All your fibromyalgia experiences, questions and answers.

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Postby soraya1968 » Fri Oct 18, 2013 10:23 pm

i was wondering what sort of doses start to help im on jusy 3 x 100 mg a day and not realy getting anything from them i can not remember when i started them i think about 2 months ago i have read that they are really good so was wondering if i should be patient and get on higher dose i have had a extreme head ache with facial pain for 2 days which makes me cry in pain i thought it might be a side effect but may be not just hope its not a taster of things to come cause thats a pain too much any help appreciated soraya xx
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Re: gabapentin

Postby JYB » Fri Oct 18, 2013 11:32 pm

Hi, I get migraine n severe facial pain. This was at its worst 2-3 years ago, I had various appointments, a nasal/sinus operation and was eventually given Gabapentin. Sorry I can't remember the dose, but I do remember it was very effective and took the pain away very quickly. The down side was it stopped working after 3 months so I was back to square one, off sick, in bed crying in pain. Other meds were tried, the pain eventually settled when I was taking Topiramate, propranolol and nortriptyline. I was a bit doped up on these until my body got used to them.
I have now had Botox injections, mainly for the migraine but it seems to be also having an effect on the facial pan. I have come off the Topiramate and I am now reducing the propranolol.
If you are not getting any relief after 2 months then you need to discuss this with you doctor and between the two of you, decide what to do.
Good luck, facial pain is awful so I hope you find something that works.
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Re: gabapentin

Postby kmcollins03 » Fri Oct 18, 2013 11:39 pm

Very good when my disc was out but when I got to 2000 a day lots of side effects started to kick in.
great for few mths when excruciating pain x
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Re: gabapentin

Postby MarLyn2012 » Fri Oct 18, 2013 11:50 pm

I would avoid gabapentin as much as possible. It caused my dad to loose control of his mind like premature altzheimers symptoms.
When I had to take it, I then also became aware that my mind was not functioning properly and it was affecting my vision so stopped. My pain specialist put me on Pregabalin (Lyrica) which is from the same family but didn't have such severe side effects. Once I had had my SCS implant I weaned myself off and felt much better, however I do still have to take the morphine. Keep a close eye on yourself and get a loved one to monitor any changes.
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Re: gabapentin

Postby Chimelle » Sat Oct 19, 2013 9:39 am

The side effects of gabapentin are horrendous too begin with, but after time it gets better and it's worth it
I'm on 1200mg three times a day
50mg MST twice a day
100mg of amitriptline at night
As well as a oramorph when needed
As well as other meds,
At first I was a zombie but now so much better my mind is so much clearer. I'm still in terrible pain and my balance is terrible I have to use a cane and wheelchair when I get to go out. :-D
But I refuse to let the pain control me, I control my mind, body and pain.
It doesn't always work but I won't let it beat me
Good luck :-D
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Re: gabapentin

Postby FluppyPuffy » Sat Oct 19, 2013 12:41 pm

For some it can take up to 3 months for the benefits to be felt. During this time, the dosage is usually steadily increased to a suitable level that gives you some relief.
soraya1968 wrote:i was wondering what sort of doses start to help im on jusy 3 x 100 mg a day and not realy getting anything from them i can not remember when i started them i think about 2 months ago

Looking at the general sort of info about dosages for Gabas, it would seem that the level you're currently on is the starting dose, so maybe seeing your GP about an increase could be what is needed for you to start feeling some benefit.

For some tho, Gabapentin doesn't make much difference to how they feel, but swapping to Pregabalin does. So that might be another idea to explore if things don't start to improve with the gabas.
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Re: gabapentin

Postby soraya1968 » Sat Oct 19, 2013 8:45 pm

thank you so much for all of your very helpful replies i have noticed i am getting a lot of words wrong dont know if its gab or the fibro my eyes have ggone really bad also but will make appointment and see what dr says would be so good not to take anything but i did try for a while not too good i think the side effects are so they can prescobe more drugs to fight the side effects and make loads of money from illness
i do hope the face ache isnt going to be permanant at the bottom now with hip pain which moves to the front too hate this :-| thankyou again soraya xx
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Re: gabapentin

Postby cozza50 » Sat Oct 19, 2013 9:56 pm

hi i take gaberpentin 1200mg 3x a day and i do know when i dont take it as i am in a lot of pain
And funny enough my mind does go abit and i keep spelling things wrong ?
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