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The UKFibromyalgia Forums • View topic - struggling to cope



struggling to cope

All your fibromyalgia experiences, questions and answers.

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struggling to cope

Postby shazza » Thu Oct 03, 2013 6:54 pm

Hi usually a silent reader but really can't cope anymore. Husband is disabled, at coming to terms with failed attempts at helping him recover from broken hip.

I am usually the one that works, accepted this long time ago because of his disability before the fall. now I've been off since April, nightmare to live with, not on top of pain. have excellent doctor when can get him. no other will deal if mine is off to do with medications ,ssp had now stopped, need to apply for pip which didn't want to admit how bad I've got. walking 2 crutches not very well, physio handed me another crutch doesn't want to see me until meds under control no exercises doc was surprised about just pace pace pace .

Need money to pay morgsge doc won't sign off not that I could if I wanted to. Just all over the place sorry . Hope u all R in a better place sending hugs thanks again for listening x
shazza
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Re: struggling to cope

Postby Garyl » Thu Oct 03, 2013 7:34 pm

Shazza try get some advice from Fightback they are on Facebook and fight for peoples rights to benefits etc. I am struggling myself to walk down to Fibro, osteo arthritis and other problems, i have graduated in a matter of weeks from one walking stick to two and now a three wheeled walker.


So try fightback.
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Re: struggling to cope

Postby FluppyPuffy » Thu Oct 03, 2013 7:46 pm



If your dog doesn't like someone, then you probably shouldn't either
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Re: struggling to cope

Postby Garyl » Thu Oct 03, 2013 7:57 pm

Shazza Fightback do have a message board with lots of help and advice on it http://fightback.boards.net/ go along take a look, if you register on boards you could get some valuable advice they helped me a lot.
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Re: struggling to cope

Postby Karou » Thu Oct 03, 2013 9:37 pm

Hi shazza,

Sorry to hear you're struggling. :grouphug:

I was on ssp but now on esa (still on assessment rate because I appealed but that's a different story).

I spoke to HMRC because I'm new to all this and didn't know where to ask. They were very helpful and explained that once your SSP runs out for whatever reason, your employer needs to fill in a form and explain why they won't pay you aymore. It's called SSP1. Mine tried to get around it but I had advice from my local cab and was told they have to give it, no ifs or buts. With this you can try and get ESA.

You'll find this info when you click the link FluppyPuffy posted. Maybe you could show this to your employer if they're not familiar with how it all works?

Good luck, hope you can get it sorted. :fingerscrossed: :goodluck1:
Gentle :hugs: :hugs: , Karou

“Wishes are false. Hope is true. Hope makes its own magic.” - Brimstone
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Re: struggling to cope

Postby shazza » Thu Oct 03, 2013 11:52 pm

Thank you all very much for your help and support it will give us some peace of mind and lots of information to look at,feel bit better now just losing grips on reality u have really helped calm me down , now to get on with it.
Thanx again x
shazza
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Re: struggling to cope

Postby FluppyPuffy » Fri Oct 04, 2013 12:13 am

Shazza, you know there's usually someone not too far away, even if it's just to offer :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: medicinal [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] or a :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: :teddy-bear: to hug :blowkiss: :blowkiss: :blowkiss:

You know that if we can help, then we will, and even if it's something we don't know about, we'll listen and help you bounce ideas around to try and find that way forward for you :flowers: :flowers: :flowers: :flowers: :flowers: :flowers: :flowers: :flowers: :flowers: :flowers: :flowers: :flowers: :flowers: :flowers: :flowers: :flowers: :flowers:


If your dog doesn't like someone, then you probably shouldn't either
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