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The UKFibromyalgia Forums • View topic - The Spoon Theory
Page 2 of 5

PostPosted: Thu Mar 12, 2009 7:20 pm
by LinzWorld
Ooooh, who are you on there? :D (Linz)

PostPosted: Thu Mar 12, 2009 9:05 pm
by princess
I have just read the spoon theory - she got it just about right eh - except some of us wake up with no spoons!!!!!! Or maybe just 3 or 2.
But shame to be so young and ill.
Hope she gets better soon, or a bit better if thats all that happens.
princess


I have tried to explain the same only i use a battery fully charged for normal and ours for 1/10th or somewhat like that. Same idea

princess

PostPosted: Fri Mar 13, 2009 9:34 am
by LinzWorld
Unfotunately, Christine's Lupus took a turn for the worse after having her first baby and she's struggling. It makes me realise how lucky I am to only have Fibro. At least I don't have to deal with hospital stays, IV steroids, chemo and the possibility of dying young.

PostPosted: Fri Mar 13, 2009 9:38 am
by samantha louise
very true linz, makes you greatful for what you have

Re: The Spoon Theory

PostPosted: Wed May 06, 2009 2:19 pm
by zadok238
I hope she or her friend didn't get done for taking cutlery(joke) at the end of that night. Great story but I'm going to replace spoons with money. My self-absorbed friends will understand that better!

Re: The Spoon Theory

PostPosted: Wed May 06, 2009 2:21 pm
by zadok238
I don't know if that really matters- just spreading a little cheer through that FM fog.

bw

Z

Re: The Spoon Theory

PostPosted: Fri Jun 19, 2009 6:27 pm
by Gracie
Just read the spoon theory and it actually made me cry. People have no idea and because they cant see anything on the outside they have nto a clue what it feels like on the inside.

Me and my OH get it all the time when we go to the supermardet and park in a disavled bay they look at us as if to say why are two young people parking there it isnt until they see me stumble out of the car and then try mu best to get OH wheelchair out of the car the look on their faces is pricless adn thin there are others who are just plain rude and have no idea what its like for either of us you can see my OH has something wrong woth him but not me and i swear wwe get some strange looks they look at him as if he shouldnt even be out of the house its like they have never seen someone in a wheelchair before it can be quitet funny.

As usual i have rambled on but i will def be showing this to family and friends and hope they understand a we bit better.
:hugs:

Re: The Spoon Theory

PostPosted: Fri Jul 10, 2009 11:02 am
by abelarde
Love it! This is really a great way to explain to layman certain complicated ailments. I wish my friends, supervisors and colleagues can understand the pain (FMS, sadly we look normal to others most of the time) that I am going through too.

P/S: I work in a healthcare company and still ppl around me do not understand my problem....so sad;-(

Re: The Spoon Theory

PostPosted: Wed Jul 22, 2009 11:34 am
by Donna Day
I found the spoon theory very helpfull in explaining fibro but there are some people who will never understand as they don't want to understand

Re: The Spoon Theory

PostPosted: Wed Aug 12, 2009 2:03 pm
by miajane
I thought this was a great and I've shown it to my kids. It's not that I want to burden them with my troubles but that they have to understand why I'm no longer the supermum who used to do everything.

Being a single mum I used to work 6 days a week, do all the housework, had my own part-time craft business and I was studying for a degree with the OU. So they wonder sometimes why I can hardly hold a cup now and need some sort of explanation.

I added a bit at the end to explain the pain, some of the spoons are sharp we just don't know which ones until we use them. These sharp spoons hurt, some more than others and they can make us drop some of precious spoons that we were holding onto. The sharp ones often cause us to have a lot fewer spoons the next day, with no way of knowing if there are more sharp ones among them.

Hope that makes sense, does it help to explain the pain to you? Bad fibro-fog at the moment have to keep re-reading what I've written cos I keep forgetting :?
Maria xx

Re: The Spoon Theory

PostPosted: Tue Nov 10, 2009 1:22 pm
by Hedgewitch
Wow!

The Spoon Theory is the best description I have EVER read of how it feels to live with Fibromyalgia! People always say to me 'but you look so well, how can you be ill?' And I say to them 'its simple, on my bad days I stay at home, so you only ever see me on good days.'

I've hidden my Fibromyalgia for years, like it was some guilty secret and I've preferred people to think that I'm unreliable rather than think I'm ill. Now I know that's daft, but I've been mourning the loss of the dynamic-me and have never been able to explain what has caused it -until now.

The Spoon Theory will be very useful to me from now on. I feel strangely liberated just knowing I have it in my arsenal. I can show people that I'm not actually lazy or unreliable, I'm ill and here's how I feel.

Thank you.

Re: The Spoon Theory

PostPosted: Wed Nov 11, 2009 6:26 pm
by BelindaLu
Amazing!! I have been living with this condition now for a few years but only just been diagnosed with FM. It's good to know others understand and good to know I'm not going insane.

I can use the spoons theory to explain to my family and friends that they may not be able to see the condition but it is real, we do suffer and it's not all in my head!!

I even have to remind my own body that I can't do the things I used to, that so much can be too much but easy tomorrow or next week. If I need reminding then why not let others know how I feel. I don't want sympathy just understanding. I refuse to stop for the rest of my life but I may have to slow down or take a break or stop altogether if enough has become enough and continue another day.

Thank you :woot:

Re: The Spoon Theory

PostPosted: Wed Nov 11, 2009 7:02 pm
by shazq
:welcome: to the forum Belinda. :wave:

Re: The Spoon Theory

PostPosted: Thu Jan 21, 2010 11:26 pm
by Countess Heather
Hello everybody, I am new to the forum.
I found the `spoons' interesting as a metaphor for explainig what it is like to be challenged by the limitations fybro places on all of us. Julie C I do understand your point about burdenning others with `information overload' but was'nt the point of the artical to try to explain to someone` who wanted to know ' what it realy feels like to live with chronic pain,lack of energy and limited choices?My heart goes out to you Julie that you have both RA and Fibro and Ametryptaline does nothing for me either other than make the IBS worse so ive stopped taking this untill I see my GP. Go back and ask your RA nurse/team for alternatives to that and pain releif ? it sounds like you need a review on all your meds. But I could be making an assumption here and you could be realy unfortunate, having done the rounds already?
God knows there are times when we all just get sick of talking or thinking of being sick, of seeing grey clouds stretched out befor us. There are times when it may not feel apropriate to vocalise or `bang-on' about our condtion, but also, in order to obtain parity, why deny ourselves and others a voice when we have a day-to-day battle to try to get the medics to take on board that we have a right to be taken seriously, that this is real and connected to the central nervous system and is not a `psychosamatic condition' needing psychotherapy, diets, vitamins, snake oil, sackcloth and ashes?
Yes, the bottom line is that we all have to `get on' with our lives,focusing on the positive when and where we can find this in the small, little ways such as being able to take the dogs for a walk and getting a paper when you feel like `death warmed up'! :wave: Retaining a sence of Humour is vital, `meat and drink to the soul'. :wave:

Re: The Spoon Theory

PostPosted: Sat Jan 23, 2010 12:46 pm
by Sasha
wow that is such a good idea to help people understand what it is like :clap: ! My spoons get wasted getting out of bed it takes such a long time.