fed up!!!!

All your fibromyalgia experiences, questions and answers.

Moderators: perseus, *Lisa*, FluppyPuffy

fed up!!!!

Postby angie68 » Sat Aug 24, 2013 8:04 pm

:( :( ...hellooo everyone why do we have to live with this syndrome...im getting realy fed up, i went to the drs and she said i need rest!! i had a 10day break from work, in which i did feel better, but i need to work for money :-( its getting harder harder each day for me and i really dont know what to do with myself.:-(..every night i think "oooo i will do this tomorrow with my son or do this", i get up and i cant be bothered to do anything, its really getting me down,

i dropped 8 hours at work which at the time was better but my pains are getting worse has each day passing, im thinking shall i drop another 4 hours, see how i go, i cant afford to stop working, my life now is about going to work and coming home exhausted and doing nothing..life is for living not been lazy and no fault of our own..im sat ere now typing ive got 3 times and moved cos im so uncomfortable, my siacetic nerve is playing up, my stomach is anxious for something i just want to cry cry cry and im keeping it in(which is not good i know )..where tomorrow i might feel a bit better :-) hopefully...

i want to do allsorts in life before its my time to go but have no energy..my dr said asked me if i want to go to a counselor, why they cant help can they ??? you just offload to them, where as im doing it now to you all..which im really sorry for but sometimes we need a refresh in our minds of people who knows what we going through...

no matter how i sit, lay walk ive still got pain dosent move at all, ive tried tramodol but i was riving my skin, so back to codeine, 75mg amptripyline but im like a zombie on a morning..im sorry for off loading but is there any other tablets that dosent make ye feel like a zombie.. :( :scream-1: :cry: ..thank you all xx
Last edited by FluppyPuffy on Sat Aug 24, 2013 9:19 pm, edited 1 time in total.
Reason: Split into smaller paragraphs for easier reading.
angie68
UKFM Member
 
Posts: 79
Joined: Mon Aug 27, 2012 4:03 pm

Re: fed up!!!!

Postby denys » Sat Aug 24, 2013 8:12 pm

Going to a counsellor is not all about just off loading its more about being shown new coping mechanisms and how to rid the guilt etc. Don't say no to it, give it a go. You may get nothing form it but the chances are it may help even if its just a little, (every little bit may end up being a lot) I would go back to your doc and explain again how you are feeling, then take anything on offer. How else are you going to find the one thing that does a lot :-D :-D :-D
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
denys
UKFM Veteran
 
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm

Re: fed up!!!!

Postby lolo73 » Sat Aug 24, 2013 8:19 pm

I totally get where you are coming from because you discribe how I feel. I am constantly tired and I can't see any light at the end of the tunnel. I have no energy for my children and husband, I hurt constantly and I am starting to get really down about it. I have a stable regime with my meds, I too couldn't tolerate Amitriptyline and that was only 10mgs. I wish this horrible illness was curable :(
lolo73
UKFM Member
 
Posts: 156
Joined: Tue Dec 18, 2012 8:49 pm

Re: fed up!!!!

Postby angie68 » Sat Aug 24, 2013 8:27 pm

ooo lola, its so so hard...i loose my patience also so when i can feel it coming i have to say im just taking 5 mins chill and go in a room on my own take deep breaths, i have so much energy in my mind if you know what i mean i havent finished living, i want to do alsorts and smile smile but it drags us down...i really love my job and thank god its not physical cos id be permamntely off sick..but im wondering how long can i work for, its getting harder each day and i love it and i dont want to pack in work im only mid 40s, i really feel for you i do and symapathsie with everyone who has this, but then i look eeee bless look at that person so poorly!!!!.... :( sorry for spelling mistakes also my spelling is getting rather terrible!
angie68
UKFM Member
 
Posts: 79
Joined: Mon Aug 27, 2012 4:03 pm

Re: fed up!!!!

Postby Dragonlord » Sat Aug 24, 2013 8:38 pm

I think we all know where you are coming from. I have been in a bit of a flare for last few days. I can not get comfortable and have spent nearly all day stood up playing farmville, mind numbing, but a passive click click click that keeps me functional and able to talk and drink etc. If I wasn't clicking on farmville, I would have fallen asleep somewhere.
I have got a TENs machine sending electrical pulses up my back, not painful, but a distraction from the constant pain. Cannot dose up with my drug boost for flares, Oramorph, as I am fulfilling a fathers job shortly of Taxi-ing my eldest to the cinema with his girlfriend. I can still do something, not much, but beggars can not be choosers.
I feel a let down as a parent and a husband - and that's me talking even though I'm on 40mg of Citalopram!!
Pain management is all we are told, yet I too am fed up and "Sick and Tired" of feeling sick and tired. :sleep:
Dragonlord
UKFM Newbie
 
Posts: 9
Joined: Thu Dec 29, 2011 9:36 pm

Re: fed up!!!!

Postby angie68 » Sat Aug 24, 2013 8:47 pm

ooo dragonlord, i can see where you coming from...im trying something to take me mind off this pain, when i sit stand etc, and its there :( :yikes: ggrrrrrr im trying to be postive today but getting nowhere maybe tomorrow more postive for me, but if think ooo i feel ok today, do a little and wham the sunburn feeling and more pain inflicts on me, so where does it end ?????? ggrrrr eeeeee ive had a big whinge tonight sorry folks x
angie68
UKFM Member
 
Posts: 79
Joined: Mon Aug 27, 2012 4:03 pm

Re: fed up!!!!

Postby Dragonlord » Sat Aug 24, 2013 8:59 pm

Moan away Angie, this is a safe environment, where we can all empathise. I am still holding down my job, yet would retire in a second if I could, alas, still a tad too young (44) and too many bills still to pay. Distraction type therapies such as my own click click on farmville are one of the best coping strategies that I have found so far. One coping skills course I attended many years ago under my pain clinic described the Cheque book effect. It stressed to "pace" everything that you do, because if you do too much one day because you feel able to at the time, then like the cheque book, you will still have to pay the next day. Last week I spent 5 minutes playing with my brothers dog - then WHAM - the next day I was a cripple on a stick.
Dragonlord
UKFM Newbie
 
Posts: 9
Joined: Thu Dec 29, 2011 9:36 pm

Re: fed up!!!!

Postby angie68 » Sat Aug 24, 2013 9:03 pm

same ere dragonlord how long will we work for i love my job and not many people can say that can they..and i love the cheque book thing, i will remember that see ive come on ere and got some advice, but i want to walk excercise do all sorts but have no energy, i normaly have a big fat smile on me always but lately nope...i guess 1 day at a time see what happens eh ??? thank you x :-)
angie68
UKFM Member
 
Posts: 79
Joined: Mon Aug 27, 2012 4:03 pm

Re: fed up!!!!

Postby FluppyPuffy » Sat Aug 24, 2013 9:43 pm

WRT to feeling like a zombie, it is something that Amitriptyline is known to cause. There is a sister med of Amitriptyline, called Nortriptyline. It works in pretty much the same way but is said to be better tolerated and have fewer side effects. Usually it is possible to switch straight from one to the other, so it might be worth talking to your GP about it's suitability for you to swap to.

Have you spoken your employer about how your symptoms and changing/intensifying??? If not, it might be worth doing so as there may be additional things they can do/provide you with to help make things a little more comfortable.

Unfortunately we all have times where things drag us down and make us feel fed up. Over the 13+ years I've been part of the club I've had so many of these times, tbh I've lost count of them.

There are techniques that can be used to try and help manage these times which can help make things that bit more bearable so you don't drop down as far again. As Denys has said, seeing a counsellor and going thru various things to devise techniques suitable for you can all add a little to your toolkit for coping and living with FM.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: fed up!!!!

Postby angie68 » Sat Aug 24, 2013 10:17 pm

awww fluffy and all of you for these mmessages made me think different, ive told employer but dont think they understand what actualy fibro is..i have dropped hours and felt a bit better, i cant see what and why me flare up has caused all this sadness think its cos im fed up of having pain like all use, and fluffy i will doa double appt at drs and ask about nortripyline or some word like that haha..thanks again
angie68
UKFM Member
 
Posts: 79
Joined: Mon Aug 27, 2012 4:03 pm

Re: fed up!!!!

Postby Iceskatemum » Sat Aug 24, 2013 10:53 pm

Hi Folks 'fraid I've also joined the Fed Up club. we're getting new members ever hour at this rate

I have had a really busy summer with visitors coming to stay and then us having to "entertain" them . The first visitor and I managed to pace things together beautifully but then she was here for longer so there was no need to do things at break neck speed.
My second set of visitors has been more intense and as they are staying with other relatives for a few days my body just seems to have collapsed.
Even to keep up with what's happeneing over the last few weeks I have had to "mess ie increase things slightly " with my pain meds . I have rested when I could and entertained when necessary although there have been times when I have had to bow out of things as too tired. This has not always gone down well with folk but hey ho you get what you see.

I have been in bed since Wed night, I have had awful pain all over but more so in my right side and both legs . I have taken warm baths , all my meds etc etc I am so sore but am being left on my own as I really don't think my family know how to cope with me like this . I get more response and concern from a computer screen than people who are less than 5 feet away through a wall .

Sorry for the rant but sometimes letting go of all that built up emotion does help in a flare :)
Iceskatemum
UKFM Regular
 
Posts: 1599
Joined: Thu Jul 12, 2012 4:20 pm

Re: fed up!!!!

Postby Lyndesay » Sun Aug 25, 2013 1:31 am

I feel exactly the same! So fed up, its unbelievable. Can't plan anything as God knows what state I will be in! I have Diabetes too and can honestly say I would rather have it than this horrible illness. Thought Diabetes was bad but nothing compares to this. Also feel that I am so alone as none of my family and friends understand the pain and the effect it has. Gentle hugs to everyone and hope some day there will be comfort for us all. :-?
Lyndesay
UKFM Newbie
 
Posts: 6
Joined: Mon Aug 05, 2013 10:37 pm

Re: fed up!!!!

Postby mrslucy » Sun Aug 25, 2013 9:33 am

Hello fellow FM people.

When I was 'ready' to be referred (in denial for a long time) I took up my GP's offer to go to a Rheumatologist, who for me, was absolutely marvellous. I was immediately put on meds., which thank goodness have been very positive for me (gabapentin with amytrip. first but now nortrip) I was offered a place in a support group organised by the OH dept at the hospital, but was too far for me to travel on a weekly basis, also hydrotheraphy which I did go to for awhile. I would urge all FM suffers to ask their GP to be referred to a specialist Rheumatologist who is the best person to be able to: 1) carry out a comprehensive examination 2) prescribe drugs (I got the change from amytrip to nortrip through the hospital as I was told nortip too expensive by my health centre!) 3) could help by supporting a claim for DLA now called ? I get the mobility component, haven't claimed the care one (yet!!!) at times I need my hubby to drive for me as it is just too much to be even be bothered to go out let alone drive a car!
Although I haven't had counselling for FM I have had it in the past & if you manage to get a good one it is really useful. They are able to listen impartially and whilst being empathetic are able to be unemotional about it unlike family & friends. My hubby finds it so difficult to see me in such pain & discomfort, he just wants to see me 'well & pain free', he tries to help, but sometimes is more a hinder & I also get very short tempered as I am sure you all do!
Chin up folks, tomorrow might be a better day!
ps I can really recommend something called Relax Kids (www.relaxkids.co.uk) Even though they are designed for children / young people they are just amazing. I have several cd's from the work I was in (specialist education) & listen to the various cd's a lot. I think you can listen to demo's on the website, but can thoroughly recommend!
mrslucy
UKFM Newbie
 
Posts: 7
Joined: Tue Jul 02, 2013 1:36 pm

Re: fed up!!!!

Postby angie68 » Sun Aug 25, 2013 11:15 am

lost my last post!!!!! i guess im still the same FED UP!!! i planned to go out today with hubby now hes calling me a ratty a&%$ for not going i cannot be bothered at all!! so im the miserable one, dont think he understands this, but then he says oooo its ok when you want to do something, cant win !!..i have no energy at all, my siacteic nerve has been playing up for 3 weeks now just knorring knorring at me and affecting me big time at the moment...i guess back to the drs i go i need sorting big time, its depressing me so much, and i want to do my bucket list before my time is up :( :( ...i know a lot of this is our minds if we feel the pain its there if we busy its not there as much if you get me...and mrs lucy im in the same job as you along the lines of it and i love it love it, but it upsets me how will i be doing this ???????.. :(
angie68
UKFM Member
 
Posts: 79
Joined: Mon Aug 27, 2012 4:03 pm


Return to Living with Fibromyalgia

Who is online

Users browsing this forum: No registered users and 5 guests

cron