Where did your fibro pain start in the body.

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Where did your fibro pain start in the body.

Postby TATT » Sat Sep 07, 2013 12:42 pm

Hi Everyone,

Due to the new evidence that fibro is related to the hands I would appreciate anyone experiencing this to please reply here.

I have noticed that whenever there is a bang or something intense on the telly I get a flush sensation in my hands. there is no pain just this feeling of a sensation from my wrists to the tip of my fingers. Or it could be the other way around. It's like the tension I am feeling is expressed in my hands. I also remembered apart from severe IBS that my hands and feet was the first place I experienced my fibro pain.

Where did your fibro pain start in the body?

Laying in the sun two days ago one of my hands turned purple. Now in the winter my hands feet are always cold and can go numb and tingle, so I think it could be raynauds but this symptom is not under the raynauds symptoms. I also have swelling in the wrist and some of my finger joints are painful to touch and have started to bend the other way.

Maybe if there is enough of us with hand problems they may start a clinical trial here in the UK.
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Re: Where did your fibro pain start in the body.

Postby islandpixie » Sat Sep 07, 2013 12:52 pm

not sure where it started but definitely have problems with hands and feet swelling - someimes I get pain in the joints as well but not always but do find it hard to bend my fingers due to swelling. :roll:
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Re: Where did your fibro pain start in the body.

Postby Foz » Sat Sep 07, 2013 12:56 pm

I went to the doctors about the pain in my hands for 3 years running before they sent me to a specialist.
I already had pains elsewhere but generally ignored them or put it down to whatever I had recently been doing (over-doing).
but the pain in the hands was just too unbearable.
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Re: Where did your fibro pain start in the body.

Postby SchroedingersCat » Sat Sep 07, 2013 1:07 pm

Forearms, when I had post viral fatigue syndrome about 8 or 9 years ago.
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Re: Where did your fibro pain start in the body.

Postby Sandii5 » Sat Sep 07, 2013 1:12 pm

Mine was my shoulder which I tried to ignore for 6 months, then I hurt my toe really badly and could barely move (and yet there was no injury there) then it just spread and spread, elbows, wrists, hips, knees, hands always feel like they are on fire :(
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Re: Where did your fibro pain start in the body.

Postby migrembe » Sat Sep 07, 2013 1:38 pm

I had a lot of unconnected pain, L shoulder, R elbow, knees, middle of my shoulder blades, toes, hands and then i slipped down the house stairs and damaged my L knee and after that i never been without pain. In cooler weather (doesn't even need to be cold) my hands hurt and so do my feet. I kept going to the Dr's for 8 years until i was diagnosed. All i can say is, if it's something new check it out with the Doc or wrap up warm.
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Re: Where did your fibro pain start in the body.

Postby dolphintara » Sat Sep 07, 2013 1:59 pm

hi

I have pain in my wrists and fingers , I have had an xray on my hands and fingers , but came back fine , they also swell up that's when pain starts in fingers ,
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Re: Where did your fibro pain start in the body.

Postby buxbunny » Sat Sep 07, 2013 3:04 pm

Hmmm with everything going on at the time going on in my early teens most notable thing was stomach cramps and severe pain.

Mind you had problems with my hand and could never seem to touch snow way other kids just played with it but be in excruciating pain for days but never stopped me from trying every time it came.
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Re: Where did your fibro pain start in the body.

Postby heatherp » Sat Sep 07, 2013 3:27 pm

Mine was my feet, kept having problems when first getting out of bed in morning. Now its worst in my neck, chest and shoulders which can go down arms to hands :(
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Re: Where did your fibro pain start in the body.

Postby painprincess1 » Sat Sep 07, 2013 6:53 pm

All over like someone had turned me off.heavy feeling everywhere.but i suffer with hand joints swell wrist hurt and my feet.
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Re: Where did your fibro pain start in the body.

Postby Purpledot » Sat Sep 07, 2013 7:15 pm

I had back and neck problems in my teens and it went from there. Didn't get a diagnosis until last year, when I saw a Rheumy because of problems with my hands.
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Re: Where did your fibro pain start in the body.

Postby Karou » Sat Sep 07, 2013 7:39 pm

I also get pain in my hands and feet (heels and ankles) and they go cold and tingle when it's cold outside. Even in this weather I have to wear socks and my furry slipper boots or they'll be like ice . I was diagnosed with raynauds. My hands only go cold when they touch something cold like food from the freezer.

Not sure if the stomach cramps were still from my gallbladder op but I remember having lower back pain and then the pain was suddenly all over and always somewhere different. Thought I was going nuts or my brain is getting a bit confused there.
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Re: Where did your fibro pain start in the body.

Postby crystal18 » Sat Sep 07, 2013 8:10 pm

I started with problems with pain in my hands especially in the fingers and feet which was worst in the colder months. My nails have a blueish tinge and ridges on both my fingers and toes.

Suffered with headaches and short term memory loss at the same time and then shortly after the aching and sleep problems started.
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Re: Where did your fibro pain start in the body.

Postby baci41 » Sat Sep 07, 2013 9:28 pm

I get pain in my wrists, ankles and feet, getting swelling in all these areas to. When i clinch my hands my skin feels like its gonna break :(
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Re: Where did your fibro pain start in the body.

Postby whoami » Sun Sep 08, 2013 10:30 am

Mine started from an injury to my head and neck (fracture) at work. The pain and stiffness never left my neck, shoulders and down my back It increased and within a year it was all over. Now the pain is always there, everywhere, only some days I get stronger pain and stiffness in certain places, hips, lower back, hands and knees being the worse. I also have Raynauds. After almost 24 years I am use to it. It is the same for all of us, part of who we are now.
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