Question about diagnosis

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Question about diagnosis

Postby Bunnythecat » Fri Jul 05, 2013 6:22 am

Hello, sorry if daft question but what type of specialist would diagnose FM? Looking on here it seems some people have seen Neuros and some Rheumos. I only ask because I have a neuro apt on Monday for 2nd opinion on brain scan and symptoms possibly MS related, but given my family history I fell it must be FM but don't know if the neuro could dx or would refer me onto yet another person.

Also, in your opinions has FM been fairly easy to get diagnosed or are people spending a lot of time in limbo like undiagnosed MS suffers?

Just vey anxious to get whatever I have diagnosed and get some treatment, it's really messing with my life and i'm scared for my job, marriage, future :(

Thanks x
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Re: Question about diagnosis

Postby Flash » Fri Jul 05, 2013 8:28 am

Hi it seems to differ with different people and I think personal opinions of doctors and specialists play a part too.
I was DXed by a rheumatologist but the neuro I saw about my neck doesn't believe in F/M. Some specialists are very helpful and supportive about F/M while others just won't accept it. It seems to be the luck of the draw. This does make it hard for some to get diagnosed, I had F/M for years before it was diagnosed, others get DXed just months after symptoms start.

I hope you get sorted out real soon and what ever your problem, it is treated seriously and swiftly. Not knowing is the worse part.

Take care. X
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Re: Question about diagnosis

Postby SaraFibro » Fri Jul 05, 2013 9:00 am

I had about 2 years of investigations before dx including mri scans and ct scans by neuro to rule out MS. He concluded that it wasn't MS and then the rheumatologist confirmed fibro in 2011. I think they have to be careful before conclusion of fibro / ms and that's why its important to see both a rhuemy and neuro as well as tests such as bloods, electro-nerve conductive tests, physio (to see how your body reacts to manipulation etc) - its like a puzzle so they have to put all the peices together but its worth telling them of any family history of other autoimmune diseases like arthritis etc.

Hope you get a difinitive answer soon :)
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Re: Question about diagnosis

Postby Henri » Fri Jul 05, 2013 9:49 am

I'm in same vote as you had all ms test which are clear so neuro are now referring to rumy, I have symptoms of ms but tests are clear, good luck and hope u get answers soon xx
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Re: Question about diagnosis

Postby whoami » Fri Jul 05, 2013 1:34 pm

Hi! Your GP may be able to diagnose you. Mine did. I saw a rhuemy, neurosurgeon, neurologist, anesthesiologist and 2 other specialists in the same week. They all gave same diagnosis without each other knowing.

Expect the worst in life you won't be disapointed and you'll be prepared!
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Re: Question about diagnosis

Postby FluppyPuffy » Fri Jul 05, 2013 2:58 pm

Not a daft question at all :mrgreen: :mrgreen: :mrgreen: :mrgreen:

It usually tends to be a rheumatologist that dx's FM as the condition falls under their remit. However, depending on things like areas, who deals with which type of conditions, interests and specialities, dx's can be made/given by other specialists such as neuro~bods. Plus there are an increasing number of GPs who, after running whatever tests, scans etc they feel are needed/appropriate, are dx~ing FM as well.

The ease of getting a dx varies on a number of factors. If you see a healthcare professional who is sceptical about the existence of FM as an actual condition, then it can make the process very long and drawn~out compared to seeing someone who accepts it as a credible dx and problem.

Also, with the diverse range of symptoms FM has, as well as sharing them with a number of other conditions, as well as FM not being detectable in tests, scans etc, this can add to the problems involved in getting some answers. Dx~ing FM tends to be done more on a process of elimination with all other possibilities needing to be investigated and ruled out before the final dx is made.

And another thing to consider is, that with the range of symptoms FM has, it is easy for things to present themselves as something completely different which can then lead to something else initially being taken as what is wrong. It's only when things like other symptoms start to appear, and/or response to treatments for the initially dx'd condition doesn't match with with what would be expected for someone suffering with it to experience that more questions start being asked, more tests and things are run and ultimately the best and most suitable answer is given.
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Re: Question about diagnosis

Postby Diane64 » Fri Jul 05, 2013 5:44 pm

Hi there,
I received my diagnosis after approx a year of constantly going back and forth to the doctors with different ailments, i eventually had enough and wrote down a long list of what i have been suffering from for the year, some i had went to my gp with some i felt wasnt worth visiting him for, but on adding it all up it made sense of the eventual diagnosis.

My Gp wrote for a referral to the rhuematologist but they just wrote back advising they were happy to give me the diagnosis without needing to see me, blood tests also came back normal which is to be expected with fibro.

My daughter in law was diagnosed with ms a few years ago, this was done through an mri and lumbar puncture, it showed she had scarring of the central nervous system, there was no wasting of time once these test confirmed it for her, but took her about a year also for this testing and diagnosis
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