A year of struggle..

All your fibromyalgia experiences, questions and answers.

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A year of struggle..

Postby Foreman-D » Tue Aug 27, 2013 2:20 am

Hi ladies and gentlemen and boys and girls. Firstly hello. Haven't been on here a while but truth is i had forgot about the site. Valuable excuse on here as majority of you will understand that feeling.

Well I got diagnosed nearly a year ago last September and truth be told I've had nothing but bother with NHS and benefits firstly every so called jobs worth of a specialist just looked at me and said you have a severe condition I'm going to have to refer you onto someone else 3 specialist later and one of them suggesting to go and buy a mobility scooter to help lol I'm on a 6 month waiting list to see the pain clinic. More waiting.

In the mean time for the past couple of months, I've been going to the gym daily. Little and often as such. To try and help. After struggling to get out of bed. Go to the gym I find myself back in bed. Ironic. But I'm trying it for the long run. (My hands are agony writing this now (big LOL) I'm currently on a diet of mainly protein to help alongside the gym. I've also been drinking twice a day a aloe Vera gel. To balance my immune system and boost nutrition. Can't say it's doing much but worth a try. I'm on calcium and vitamin D tablets too.

Needless to say everything else possible I've tried I. The last year. Has and still seems to be failing. I'm giving up really. Feeling the lack of support from NHS N benefits n job centre. Constantly wanting work support meets!

In the last year I've lost my job due to health (still open to me but when my health allows me to go back) lost my van. Lost my car.struggling paying bills etc living on pennies! Declined disability 5 times!Is there any hope for the people that need the help? Is there going to be any luck that every pencil pushing wacko on the other side of the desk declining disabilities and benefits will end up with fibro and know how we all feel?

Thanks for reading. RANT OVER
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Re: A year of struggle..

Postby painprincess1 » Tue Aug 27, 2013 9:52 am

hiya sweetie, rant away love,lol i tell u most of us been there done that got the t shirt hehe.thing is u cant give up and from the sound of u i don't think u will.keeping moving is one of the best things for me. not sure i could go to the gym but i used to like swimming. i get alot of pain in the upper arms and hands i feel like im in a vice .im waiting for a council place been 3 years but there trying to find me a bungalow, could take another year or so im told but less someones trying to help.and im no income support i like u live in pennies.and dont give up fighting for DA ive not started that fight yet most ppl will tell u here its a very very long fight so u keep trying.in oct il be 41 but right now i feel 141 :-D just remember your not alone and taps your hand for forgetting us giggles
smiles and the world smiles with you. cry and you cry alone.
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