PAIN CLINIC.........1st appt

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PAIN CLINIC.........1st appt

Postby kazisedso » Mon Jun 17, 2013 9:49 pm

Hello all and gentle :grouphug:

Had my first appointment at my local pain clinic today.
Consultant was really lovely,knew all about Fibromyalgia and how it affects the brain and body.
took a brief history and wanted to know what medication i took for the fibromyalgia, so i told her.
She then tried to examine me, but it was very difficult, got a lot of pain in my right hip and back and i couldn't stand the maneuvering, so she stopped.
ordered an x-ray on that right hip and lower back and then proceeded to recommend different medication.
amitriptyline first.... so i said won't that interact with the fluoxetine that i take :shock: :shock:

'oh... you didn't tell me you were taking that ! errr yes it will interact you cant have that'
Anyway due to me being in pain and fibrofog i didnt give her a full list of my meds..... we did get there in the end so she knew exactly what i was already on.. and suggested gabapentin....... i don't want to take anything that will affect my cognitive thinking and produce side effects that have a list as long as my leg..... medication wise i am quite sensitive and usually get side effects so i am very careful about what goes in my body.

Add to that the fact that i have a very long history of depression and anxiety and panic disorder and it probably wouldnt make a very good mix, so i explained to the consultant that i would not take anything that would interfere with how i am mentally.
You know what... she completely got it :-D and said that she was not happy prescribing anything that i wasn't happy about.
Sooooooooo.... i am to trial a tens machine ( haven't had one of them since i was last pregnant... over ten yrs ago!!)and she is writing to my gp to suggest changing my anti-depressant to one that is more Fibro orientated.... didnt mention which one though... so that will be another surprise waiting for me when i visit the gp :crazy: :crazy:
got a follow up phone call in 6 weeks and a follow up appointment in 6 months... so not really that far forward... but a step in the right direction... hopefully.

Karen
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Re: PAIN CLINIC.........1st appt

Postby liz0116 » Mon Jun 17, 2013 10:22 pm

i take amitriptyline and fluoxetine and in quite high doses just makes me even more lethargic hope this helps
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Re: PAIN CLINIC.........1st appt

Postby kazisedso » Mon Jun 17, 2013 10:32 pm

Hi Liz, thanks for that...

I got a big no-no regarding the fluoxetine and amitriptyline.... wonder why :-? :-?

Have been on fluoxetine for years and they suit me really really well so i am very reluctant to mess around with this.

Will mention to gp about amitriptyline and see what get's said, so cheers for letting me know. x :-D
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Re: PAIN CLINIC.........1st appt

Postby elliemay4 » Tue Jun 18, 2013 3:55 am

Hi there, unfortunately my Pain Clinic experiences have been awful! The first time that I went was quite a few yrs ago and the consultant who was an anaesthetist was really unhelpful, thought that the condition was all in my head, you know the type and actually upset me so much at an appt that I refused to go back. At that time there was nobody else on the team, only her. Anyways, last year I was told that the team had increased so I agreed to go back on the condition that I didn't have to see that doctor.

I got to see another doctor who suggested Hydrotherapy. I was really pleased that I was finally being offered treatment other than medication and went along to my Hydro appt. The lady who looked after me there was lovely but when she said that I was booked in for four treatments once a week for the following four weeks I was a little taken aback. Only four! I felt that I benefitted from the Hydro and enjoyed being able to exercise in warm water. I returned to the Pain Clinic and told the doctor that I would like more Hydro and more often than once a wk. She told me that they could only offer four treatments on the NHS. What was the point!

She told me that as I was on the "triple combination" of Venlafaxine, Morphine and Pregabalin, they could do no more for me. I asked her about trigger point injections and other treatments that I had heard about. She said that they would not be worth it as they would only have a short lasting effect on my pain. I could not believe what I was being told and said that even a few days break from pain would be beneficial but she disagreed and promptly discharged me because "they could do nothing more for me"!

Has anyone else had bad experiences at Pain Clinics?
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Re: PAIN CLINIC.........1st appt

Postby bestnan » Tue Jun 18, 2013 6:43 am

My experience of Pain Clinic is vastly different than anyone else who has replied. Mine was for one day a weeks for 8 weeks. We had talking sessions, meditation, and exercise sessions with a one to one at the end of the 8 weeks. We had a follow up session and were supposed to have a further follow up but this didn't happen.

The exercise sessions were awful, not for people with fibro and we had nowhere to go to continue them once the 8 weeks was over, so no progression. There was no one to discuss our medications with, no diversionary techniques and basically no support whatsoever. :pull-hair:

Hugs to everyone
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Re: PAIN CLINIC.........1st appt

Postby whoami » Tue Jun 18, 2013 8:58 am

I have experienced four different pain clinics in 24 years. Each clinic listened tlo me, educated me and treated me. All were excellent.

Why so many....because this was an injury at work the workplace insurance board sent me to their hospital for 8 weeks of treatment, I stayed there mon to fri. They sent me to an independent for other opinions. My GP sent me to 2 others because they both offered different treatment.

I did have added pain and frustration at times while getting treatments and learning new things but it passed and was worth it

I had every type of injections offered. Some of those, extremely painful to get but they did help short term..

Elliemay4...... One of my Dr's, an anaesthesiologist ? who also has fibro gives the injections. He has said to some patients that they are not for everyone with fibro. Medications, where the pain is and amount of pain the patient has determine if it would be a benefit to do them. For somei if they have not what he considers enough pain , their pain would be increased significantly by getting them. Others may be on a high dose of pain medication already and the injections would not help. He stopped giving me one type because the medication I take already is very powerful.

I would suggest pain clinics from my experience. You have to have patience and be willing to try new things een if the first reaction is increased pain.
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Re: PAIN CLINIC.........1st appt

Postby JemmaB88 » Tue Jun 18, 2013 7:01 pm

How do you go about an appointment at a pain clinic? I have not been offered a referral but I think it would be wise.
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Re: PAIN CLINIC.........1st appt

Postby whoami » Tue Jun 18, 2013 7:28 pm

Just mention to your GP or rhuemy that you would like a referral.
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Re: PAIN CLINIC.........1st appt

Postby MichelleJ » Tue Jun 18, 2013 8:50 pm

I love my pain clinic. First I saw a specialist nurse who changed my meds and started me on acupuncture which for me works and I now have it every 6 weeks. She then put me on a pain management course ran by her and others, again I found it to be beneficial. Following this she referred me for hydrotherapy. 2 sessions a week for 4 weeks I think it was. From this I was advised to continue it at local pool which I did and had gone from not tolerating the water at all pre hydro to now being able to swim up to 16 lengths twice a week. If the council pool is too cold check out hotels or gyms as they are often warmer. Also jacuzzis are body temp and I do leg exercises in them. Then finally she referred me to the clinic consultant as she felt I now needed his input as my symptoms had worsened over the 2 yrs I'd been seeing her. He prescribed tapentadol as a painkiller which is really helping me and will see me again if I need to. Lots of friends have also seen the same chap and hes prescribed various things to help them too. I now still see te nurse 6 weekly for my acupuncture.
Dx with fibromyalgia m.e/Cfs and asthma
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