Debating whether to apply for ESA/PIP or both!

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Debating whether to apply for ESA/PIP or both!

Postby wiltshireguy1982 » Tue Oct 15, 2013 12:16 am

Hi all, as you have probably seen from other posts, I already suffer from chronic asthma, hiatus hernia, IBS, pernicious anaemia and other issues, I also have suspected Fibromyalgia and Chronic Fatigue Syndrome.

I am due to see a Neurologist and a Gastroentorologist within the next few weeks.

I see my GP every 2 weeks or so now and even have to see my Asthma Nurse every 2-3 weeks now also when over the last few years it was only 1-2 times per year, my health is going downhill.

I have had so many tests done in the last year or so including ECG's, Chest X-Rays, Spirometry, Panendoscopy, Endoscopy, Barium Meal, I have seen ENT's and Gastroentorologists, I have never been referred to a Rheumatologist though, although I have again asked my GP to refer me so I am hoping to be referred soon.

My partner is understanding but she doesn't understand FIbromyalgia very well and I am hoping she will understand more as time goes on.

But the question is do I apply for ESA and or PIP? I feel I can no longer work and I'm fed up that I am having to attend places 2-3 times a week in regards to looking for jobs when I am really struggling with walking and general daily life because of my issues.

I have been unwell for 10 years now and it has got worse every year, the last year or two things have been getting much worse, I know that FIbromyalgia has been causing my issues since 2003, it's just a shame I haven't officially been diagnosed yet but my most recent doctor said she is fairly certain that I have it, I'm just waiting for my new GP or a Rheumatologist to confirm this 100% but I guess they can't until everything else has been ruled out and I have seen the Neurologist etc.

Thank you.
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Re: Debating whether to apply for ESA/PIP or both!

Postby Carrie Nourse » Tue Oct 15, 2013 12:39 am

Hi, Considering your health I would give it a damm good go as from what I read you need money coming in from somewhere as you are not fit for work. The only thing I will say is you need the backing from your doctor with all your medical notes on the tests you have had done and what you have coming in the future with the results of the tests that you have had as this will be needed on any forms you will be filling in and how these conditions affect you every day and whether you have help with certain things or you need help. I know this sounds long winded but if you do decide to claim for any help then you have got to be prepared as it is tough going against these people but you have to be tougher and 2 steps ahead as so many people have applied including myself and are still getting turned down but please don't be put off as we all have a right to these benefits. Good luck.
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Re: Debating whether to apply for ESA/PIP or both!

Postby helen.whittaker.125 » Tue Oct 15, 2013 2:13 am

Get the forms in, I've my pip assessment Wednesday, it has taken 13 weeks to get this far, I've not applied for ESA yet as I'm on SSP through work until I know what is happening re my back as I have spondulothisis as well as fibromyalgia, the pip forms aren't too bad, the ATOS meeting is the bit I'm dreading. Good luck xx


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Re: Debating whether to apply for ESA/PIP or both!

Postby wendy10 » Tue Oct 15, 2013 9:02 am

i have fibro,arthritis, degenerative discs ,lumbar dysfunction,pelvic instability,bulging disc in neck ,curvature of the spine,and had trapped siatic nerve for over a week now.. im on diazapam nuroproxen seritonin zapain... i applied for pip back in may have sent all corosponding letters from specialists and gps to them still no response... and aparently im not entitled to esa as my husbands working (even though he only getting minumum wage... so at this particular time since march im not getting a thing and really struggling..i have just phoned pip again last time was 3 weeks ago they were very appologetic that it had taken so long and they would send the relevent information off straight away... so today when i phoned thought there might be a bit of improvement... but n they hadnt even sent the information away.. so yet again they apologised and said they will do it now...
Last edited by wendy10 on Tue Oct 15, 2013 9:41 am, edited 1 time in total.
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Re: Debating whether to apply for ESA/PIP or both!

Postby Garyl » Tue Oct 15, 2013 9:20 am

Been suggested by of all people a benefits advisor at the DWP to apply for pip, after the horror stories etc i am reluctant too, as well as ibro i have oseto arthritis , chronic asthma, drop foot and walking difficulties not even 60 yet and have to use a wheeled walker that the elderly use.

You should try for ESA and if successful fill a esa 3 in as you may get extra cash
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Re: Debating whether to apply for ESA/PIP or both!

Postby poppet » Tue Oct 15, 2013 10:51 pm

Yesterday I went for my assessment with atos. Had to change the original appointment as it was too far away.Still had a journey of nearly 40 miles to my new appointment, without my daughter driving me there I would have struggled. I have fibro depression and fatigue by the time I
got home I was absolutely knackered, the whole thing was exhausting and distressing but I think you really have to go for it. All I can do now is wait and see what the decision is. It's a difficult situation to be in because it is not easy trying to put into words what you go through each day. But I do say go for it and good luck.
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Re: Debating whether to apply for ESA/PIP or both!

Postby helen.whittaker.125 » Wed Oct 16, 2013 9:41 am

I've my ATOS meeting midday today, the weather change and stress with work not paying my SSP again this week means I'm already in a mess before I've really started the day, thankfully we've only got to get to the other side of the town I live in, I'm currently trying to work out if I'm going to be in any fit state for my hydrotherapy appointment later or if it's just going to be beyond me after the meeting


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Re: Debating whether to apply for ESA/PIP or both!

Postby helen.whittaker.125 » Wed Oct 16, 2013 1:17 pm

Well my experience of ATOS wasn't what I'd expected, lovely lady who at the end even said she hopes I get the help I so clearly need x


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Re: Debating whether to apply for ESA/PIP or both!

Postby *Lisa* » Wed Oct 16, 2013 2:57 pm

If i was you i would wait until you have seen the nurologist and gastro consultants and they have written out there report. This gives u the facts they need and any diagnoses.

You can try to claim before hand giving in the information you have and symptoms you have with suspected illnesses but this i feel may not be enough support. Although the decison should be based on how symptoms effect you not necasserily by diagnoses as nearly all conditions varie from person to person.

You can claim for ESA if your symptoms effect your ability to work.

You can claim for PIP if you recieve care or need care and have mobility restrictions and need help to get around by someone.
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Debating whether to apply for ESA/PIP or both!

Postby TonyH » Thu May 29, 2014 10:21 pm

wendy10 wrote:i have fibro,arthritis, degenerative discs ,lumbar dysfunction,pelvic instability,bulging disc in neck ,curvature of the spine,and had trapped siatic nerve for over a week now.. im on diazapam nuroproxen seritonin zapain... i applied for pip back in may have sent all corosponding letters from specialists and gps to them still no response... and aparently im not entitled to esa as my husbands working (even though he only getting minumum wage... so at this particular time since march im not getting a thing and really struggling..i have just phoned pip again last time was 3 weeks ago they were very appologetic that it had taken so long and they would send the relevent information off straight away... so today when i phoned thought there might be a bit of improvement... but n they hadnt even sent the information away.. so yet again they apologised and said they will do it now...


Hi Wendy
I have FMS and CFS But i'm asking a question for my partner. She has similar symptoms to yourself apart from the Fibro and arthritis.
Can I ask if you where successful in you application for pip ?
Thank you
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Re: Debating whether to apply for ESA/PIP or both!

Postby zoomie » Sat May 31, 2014 5:03 pm

Hi, I would apply for ESA now, as your condition does effect your ability to work, PIP is more complicated, there is a sample form on line that you can look at, I'm not sure what your abilities are, basically if you can do things for yourself, walk more than 20mtrs your unlikely to get it. But once you have all your medical documentation to hand it won't hurt to apply x Good luck x
Fibromyalgia comes in many shapes, sizes and abilities... DON'T DISCRIMINATE!!!!
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