fibro thyroid depression

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fibro thyroid depression

Postby Genie65 » Tue Jul 02, 2013 5:54 pm

Thought this might be of some interest. Just read Sally Bampton's book about depression, and she relates how her thyroid tests came in a little low, nothing to worry about her GP said. Eventually she was given 50mg of thyroxine but when she was admitted to hospital for severe depression the doctor immediately upped her dose to 150mgs. So there is a connection between low thyroid and depression and since fibro also involves thyroid function I think this is a really important connection. Ovbiously GP's don't realise this connection How to educate them.......?!!!
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Re: fibro thyroid depression

Postby cherry-von-bomb » Tue Jul 02, 2013 6:45 pm

Hi there

I'm new to the forum, but thyroid function / depression I have a lot of experience with!

Thyroid function is a funny thing to deal with, especially as its responsible for a lot of things.
The main symptom I had to deal with was severe depression together with severe fatigue, my thyroid problem was diagnosed on an off chance test, and I've been told due to my underactive thyroid I've had similar symptoms to fibro.... Roll on 5 years, countless blood tests and me sticking to my guns, I've finally been diagnosed with fibro together with my depression disorder and underactive thyroid , also having a new doctor helped lots! Some GP's are great and my current ones are wonderful

If you are wondering if thyroid function is having any impact on your overall symptoms you need to ask for a Thyroid Function Test , this will check the TSH / TT4 / FT4 / FT3 hormone levels in your blood
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Re: fibro thyroid depression

Postby whoami » Wed Jul 03, 2013 3:12 am

Symptoms of fibromyalgia happen to be shared by many conditions including thyroid disease. I was diagnosed with fibro long before my thyroid was removed. After the thyroid was removed and on replacement pills, my symptoms are the same.

I would suggest you discuss your concerns with your Dr. if you think you have a thyroid issue. Ask about the reg TSH test and the free t test also. No Dr would give thyroid medication without the backing of blood work. Other than having similar symptoms, I don't think fibro has anything to do with thyroid disease.
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Re: fibro thyroid depression

Postby cocobella » Thu Jul 04, 2013 7:02 pm

I definitely believe there is a big link between thyroid, depression and fibro because the thyroid pretty much controls every cell in your body. As it is all to do with hormones there are also so many fluctuations which can cause the mood swings associated with depression. Also, whether the thyroid is underactive or overactive both can experience symptoms of joint pain. Once that pain cycle has started that is when fibro can come to a head.

That is basically what happened with me. For 2 years I kept being told I had a post viral/M.E illness even though I had glandular fever 6 years before this ?? Lol. Then a goitre began growing in my neck, weight gain, depression, apathy etc began. I was told I was lazy and wasnt helping myself even though inside I knew something wasnt right.

Feb I was then diagnosed with fibro as my pain was just becoming unreal. Then a month later ny parathyroid was abnormal which can cause bone pain. The next month I was severely hypothyroid and put on thyroxine. After months of hypo symptoms my dr kept ignoring and attributing it to fibro. I then had thyroid biopsy on one of the nodules in my goiter and it was benign. Then has another biopsy last month to be told I have cancerous cells in my thyroid. Now the endocrinologist and gp have said they think my fibro has been triggered by all this. Although six months ago I was told it was all benign .

It is very important to keep getting your thyroid bloods tested. I find my main symptoms when I was hypo was my memory and concentration. I couldnt even remember my name some days. A couple of nasties again accused me of just not paying attention but I know my own body.

Sorry I am completely going on about myself but this does highlight the link between thyroid problems and fibro. There is also overlap with symptoms as they can be very similiar.
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Re: fibro thyroid depression

Postby whoami » Thu Jul 04, 2013 7:43 pm

cocobella.......may I ask what they are doing about your thyroid......Mine was removed from cancer.

My levels were completely normal, always...even after cancer was detected. I had fibro for over 20 years before cancer in thyroid. My levels have been normal since I had it removed. My symptoms of fibromyalgia has not changed a bit. In my case, I don't think they are related at all. None of the Dr's, specialists or surgeons have suggested they could be.
Please keep me informed, I am interested how others with thyroid cancer are treated. x
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Re: fibro thyroid depression

Postby cocobella » Thu Jul 04, 2013 9:13 pm

Hi whoami. I am having a full thyroidectomy in a few weeks then radioactive iodine. I also will be getting a full body scan (which hasnt been arranged yet but had been mentioned). Whoami I think u had mentioned your thyroid cancer before to me before I was going for my second thyroid biopsy. I was scared but I think deep down I knew. I knew something wasnt right. The main 'bad' nodule in my neck has gone hard too which was a concern for me.
My endocrinologist did act fast, however there have been many admin errors now with appointments and when my surgery is actually going ahead. The amount of errors in my healthcare at my healthboard that have occurred in the past two years have been ludacris. However it all gets brushed under the rug.

Anyway I am looking forward to getting this thing out my neck. A lot of people with thyroid cancer say they have no symptoms. I have had a lot especially recently. Hoarse voice and tightening in throat and im only in my 20s.

Whoami which type did you have? They have said mine is follicular but cant be sure until the whole thing is out. I just hope I feel better afterwards but I think it will be a long slog.

P.s. sorry for taking over this post.
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Re: fibro thyroid depression

Postby whoami » Thu Jul 04, 2013 10:56 pm

I had a combo, papillary and follicular. The actual surgery is easy, I shouldn't maybe say that because I have had so much.

Has the Dr explained the radiation treatment and how it will be administered and after effects?
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Re: fibro thyroid depression

Postby cocobella » Fri Jul 05, 2013 7:57 pm

Well I take the tablets and since its radioactive iodine the thyroid drinks it up and other cells in the body are untouched. Which is also good if it has spread as these cells are abolished by the iodine. They are querying a lesion in my spine. Going for surgery early august. The after effects arent too bad and i will be allowed home two days later. Apparently the only thing most people notice is tingling in the neck. You are advised not to get pregnant for up to a year afterwards but fertility is supposed to be ok in females but men can be affected. What was your experience? Did you receive RAI? I am not in much shock a lot of people are saying im dealing with it well. I suppose this is because I knew for a long time something wasnt right. I have been told my fibro may never leave me though. Even after all my treatment. Excuse my bad grammar etc I am having a fog night......lol
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Re: fibro thyroid depression

Postby whoami » Sun Jul 07, 2013 3:04 am

I think I knew it was cancer and that was why I procrastinated on going and mentioning it to the Dr for so long. .
As far as the treatment after surgery..... I had the radio active iodine, drank it a few weeks after surgery. I then was in quarantine for 2 weeks, because of the large dose I was radioactive and could transfer it to others. In fact I carried acard in case I had to go through airports or any radiation detected areas for a year. I would set of an alarm, LOL
I had to go on an iodine free diet for two weeks. I had 2 injections of thyrogen, very expensive. Then I had the full body scan. Any left over thyroid cancer cells that were not killed off by the radiation were detected. If they show up, treatment is different with everyone.

I found that my nails have never been the same since the treatment and my hair became brittle and broke off. I also found my hair thinned out, because of the radiation.

Some people think that because you may only have one treatment then it wasn't a big issue. Depending on your treatment...mine, I was given a very large dose. I have had follow up treatments.
Please let me know how you get on, or if I can be of help.

Thyroid cancer has been considered a good cancer to get, HA! It has become the most increased cancer in women. Because of my history, the chances of getting colon, breast or bone cancer is very high. Eh! Fibromyalgia doesn't rule my life and I will be damned if cancer will.

I will be thinking of you, fibro and thyroid cancer share the butterfly as it's mascott. I will purchase a butterfly to represent your journey at our local butterfly conservatory. Xx.
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Re: fibro thyroid depression

Postby cocobella » Sun Jul 07, 2013 10:06 am

Awww thank you that is truly lovely :-) and I fully appreciate your support. I was thinking of making my own butterfly badge as I am quite crafty.

Wow so you had a big dose of radiation. Nowadays they give you one pill and your only in for two days. Then told to not hang around the same people for too long aftefwards for a few weeks as you are still mildly radioactive. One thing I must ask the doc is about my dogs. I am with them all the time.

Thank u for your support and I will definitely be asking you questions lol. Did you experience night sweats before you had your surgery? I have had them terrible for months.

Xxx
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Re: fibro thyroid depression

Postby whoami » Mon Jul 08, 2013 4:01 am

Is the radiation in the pill? Then are you in Quarantine at the hospital? The first treatment I had I had to drink...it was just like stale water. You have to go into a room that has a thick wall made of ? and the liquid is in this very heavy container. Then I was in isolation. When I went home i could not sleep in the same room as my hubby for 2 weeks and not use the same kitchen items. Also I had to completely wash the bathroom all of it if I used the toilet or showered. I had to stay 6 ft away from him for those 2 weeks also. I could not leave the house. Do you have to take the thyrogen needles before your body scan or go off meds for a few weeks first?
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Re: fibro thyroid depression

Postby cocobella » Mon Jul 08, 2013 4:07 pm

Aww 6 ft away that would have been difficult. Your story sounds just like my dads. He had to drink it and was in quarantine for 2 weeks. He had a complete thyroidectomy too but his was all benign. Who knows if it would have turned sinister but I have been told I have probably inherited this from him lol. The radioactive iodine treatment is completely different now. Basically you take one pill. Your confined in hospital to a special room for two days then your allowed home. No thyrogen needles before, 3 weeks of no thyroxine. Which will be HELL for me. When I was first hypo my fibro was at its worst. I couldnt even communicate beyond 2pm in the afternoons.

Do you still have to go for body scans every now and again? Also, what is your scar like now? I am going to be a bit paranoid about mine as I am quite vanity prone haha.

I was annoyed earlier. My work has blocked this site now. Id usually come on in work at times where im not busy to see whats new. Oh well.... lol
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Re: fibro thyroid depression

Postby whoami » Mon Jul 08, 2013 4:20 pm

How long ago was your Dad''s treatment. If he was begnign ...why the radiation? Mine was almost three years ago. I go to one of the major hospitals in Canada, one of few who treat thyroid cancer. I have never heard of the pill, LOL I guess treatment for everyone is different.

I go for a full scan every 6 months. My scar is almost undetectable. The surgeon who did it is great. I was told it depends on the surgeon how big it will be. Mine was done with a very small incision about 2 1/2 inches. I have had over 25 surgeries, usually they all break open and infect, not this one. This same incision was opened up again a week after the first. The surgeon first thought he could remove only half because most of the cancer was on one side ( noticeable tumors) but then the other side was full of microscopic cancer cells.
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Re: fibro thyroid depression

Postby cocobella » Sat Jul 13, 2013 2:50 pm

His treatment was approx 30 years ago, early 80s. The reason he received the radiation was because when males under the age of 20 have 'giant (lol) goitres' that are full of nodules etc it is best to have the whole lot removed and I think back then they just wanted to make sure. By doing this though, it has kind of affected us as we never knew if it would have turned cancerous and this could be a marker that this is a hereditary problem.

Wow 25 surgeries!!! that is mad, you must be a pro at it!! I am glad your scar is unnoticeable, my incision will be 12cm's so I am told. Surgery coming up in 4 weeks so doing my best to get my weight down as I am 2 stone overweight, have asthma and don't want any complications :-( :-(. Oh my, I paint such a delightful picture of myself.
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