All your fibromyalgia experiences, questions and answers.

Moderators: perseus, *Lisa*, FluppyPuffy


Postby ouchiemama » Sat May 25, 2013 4:19 pm

Hello my name is ouchie mama & i have fibro!!

So I had my appointment with rheumatology, quick few questions, poked about in a few places, leg nearly hit the roof when he did my knee & ankle, said 'yes you have fibro, there is no cure, just trial & error with different meds, here is a booklet, bye'!!!!

:crazy: :crazy: okaaaay nice one cheers doc!!!

So now what???!! My kids are all at school now, was just looking forward to getting a job & meeting new people, maybe even finding a nice man!!!!

I dont really know what im asking here & have looked at similar posts so its pretty normal reaction to feel like this but :pull-hair:

I guess im wondering will i be able to work, what will i be able to do & i want to learn to drive, is it possible?!?!?

Man its no easy getting your head round it, i thought i was prepared for this to be the diagnoses but when he said it....eeeeeekkkk!!

thanks in advance to anyone who replies to yet another rant from me :-D xx
UKFM Member
Posts: 81
Joined: Wed Mar 20, 2013 5:37 pm

Re: diagnosed!

Postby denys » Sat May 25, 2013 5:01 pm

Sometimes the name can help but other times it throws you into chaos. You are only limited by how bad you are affected I personally have had to give up driving as I cant look over my shoulder and therefore dont feel safe.

Some members give up work but others manage to hold down a full time sometimes very physically demanding role. So I would say give yourself some time to decide what it is you would really like to do and then try, if it doesnt work out then at least you can say you gave it a go :fingerscrossed: :fingerscrossed: :fingerscrossed: and :goodluck1:

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
UKFM Veteran
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm

Re: diagnosed!

Postby hanspan » Sat May 25, 2013 5:25 pm

I had the same thing with my diagnosis in April. Questions, poking and a leaflet! My doctor is also unsympathetic and to help me sleep told me to take piriton as I have allergies too (which doesn't help me sleep). I do work full time as a teacher though. It isn't the most physically demanding job but I do struggle to get about at times and have had moments where I can't get my words out but my colleagues are understanding and so are the students. I read a lot of stuff about coping on the Internet, swimming makes me ache all over so I have started to walk a few evenings a week which helps make me feel less lazy. Sometimes I have to lie down as soon as I get in from work to muster up the energy to shower! The regular holidays help too! I find keeping my mind busy stops me dwelling on the pain too. I also swear by my hot water bottle! Still working out ways to better manage this though. You need to make sure you have a good support system in place and know your limits. Just because one day you feel up to doing something strenuous didn't mean you will be fine the next day! In the book I'm reading these are called 'can do but shouldn't do' moments!

Hope you get your head around it soon!
UKFM Newbie
Posts: 2
Joined: Sat May 25, 2013 4:41 pm

Re: diagnosed!

Postby shazq » Sat May 25, 2013 7:23 pm

Hi Ouchie

Sounds a bit like my Rheumy :facepalm:

There are different levels to fibro, some people can have a fairly "normal" life and carry on working with medication where as others are still in pain with meds and depend on wheelchairs/ scooters and some are bed bound.

Sometimes it can take a little while to find the right meds to suit you but dont give up as there are many you can try, you might find you will be sensitive to a lot of the meds, we tend to get the side effects first but they soon pass.

The only reason that would affect you driving would be if your medication made you feel drowsy otherwise you should be be able to drive.

If you find the right med/combo there is no reason why you cant find a job if you are able to get your pain under control.

Here is a link of some meds used to treat fibro-
http://www.nhs.uk/Conditions/Fibromyalg ... tment.aspx

I had to stop working because of pain, plus i could not stand or sit for long or lift heavy items, i could not concentrate on anything for to long. :crazy:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
User avatar
UKFM Veteran
Posts: 11449
Joined: Wed Feb 11, 2009 8:16 pm
Location: wrapped up under my duvet at home.

Re: diagnosed!

Postby Alityke » Sat May 25, 2013 7:36 pm

I'm recently diagnosed too, after symptoms which started during post viral fatigue syndrome in 1997. I also have confirmed inflammatory arthritis and inflammatory bowel disease linked with that self same virus. I have worked full time, in a highly complex job, got promotion, brought up two boys who are now young men and successfully making their own way in the world. I've stayed married to the same man & despite ups and downs we're still happy after 27 years.

The pain of fibro is not a sign of injury, underlying degenerative disease or inflammation. It's more a hypersensitivity to normal stimuli and the latest early research appears to demonstrate that we have a disturbed blood flow to the pain receptors in our brains. Which means whilst it may be agony it doesn't damage us physically.

If it's the same leaflet I was given, read it now and then read it again in a week or two when you've settled more. It really does give excellent advice. Pester your GP for a referral to the nearest Chronic Pain Service which, as a multidisciplinary service, delivers Cognitive Behavioural Therapy, Physio, acupuncture, medical review by a doctor who specialises in pain control, Podiatry & Occupational Therapy. Whilst these services have been cut is some areas, it is worth finding out if there is one you could get to. Your GP may also be able to prescribe Gym membership

Going back to the leaflet, look what you have achieved, you've brought up a family alone! Start walking, the more we do the more we can do. You have access to a computer so look for beginners yoga on YouTube and try some stretches. Never more is the phrase "use it or lose it" more applicable!!!!!!!

Google "Mindfulness" or meditation and try some of those exercises which quieten the mind.

Remember Fibromyalgia is not a disease just a collection of symptoms and as such you can CHOOSE how much you allow it to define your life. Yes flare ups are utterly miserable but they do end. Getting outside in the fresh air and some daylight on your skin will improve your wellbeing through hormone Vitamin D production.

The human race loves sharing "bad news". Remember hearing the horror stories about childbirth when you were first pregnant? This is the same, we post here when we're at our lowest and need to rant in a safe environment. When we're well or at least in less pain we may share the what helped us.

I wish you well xxx
UKFM Member
Posts: 10
Joined: Sat May 04, 2013 3:19 pm

Re: diagnosed!

Postby FluppyPuffy » Sat May 25, 2013 8:25 pm

Glad you've finally got a definite dx Ouchie :cow-wave: :cow-wave: Even when you're pretty much expecting to be told it's FM, it still shakes things up then expects you to just get on with things :facepalm: :facepalm: :facepalm: Give things a little time to settle back down, then you'll hopefully find that bits start to make a little more sense and you can then begin to find your way forward.

As Shaz has already said, there are FMers who are able to work and lead a fairly typical life, just as there are those of us who find ourselves in the position where work unfortunately isn't an option :cry: :cry: :cry: :cry: :cry: Even with this condition tho, it is still possible to have some fun and happiness along the way. It may not be quite what you had dreamt about or even considered pre~FM, but there are still bright times to be had :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing:

Give yourself a chance to find out what your abilities and limits are, then when you've got a better idea about them, start looking into what you might be able to do within your range.

Whilst there are some rather bleak sounding posts on here at times, there are also a good number of ones to make you :lol: :lol: :lol: :lol: :lol: and feel :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: so keep a look out for those glimmers of brightness. They may be a little difficult to spot at first, but as you see more of them, they start shining a little brighter and longer and appearing a little more often :blowkiss: :blowkiss: :blowkiss: :blowkiss:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
User avatar
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Return to Living with Fibromyalgia

Who is online

Users browsing this forum: No registered users and 5 guests