I thought it *was* the end!!

All your fibromyalgia experiences, questions and answers.

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I thought it *was* the end!!

Postby Tel1 » Mon Aug 26, 2013 10:16 pm

I was just sat down talking with someone 2 weeks ago, didn't feel stressed, actually I felt rather calm for a change:))
Then all of a sudden, it was a though I was going into another world, it was like as though my body was shutting down...
and on top of that it was as though I had a plastic bag put over my head and I couldn't get air... it was terrible.. I have
had what is known as a panic attack before, but this one was more intense and it felt like as though I was really going
on through to the other side

....long story short I was taken to the doctors who saw me straight away, they got a wheelchair
for me and the doctor checked my heart, chest, pulse, blood pressure etc and said I was OK... but could obviously see that
I wasn't alright in terms of someone actually looking and feeling aright... Since then on several occasions especially at night
my feet have felt like they are on fire, my arms feel heavy and my hands and fingers keep going numb especially in bed.
Then for several days after, I don't get any of it

....On my health records it says... Fibromyalgia in the setting of Anxiety !!!
so I asked the Rheumatologist about that, and I asked him does Fibro cause Anxiety? or does Anxiety cause Fibro, that he
couldn't answer.... So I then said to him, well if you can't answer that, why have you put on my diagnosis that I have
Fibromyalgia in the setting of Anxiety?? He just said, that although I have multiple symptoms of aching arms, hands, feeling
weak, tiredness etc, he said that Fibro, can do so many things to your body.. I said I know that....but why did you put that I
have anxiety:? is that a main cause....??

I don't really think a lot of these GPs and Specialists really know how to deal with
people who have got Fibromyalgia, it's like I have since read that Fibro is the irritable everything!! :yikes: but that can't be
true, surely it can't.. as everything we have wrong with us can't just be to do with Fibro, or can it? either way I a now very
worried about the future as if I have to live like this for the rest of my life, that is a daunting thought. :too-upset:
Last edited by FluppyPuffy on Mon Aug 26, 2013 10:45 pm, edited 1 time in total.
Reason: Split into small paragraphs for easier reading.
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Re: I thought it *was* the end!!

Postby Miss Painful » Mon Aug 26, 2013 10:32 pm

I am so sorry to be the bearer of bad new, but I have had Fibromyalgia for 12 years and it includes a host of symptons, I had a heart attack three years ago then my gullet went into spasm and I could not even drink water, I had a camera put down my gullet but they could not find anything, I said it is because of a heart attack the Fibro kicked in, I now have tinnittis, asthma all due to fibro also Fibro Fog almost like dementia, depression, splitting nails, acute tiredness, almost pass out. The weather affects it, some smells, cannot use furniture polish, troubling climbing stairs, falls.

Gentle Hugs :cry:
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Re: I thought it *was* the end!!

Postby *Lisa* » Tue Aug 27, 2013 11:24 am

Anxiety can be a cause of fibro and also fibro can cause anxiety :crazy:

Firstly have you been on any new medications? or have meds be upped? sometimes medication can cause anxiety whilst the body gets used to the medication. I remember being put on the amitriptylines which caused horid anxiety attacks but so much so it out weighed the benefits so came off them.

Anxiety as we know can be caused by a build up of stress and panic. I feel in my case that anxiety and stress was the cause of my fibro. I started having panic attacks at 14! i always felt my body was tense and always worrying. I feel this led to onset of fibro as the body can only take so much tension before it breaks down.

In other cases anxiety can be triggered by the fibro as the pain can be so intense were always aware of the symptoms/bodily sensations and this can cause a panic especially as fibro can give out some terrifying pain.

Around all of this some of us have to change our way of life / end up with limited life and this causes stress / anxiety also trying to work with the pressure of the pain or fughting for benefits not knowing if you can survive financialy one day to next.Then the relationship side of things as this can put presure on family / friends etc...

So as you can see anxiety breeds well on fibro and the all stresses and problems surrounding life with pain.

Anxiety attacks can make you feel like your about to pass on the other side, i myself have had many of them! :shock:

I would recommend CBT therapy. This therapy helps you control attacks/points out your triggers/gives you coping skills to be able to get thro the panic attacks and much more.

Ok it may not be a cure but it does help alot. You may find yourself having times were it can flare back up but these tend to be far and few between and less tense.

Learning to breathe is another key when having an attack, very hard to concentrate i know on this atthe time but it does help. Relaxation therapies are good as this will help keep the attacks at bay.

Counselling may help as talking emptys the bag of problems thats been sat inside your mind which not knowing can conciously cause tension.

Hope that helps :mrgreen:
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: I thought it *was* the end!!

Postby Tel1 » Tue Aug 27, 2013 3:16 pm

Thanks all for the replies.... You know, I just think to myself, I mustn't moan there are people a lot worse off than me,
there are people in intensive care, no legs etc, that's how I pull myself together...but no matter what, I still have the
daily dreadfulness of Fibromyalgia.. I am currently on CBT at a local NHS unit.. it kind of helps at the time, but I think
the Fibro support group seems to help better as it is more interactive. I agree with you Lisa about ones body breaking
down over the years with stress etc...:)) but then I know people who were in the gulf war, they had stress then, in fact
terrible stress, but none of them have Fibro;)) I just think people like us are just made with the wrong stuff:)) and now we
are moaning old dears:)) that's how I see it in real terms... but that doesn't stop the on-going dreadful endurance of having
to cope with the never ending symptoms of Fibro.... we will all just have to be here for each other...and lets hope all of
our experiences will help each other.... hugs to all... :-D
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Re: I thought it *was* the end!!

Postby Tel1 » Tue Aug 27, 2013 3:27 pm

Hi Miss Painful.

I am having the camera down my throat on Friday.. I am *dreading * it...I am just praying that all will be ok!!!
I kept on getting cramping pains like I was having a heart attack, but after having 3 chest Xrays, CT and MRI scans
they say that it is a Hiatus Hernia that I am feeling.. I can be driving, then all of a sudden I get the pain an have
to pull over, then it goes and that's the end of it, and then I might not get it for 6 months or so...Anyway I will
see what happens on Friday when I go for this procedure, although I am dreading what they will find wrong, I am
just praying that all will be ok. :crazy: :-)
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Re: I thought it *was* the end!!

Postby *Lisa* » Tue Aug 27, 2013 6:34 pm

I have a hitas hernia also which symptoms clash with that of fibro, the only difference is the heartburn and reflux.

Tel1 wrote:Thanks all for the replies.... You know, I just think to myself, I mustn't moan there are people a lot worse off than me,
there are people in intensive care, no legs etc, that's how I pull myself together...but no matter what, I still have the
daily dreadfulness of Fibromyalgia


When my FM got worse and things started to fall around me i was told this many a time from people and i do apriciate that there are many people worse off then me BUT... Thats not gonna take away the pain and all the stress and problems that surround some one with chronic pain. With FM we get no support from the proffessionals, no one understands as its an unknown condition. Lack of funding for therapies needed (physio etc) most GP's have a bad attitude towards fibro or are uneducated and much more.

Tel1 wrote: I agree with you Lisa about ones body breakingdown over the years with stress etc...:)) but then I know people who were in the gulf war, they had stress then, in fact terrible stress, but none of them have Fibro;)) I just think people like us are just made with the wrong stuff:)) and now we are moaning old dears:))


No but most of them suffer from Post Traumatic Stress Disorder which is more psychological as they saw/was in many horrific situations.

What you need not to try and do is compare yourself with others. Others whom have different illnesses or been thro *more* we are all different and people react in different ways. Where some people can *cope* to a degree living with chronic pain others just cannot. Were some in the gulf war have come out ok, others will spend the rest of there lives living with PSTD.

Our bodys react different to trauma and stresses were some ones body will break down the others mental health will take a bash.

Also living with chronic pain can and in most people change there whole life. Some are able to adjust, some cannot. Some loose most of there lives likes jobs/friendships/marriages etc which cause more pain as the stres is too much. Chronic pain is the no1 suicide reason.

I suppose what im trying to help with is try not to beat yourself up on how you should be/feel as it seems you feel you shouldnt be feeling any emotions about having FM as *many other people are worse off* every one is unique.
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Re: I thought it *was* the end!!

Postby dolphintara » Tue Aug 27, 2013 10:04 pm

hi

As from reading from everyone post we all have the same symptoms, but the doctors say its a rare thing to diagnose and I have been feeling like everything wrong with me people and family look and you can see there look on ther face, (oh something else wrong with her)

I just wish I had someone in my area who I could talk too,

I'm on happy pills, but just wish it would go away, I wake up and it there straight away as the pain just getting out of bed, need to pull myself together just to go to the loo and sometimes not make it

keep :-D :-D :-D :-D :-D :-D :-D :-D :-D
Last edited by denys on Tue Aug 27, 2013 11:14 pm, edited 1 time in total.
Reason: removal of capitals
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Re: I thought it *was* the end!!

Postby denys » Tue Aug 27, 2013 11:15 pm

Please do not use capitals its seen as shouting and is explained in the 'basic rules for membership' that everyone is asked to read when they first join us
Denys

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Re: I thought it *was* the end!!

Postby Tel1 » Tue Aug 27, 2013 11:40 pm

I can't see *anyone* using capital letters?? and I haven't either??? so who were you pointing at?:)))
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Re: I thought it *was* the end!!

Postby *Lisa* » Wed Aug 28, 2013 2:26 am

Tel1 wrote:I can't see *anyone* using capital letters?? and I haven't either??? so who were you pointing at?:)))


The post that had the capital letters has been edited which is why we cannot see them. Underneath the related post you can see that a moderator has put the reason for the edit so the poster is aware.
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Re: I thought it *was* the end!!

Postby dolphintara » Wed Aug 28, 2013 12:10 pm

hi
i do aplogise for that did not realise i had it on , im sorry , it was not pointed at any 1 , i did not see i had cap lock on as was late ,

like i say im sorry
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Re: I thought it *was* the end!!

Postby Tel1 » Wed Aug 28, 2013 9:13 pm

Swiftly moving on as we would say:)

I read an article about Fibro which says that is it all caused by peoples hands!?:))
This is what it says....... and I sent it to the Rheumatologist who I saw at the hospital. I personally don't believe this, but here you are.

Researchers have found the main source of pain in Fibromyalgia patients, and contrary to what many believe, it does not stem from the brain. The findings mark the end of a decades-old mystery about the disease, which many doctors believed was conjured in patients’ imaginations. The mystery of Fibromyalgia has left millions of sufferers searching for hope in pain medications. Up until recently, many physicians thought that the disease was “imaginary” or psychological, but scientists have now revealed that the main source of pain stems from a most unlikely place- excess blood vessels in the hand.

The discovery may lead to new treatments and perhaps even a total cure in the future, bringing relief to as many as 5 million Americans thought to have the disease. To solve the Fibromyalgia mystery, researchers zeroed in on the skin from the hand of one patient who had a lack of the sensory nerve fibers, causing a reduced reaction to pain. They then took skin samples from the hands of Fibromyalgia patients and were surprised to find an extremely excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunts.

Up until this point scientists had thought that these fibers were only responsible for regulating blood flow, and did not play any role in pain sensation, but now they’ve discovered that there is a direct link between these nerves and the widespread body pain that Fibromyalgia sufferers feel.

The breakthrough also could solve the lingering question of why many sufferers have extremely painful hands as well as other “tender points” throughout the body, and why cold weather seems to aggravate the symptoms. In addition to feeling widespread deep tissue pain, many Fibromyalgia patients also suffer from debilitating fatigue.

Neuroscientist Dr. Frank L. Rice explained: “We previously thought that these nerve endings were only involved in regulating blood flow at a subconscious level, yet here we had evidences that the blood vessel endings could also contribute to our conscious sense of touch… and also pain,” Rice said. “This mismanaged blood flow could be the source of muscular pain and achiness, and the sense of fatigue which are thought to be due to a build-up of lactic acid and low levels of inflammation fibromyalgia patients. This, in turn, could contribute to the hyperactivity in the brain.”

Current treatments for the disease have not brought complete relief to the millions of sufferers. Therapies include narcotic pain medicines; anti-seizure drugs, anti-depressants and even simple advice such as “get more sleep and exercise regularly.” Now that the cause of Fibromyalgia has been pinpointed, patients are looking forward to an eventual cure. Other expressed frustration about how much they had suffered already:

“When are they ever going to figure out that things are never “all in your head?” said one commenter. “Whenever something doesn’t fit in their tiny little understanding, they belittle the patient and tell them they are crazy. People have suffered through this since they were invented. Prescribing SSRIs for everything is not the answer any more than a lobotomy or hysterectomy was.”

The announcement has the potential to unlock better future treatments and undoubtedly has patients all over the world rejoicing that the mystery of Fibromyalgia has finally been solved.
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