feeling like that. :-(.
I'm almost 25 weeks pregnant and have managed to damage my back falling over so now have trapped nerves in both legs. Just developed carpel tunnel syndrome aswell.
It's a shame your midwife isn't more supportive. Could u ask for an urgent referral to the pain clinic?
X
lrgatrell88
UKFM Member
 
Posts: 230
Joined: Mon Oct 18, 2010 9:03 pm

Re: Fibro and pregnancy - can't cope

Postby painprincess1 » Sat May 25, 2013 3:49 pm

my little one is a year now. but i no just how u feel.id had enough but 28 week with the pain and from then on i was in and out of pre labour till she was born at 40 weeks.as for your ribs i pulled mine coughing at 6 weeks and they hurt so bad i couldn't breath right the spasms were so bad they would bend me over.and guess what was bad for the whole pregnancy ,so my darling your not alone u have done bloody great and u have giving baby the best start,its not far now even though it feels like it will never end.it will and soon u will have that lovely baby to hold. one tip il give u i dont no if this is your first or not but stay in the hospital a few days after .this was my 4th and i stayed in 2 days it was great to get to know her without cooking cleaning and running around for ppl.try to enjoy the rest and have your meals bought to u .really a once your home your home.xxxxxxxxx
smiles and the world smiles with you. cry and you cry alone.
painprincess1
UKFM Member
 
Posts: 867
Joined: Mon Oct 15, 2012 1:38 pm
Location: near london

Re: Fibro and pregnancy - can't cope

Postby BuzzyB » Sat May 25, 2013 5:13 pm

I keep half expecting to develop carpel tunnel. It was the diagnosis I was given before fibro.
I hadn't thought about asking for a referral to pain clinic. I'm planning to call up my doctors surgery Monday and ask if the have any doctors who usually deal with chronic fatigue disorders or rheumatology related issues, hoping they'll be more help.
I was in hospital at 26 weeks and given those darn steroid injections so since then every week he stays in feels like a surprise and I feel so bad struggling to cope now.
That's a crazy amount of time to have sore ribs. It must have driven you mad.
Thank you for the advice :-) Yeah, this is my first. I'm not sure I could cope with a few days in hospital but I'll certainly think about it.
Bluffy the Fibro Sleeper
User avatar
BuzzyB
UKFM Member
 
Posts: 52
Joined: Wed Feb 22, 2012 3:55 pm
Location: Derby, East Midlands

Fibro and pregnancy - can't cope

Postby lrgatrell88 » Sat May 25, 2013 11:05 pm

I think most pregnant people feel like they want it over towards the end let alone if u have fibro and are in constant pain too! I know friends who have had enough by 30 weeks who are perfectly healthy so don't feel guilty.

You're doing really well to have come off all your meds etc. hopefully you're doctor can help. Fortunately I know a pain nurse who also does acupuncture for me privately and that's how I'm able to just about keep going. Let us know how u get on. Xxx
lrgatrell88
UKFM Member
 
Posts: 230
Joined: Mon Oct 18, 2010 9:03 pm

Re: Fibro and pregnancy - can't cope

Postby LouLou » Sun May 26, 2013 12:24 pm

Buzzy reading your updates it sounds like you are feeling a bit more positive about things now?

I definitely think changing doctors will do a world of good, mine is the GP in the surgery who actually specialises in chronic pain and rheumatology so that's why he is so great with me. Definitely worth asking the question of the surgery you are at now, but don't be disheartened if there isn't one. They may be one at another surgery and even though changing doctors may be a bit of a hassle but is so worth it when you have someone who understands you.

Don't worry, you haven't scared me any more than I already am lol. But as my OH keeps saying, we need to look at the bigger picture and that's what I am trying to do. I'm determined FM won't take being a mother away from me and though it is tough cutting down on my meds I know i will be worth it.

Stay stron Buzzy, come on here and vent when you need, we are all here for you and I personally and so so excited for you. You too lrgatrell, I know you haven't had things easy lately but you are also in my thoughts during this time.

xx
What doesn't kill you will only make you stronger ;-)
User avatar
LouLou
UKFM Regular
 
Posts: 1009
Joined: Thu Oct 06, 2011 10:40 am

Re: Fibro and pregnancy - can't cope

Postby BuzzyB » Wed May 29, 2013 11:17 am

Yes, I did manage to get myself feeling a bit more positive. Less than 5 weeks until my due date now :bear-dancing: Plus it's hard to stay feeling too down whenever you feel baby kick.
I spent a lovely day with my boyfriends family on Sunday, enjoying the sunshine and had a very nice lunch.
Unfortunately, I've felt like I've had the flu since Monday :banghead: Not really sure how I managed it.
Bluffy the Fibro Sleeper
User avatar
BuzzyB
UKFM Member
 
Posts: 52
Joined: Wed Feb 22, 2012 3:55 pm
Location: Derby, East Midlands

Re: Fibro and pregnancy - can't cope

Postby stodgers » Tue Jun 04, 2013 2:30 am

Sorry you're having such a rough time:-(
I just came.on to do an update on me as not been on in a while and couldn't ignore your post.
I'm 38 + 2 right now and have well and truly had enough. I've also suffered bad spd so with u on that too.
However I have been lucky enough to have understanding midwives and have also been under consultant care. I have taken co-codamol the entire pregnancy and have even gone up in strength since spd worsened. I am the only one who has worried about it but after several reassurances from consultants and my own research I am happy to take it. I've been monitored with extra scans etc and baby is great!
I don't understand why you've not been allowed it. I think if I had had to go through this pregnancy with no pain relief I would also be suffering bad anxiety amd depression!
I would ask the docs to reconsider giving u something!
A big well done for getting this far without it though as I wouldn't have coped!
stodgers
UKFM Member
 
Posts: 122
Joined: Fri Feb 04, 2011 10:45 pm

Re: Fibro and pregnancy - can't cope

Postby LouLou » Tue Jun 04, 2013 10:09 am

Stodgers it's lovely to see you on here again.

My GP told me that it would be much better to be off co codamol completely before trying for a baby which is why I am now cutting down slowly to get ready. I too did lots of research and found like you that there were argumenst for and against it so I guess it's all down to what you personally feel happy with. And you are clearly being very sensible with getting lots of checks done.

You're post has definitely given me something to think about.

Buzzy, the big countdown now you're nearly there! I bet you can't wait to meet him/her. It seems that everyone is pregnant at the moment, lots of ladies I work with, plus whereever I go I seem to spot lots of expectant mummies. But that may be because I'm thinking about it so much myself lately lol I can't wait to be a mummy.

Glad you had a lovely day with your In Laws though. Take Care and keep us posted.
xx
What doesn't kill you will only make you stronger ;-)
User avatar
LouLou
UKFM Regular
 
Posts: 1009
Joined: Thu Oct 06, 2011 10:40 am

Next

Return to Living with Fibromyalgia

Who is online

Users browsing this forum: No registered users and 11 guests