my doctors/hospital

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my doctors/hospital

Postby welshwolverine1969 » Tue Jun 04, 2013 12:21 pm

Living with fibro now seems to be getting harder and harder with me .....the pain is now getting more intense making me unable to do a lot more than before I am currently taking no meds due to not being tolerant of anything.....two doctors at surgery really made me feel a lot better last 2 visits so much so I don't even want to go bk...1st doctor said when I told her my back was in so much pain let alone anything else that she also had a bad back and the 2nd doctor on telling her my pain told me had I thought of going to zumba classes....I know feel there is no point going to my doctors they don't understand what I am going through...had a pain consultant appointment over a month ago they put me on pregabalin 25mg day and night increasing to 50mg after 4 days then 75mg after another 4 days I didn't make it to the first increase it shut my brain down cant even remember much for the three days so came off them as I have to use the car not very often but I cant drive like that if I need to said they would phone back to see how I was doing that was over 6 weeks now so looks like I have been overlooked by hospital now feel as if no on is listening to me am contantly shouting at ppl don't mean too just the pain is too much now moan over thanks for listening....x
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Re: my doctors/hospital

Postby *Lisa* » Tue Jun 04, 2013 1:04 pm

Few things, you could contact the practice manager and explain how you feel or see if theres another GP you can try.

I would phone the hospital and complain and get an appointment booked as soon as they can get you in OR get your GP to contact the hospital with your complaintes.

I hope you manage to get something sorted out as we all need a good GP behind us
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Re: my doctors/hospital

Postby whoami » Tue Jun 04, 2013 2:04 pm

I am sorry to hear of the troubles you are going through. I can feel your pain through the words you write.

The medical system is different there in the UK compaired to here but I would suggest you go back to your GP. Before you go write a letter to him with all your symptoms and exactly how you feel. Keep a copy for yourself. While you are at the Dr's have him read it. Sometimes when we get to the Dr's we are overwhelmed and forget things or tend to ramble on not making sense because we want to get all our problems out. A Dr friend of mine suggested people do this. He said patients get frustrated and because of all the symptoms they have to tell they repeat some and forget others.

How long have you been dealing with fibro? It sounds like you need to be seen by someone who has more experience with patients that have fibro. Have you seen a rheumatologist? They know a bit more about fibro. Maybe you should ask for a referral to a pain clinic. They can offer all types of treatment for chronic pain.

Over the 23 years I have been dealing with fibro I know how frustrating things can get. Some of the meds can take a while to work and can have awful side effects at the start. Also if excercise is suggested, don't assume right away that full aerobics would be expected. Gentle slight movement or light stretching is done. Stretching we do in our everyday life is sometimes suggested, but done a few at a time. Example.....when you put on clothing you are stretching arms, legs etc. They may ask you to stretch your arm out 5 times in a row. Slowly excercise is increased.

I hope you find a treatment that will help you. It is hard but try to find the strength to be positive and have patience x

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Re: my doctors/hospital

Postby FluppyPuffy » Tue Jun 04, 2013 2:42 pm

Sorry to hear your recent experiences with the medical fraternity have been so poor welshwolverine :grouphug: :grouphug: :grouphug: Unfortunately there are still some dinosaurs roaming thru the corridors of the NHS that the last ice age or meteor failed to wipe out. Their numbers are gradually dwindling and more helpful and understanding ones are taking their places, it's just taking time for them to get thru to the patients that need them.

Lisa and whoami have given you some good advice. All I can really add is, if you have completely lost faith in your current surgery and are contemplating finding a different one, try contacting the ones in your area. Ask them if they have any patients with FM or other similar conditions, or if they have a GP that specialises in or has an interest in rheumatology~type conditions, and if they do, see what you would need to do to switch to them.

There are decent GPs out there, unfortunately they can take some finding to get the one that is right for you.
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Re: my doctors/hospital

Postby Salgor » Tue Jun 04, 2013 5:28 pm

I am very lucky because I have a GP who listens (and yes I do jot down what I want her to know, in advance, cos I would always forget something) and understands. She referred me to a Specialist who has a special interest in Fibro/CFS and he did dozens of different tests, blood, urine etc. and finally diagnosed me as having FM and CFS. I have also been referred to the Pain Clinic but have not received an appointment yet.

I would like to think that everybody who suffers pain at the degree most of us do would have the benefit of an understanding, and knowledgable, GP and/or Consultant.

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Re: my doctors/hospital

Postby LouLou » Thu Jun 06, 2013 10:10 am

Hi welshwolverine

I too am so so sorry you are experiencing all these problems with doctors and hospitals. Like Salgor my GP has been great with me during my FM journey and it has made things much easier to cope with. You do need a medical professional who will listen to you and help you with this. Like the others have suggested, I would definitely try and change GP's or even to a different surgery. Some Surgeries have a number of Doctors who specialise in different areas so always worth asking if they have one that deals with Rheumatology/chronic pain etc. That's what my GP deals with and I was referred internally to him by another GP at the same surgery.

I know what you mean about Pregablin, I was on it for about 6 months and hated it. I put on weight and felt so zoned out it scared me so my GP took me of it. There is such a wide range of medications out there you can try - and though you say you have an intolerance to some things you can also get tablets to help settle your stomach which taking meds.

I really hope you are able to find some help soon. It's just unfortunate that FM is still relatively "new" to some profesisonals, though I have been hearing of it out there more and more lately so I'm hoping it's the start of more coverage and understanding.

Take care
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Re: my doctors/hospital

Postby welshwolverine1969 » Tue Sep 17, 2013 1:02 pm

Thanks everyone for your kind words and advice...hey they phoned me back pain nurse and they cant do nowt i have to go bk to pain clinic lol so a waiting game again weather is changing colder and the pain is getting worse lol but hey we soldier on dont we maybe one day they will find something i can take untill then i just plod along xxxx
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