Working full time...........

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Working full time...........

Postby Tempest » Fri Jun 14, 2013 7:30 pm

Just wondering really but would really like to hear experiences from people who are successfully managing to work full time and might be able to share any tips/coping strategies :-D

I was diagnosed about 6 months ago and am really really struggling working full time at the moment. I won't post my whole story but basically I'm a teacher and started in a new post at Easter so don't feel like having any time off would be an option for me but some days it's just so hard to cope and I think it would really boost my spirits to hear stories from people who are successfully managing to work full time so I know it can be done :-D I also feel that actually even if I took months off I'd still go back to work for a day and be as exhausted/in as much pain as I am now so I'm not really sure what I'd gain from it if that makes sense?

My neurology referral has come through for next week and I just feel like I'm pinning every single hope on it. The consultant is meant to be a specialist in diagnosing 'myalgic' conditions and it's a 2 hour initial consult so I'm feeling hopeful. I think I'm still slightly worried about my diagnosis as the rheumatologist I saw was dreadful so I just don't feel that convinced and he kinda lumped me on the 'fibro/ME/CFS/lupus spectrum' :yikes:
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Re: Working full time...........

Postby SchroedingersCat » Fri Jun 14, 2013 8:23 pm

Hiya.

I work full time as an office manager, have an hour+ commute (car, train, walk, bus, walk) each way. Have a boisterous dog, 3 cats, a partner, 2 gardens (3 lawns) and an allotment, plus a hobby organising 4-5 weekend events every year and I go to other events a couple of weekends a year as well.

I was diagnosed by my GP in late 2011, after having symptoms on and off for about 7 years, and badly since February 2010 - the diagnosis was confirmed in early 2012 by a neurologist, a rheumatalogist, and agreed with by the physio who looked me over as well.

I've worked full time for most of this entire period, and managed for the most part to keep up with most things too.

How do I manage? Ibuprofen and paracetamol, wheatbags, and early nights, that's it. I have a fairly mild form as far as I can make out, since I'm still moving around pretty well. I can't give you any ideas on other therapies, drugs, or anything else that might help you cope, but I can tell you that some people with FM are able to live relatively normal lives.
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Re: Working full time...........

Postby Diane64 » Fri Jun 14, 2013 9:09 pm

Hi there..

I was diagnosed with fibro after a year of constant appointments with several concerns spanning over a year, i got an early diagnosis i think for it only taking them a year.

I work full time, on a rota starting at 12.30 pm till 9.30 am the next day unless its a weekend and its 12pm till 1pm the following day, it is a sleepover from 1am to 7am but as sleep goes thats a joke!

on a good day i might just ache from head to toes like some store horse has trampled all over me, on a bad day i might suffer loads of symptoms eg; ibs, palpitations, shakes, numbness in limbs, fibro fog etc and also the aches everywhere.

I just get up and keep going with daily meds and know that what i have is not life threatening and for the main just use humour to get me through the day.

I still manage to do high impact training 2/3 days of the week and regular visits from my two 2yr old granchildren.

Most days i cant be bothered or feel i have no energy to do anything and always suffer badly for the excercising i do from the classes the day before but i would feel really down and disapointed in myself if i just dont do the things at present i still can regardless how awful i feel the next day..I have not yet learnt to say no to my body when its screaming at me to stop!! and to be honest i dont want to learn, but this is just my own experience and there is alot out there far worse than me..

Hope this helps..Di. :-)
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Re: Working full time...........

Postby SharonL42 » Fri Jun 14, 2013 9:19 pm

Hiya,

I too work full time, in fact I've gone from part time to full time since being diagnosed. I work as deputy nurse manager of a respite unit for children with severe learning difficulties & complex health needs. It is a demanding job physically & mentally, with shift work, but I'm loving it. Having given up my career to bring up my children I feel like I've finally got back to where I was before I had them.

I manage with ibuprofen for pain but do find that even though I walke up every day with leg & back pain once I'm busy in work I tend to forget about it....until I stop for a while....then it hurts to get moving again. I use a lot of heat therapy & have a heated under blanket for the bed as well as a heated throw which I snuggle up in & it helps a great deal.

Pacing is the best way to manage my pain. I've learnt the hard way to not do too much on my days off, to plan the housework so I do little & often & to say no to friends etc when I simply can't do things. I refuse to let my fm lose me my dream job.

I hope you manage to find things to help you in your job too

Love Sharon xx

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Re: Working full time...........

Postby Panda58 » Fri Jun 14, 2013 10:31 pm

I work full time in a store, but in an office I am lucky I can pace myself with my job. On my days off I try and do some chores. I also walk my dog twice a day, some days they are long walks some days they are shorter and the dog knows when I am in pain. He will turn around and walk slower with me . You have to do what you feel is right for your body.
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Re: Working full time...........

Postby Tempest » Sat Jun 15, 2013 5:36 pm

Thanks for the replies :-D It's really heartening to know that others are managing to work full time too :-D I'm really enjoying my job and just hate the thought that fibro could jepordise it in any way :cry:

Am really interested to hear that some of you fit in dog walking too - I'm desperate for another dog after ours passed away a couple of years back but (apart from the complication of working full time) I wasn't sure I could cope with the walking at the moment so it's really positive to hear that some of you are managing that too :-D

I also think I need to sort my diet out too as I'm a real sugar addict and do eat a lot of sugary rubbish when I feel tired to give myself a boost. I know it's a viscous circle as then you crash out and each week I try and change what I'm eating but each week so far I've failed :( Plus I think I'm feeling pretty down at the moment on the whole and I'm a real comfort eater so turn to the chocolate :oops:

I've still got everything crossed that the neuro referral this week is going to throw up some kind of miracle :-?
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Re: Working full time...........

Postby Nickcaines » Sun Jun 16, 2013 5:24 pm

Hi I work full time as well in an office job. I have a very understanding boss and i am able to work from home and also do flexi hours so as long as i am within 10 hrs of my 4 weeks hours its ok. This means if i have a bad day i can do shorter hours which has been good. It halpx that i am also a Union shop steward and know my rights around things like resonable adjustment due to surviving a disability. I am also a keen gardener which i find relaxing and have also this year got an allotment that i like to go and potter on as a way of relaxing and unwinding or just having a chat with fellow allotmenters.
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Re: Working full time...........

Postby LouLou » Mon Jun 17, 2013 3:04 pm

Hi Tempest

I work 30 hours a week. I used to do 45-50 hours but obviously had to cut them. I also used to start at 7.30am but pushed it back to 9am as I struggle with the mornings too.

I'm really lucky in that my boss is really understanding and he knows me so well he can tell when I am having a bad day, and does all he can to make sure I don't push myself. I can pretty much come and go as I need to, all he asks is that I let him know where I am so no one worries. Some days I have to take it slower to get ready and therefore get to work a bit later and other days I can't do the full day and need to go home.

Tempest wrote:I also feel that actually even if I took months off I'd still go back to work for a day and be as exhausted/in as much pain as I am now so I'm not really sure what I'd gain from it if that makes sense?


That makes perfect sense to me. FM is there every day and no matter how much rest I get I still have the odd bad day, I still have a lot of pain and I still struggle, so I know what you mean when you say having months off not doing any good. It's important to find a routine that works for you and can fit into your life.

It's taken me a whole year and a half to get myself to where I am. I have a really gentle exercise routine that I do every day Mon-Fri which is more stretching than anything. I have a hot bath first thing in themorning and as soon as I get home. I also try and prepare things ahead like for meals so that I know when I get home I don't have much to do. As soon as I get home that is my rest time and other than cooking the dinner I just get myself ready for the next day. I do a load of washing every other day so I'm not always on the go, and I try to keep to a similar bedtime each night - even on weekends to keep my body into a routine sleep wise.

Some nights I have to go to bed really early as I cant get comfy on the sofa like I can in bed. Luckily my OH is really understanding and is more than happy to watch the footie/play his playstation.

Since Jan 1st this year I have only had a few days off sick and I believe I have been able to manage this because I've found what works for me. Granted I do still have really bad days and set backs but I dust myself off and carry on.

The thing to remember is to pace yourself, if you have a really busy day at work then don't go rushing around after work. Some things can wait and your rest is very important.

Good Luck Tempest hope that helps a bit
xx
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Re: Working full time...........

Postby melrose305 » Thu Jun 20, 2013 5:56 pm

hi all,
ive recently been diagnosed with fibro & im finding it a little difficult getting my head around it :roll: .

i work full time in a post office which on days can be very busy so i come home feeling really exhausted, yesterday i managed the office so had a lot more to do than normal, when i went to get up this morning i felt like i had somebody else' s head on!! i cant explain how it feels, i also feel like i could just sit & cry :( , its my day off & had planned to do some decorating but instead just moped around around.

i have read a few things about peoples symptoms with fibro & feel very lucky by saying i do have good days, some days i feel like ive been ran over with by a double decker bus, but other days i get up & think ooh i dont feel to bad today :-D .

wishing you all lots of good days :lol:

melrose x
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Re: Working full time...........

Postby jo_jo789uk » Tue Jun 25, 2013 5:16 pm

I am 23 years old and I work full time as a Paralegal in a Solicitors firm.

I am also studying along side that to finish my education and qualify as a Solicitor.

It is very hard work, and recently during a flare up, I did question whether I should perhaps consider cutting to part time hours.

The only problem is I'm a very independent person, my mind does not like lounging around, I'm always looking for new education challenges and it would drive me crazy to give up on a job I enjoy.

My employers have been very supportive - I have been able to work from home on the odd occasion, and they always ask me how I am and understand that I sometimes need the odd day off sick.

I think it is very difficult, but if you want to continue working full time you need to make sure you have a good employer because it does make a big difference.
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Re: Working full time...........

Postby snowyowl80 » Thu Jul 11, 2013 4:43 pm

Hi,
I'm a newbie here but am getting a bit desperate for some help and advice!

I'm a nurse, thankfully working 8hr shifts, apart from nights which I am currently doing - they are 10.5hrs. I am 32 and have had fibromyalgia officially for a couple of years, though I had symptoms for may years before that. I have mentioned to the person doing our offduty that I have fibromyalgia and the response I got was that "we all ache at times!!" I am new to my current post but have now been given 2 months of offduty - one where I am working every weekend of the month, and one where I am on nights for the majority of the month. I am getting around 2-3hrs sleep a day after night shifts!! I think this rota may genuinely be payback for mentioning that the previous offduty wasn't very fair.
Fatigue is my main symptom, with pain and brain fog closely following. I love my job but i am beginning to think I should really consider giving it up as i am working, resting, working and have little life at the moment. Obviously this is beginning to make me pretty miserable! One of my senior colleagues has Fibro too but seems to manage really well. I know it affects us all differently but this probably doesn't help me being taken seriously. I'm not even sure I want to involve Occupational Health and my manager at this point, I just want out. I'm not a quitter by nature, just to be clear!
Any tips or advice would be awesome!!
Thank you! xxxxx
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Re: Working full time...........

Postby SharonL42 » Thu Jul 11, 2013 6:05 pm

Hi snowy owl,

I too am a nurse working mainly 7 1/2 shifts and some 13 hr night shifts...which are killers! I'm lucky in that I actually write the rota but do tend to give myself the worst shift patterns so noone will moan!
It seems very unfair for you to have a rota whetr you are working every weekend and then loads of nights. I try to make sure everyone works the same amount of weekend and night shifts.
Is there anyone at work higher up the scale than the person doing the off duty you could speak to about this? If not it may be an idea to speak to occy health or your union rep, if you're a member of one.
I now make sure I take some annual leave every 6 weeks at least, even if it's only a few days to allow me to recover.
Please don't give up without a bit of a fight at least.....I know we work long, hard shifts & some days I come home in so much pain but I know my job is worthwhile & that I make a difference to the lives of those I care for which helps me to carry on.

Good luck Sharon xx

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Re: Working full time...........

Postby denys » Fri Jul 12, 2013 2:17 am

Hi snowyowl and :welcome: to the forum :cow-wave: :cow-wave: :cow-wave: :cow-wave: it seems such a shame to give up something you love doing, would it be possible for you to reduce your hours a little :?: :?: :?: :?: I agree with Sharon regarding your manager and occy health. As for your colleague who has fibro too, as you said we are all affected differently and maybe she is managing to keep hers under control or isn't as badly affected as you :dunno: :dunno: :dunno: :dunno:

I hope you manage to work something out before having to quit :-D :-D :-D
Denys

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