Sleep Study anyone?

All your fibromyalgia experiences, questions and answers.

Moderators: perseus, *Lisa*, FluppyPuffy

Sleep Study anyone?

Postby Wackers34 » Wed Nov 20, 2013 4:10 pm

Hi all

My sleep has been so outrageous throughout this last year, that I am feeling I need a sleep study to help see if I have some kind of sleep disorder. I already have RLS, and my muscles do jerk a lot. Wake up several times etc
I have mentioned to my doctor about a sleep study in the past and she said she has never heard of NHS doing this? Has anyone else had a sleep study done and how have you gone about it?

Thanks for advice
Wackers34
UKFM Member
 
Posts: 139
Joined: Tue Apr 30, 2013 11:41 am

Re: Sleep Study anyone?

Postby SuzyVB » Wed Nov 20, 2013 4:29 pm

The NHS do run sleep studies but mainly for people who are suspected to suffer from sleep apnoea
SuzyVB
UKFM Member
 
Posts: 174
Joined: Sat Jul 21, 2012 10:44 pm

Re: Sleep Study anyone?

Postby whoami » Wed Nov 20, 2013 4:40 pm

I have had quite a few studies done. I have sleep apnea.

Poor sleep is a common symptom of fibromyalgia. I would think that if the symptoms you present to your Dr could be related to a sleep disorder he would refer you to a sleep clinic.
[i][b]

Expect the worst in life you won't be disapointed and you'll be prepared!
whoami
UKFM Regular
 
Posts: 1537
Joined: Wed Jan 23, 2013 9:22 pm
Location: Ontario, Canada

Re: Sleep Study anyone?

Postby Garyl » Wed Nov 20, 2013 5:02 pm

I have sleep problems due to my fibro, the pains wake me within a hour or so of going to sleep then is broken sleep till i rise
Garyl
UKFM Member
 
Posts: 229
Joined: Mon Sep 09, 2013 1:45 pm

Re: Sleep Study anyone?

Postby Maria68 » Wed Nov 20, 2013 5:07 pm

Hi, I was diagnosed with Fibromyalgia seven years ago and had a sleep study earlier this year......now didn't that open a barrel of worms!!! It did show that not only did i have fibro but also sleep apnea, it showed that I stopped breathing upto ten times per hour (due to fibro and connective tissue disease the tissue and muscle collapse when asleep). l now have to sleep with a CPAP machine every night (full face mask and a constant flow of air into airways), not too bad on its own, however DVLA took my drivers licence until the condition is regulated, so now not only am I still tired, I have to get up earlier so that I can walk for the bus to work, and shopping etc etc. This has totally exacerbated all my conditions and now feel like I am on a constant flare! :-(
Living the Dream :-) well some days I am
Maria68
UKFM Member
 
Posts: 12
Joined: Mon Sep 23, 2013 7:56 pm
Location: Manchester, UK

Re: Sleep Study anyone?

Postby whoami » Wed Nov 20, 2013 5:41 pm

I also have the CPAP There are many types of sleep apnea. The most common is due to restricted air flow while sleeping. The restriction stops you from breathing as often as you should. Eventually, you start breathing again, natural reflex. That is when you get the gasp and you start breathing again. There are many causes for this restriction. When you sleep on your back for instance you restrict airflow, just the way your neck is placed and if your neck is a bit thicker that can cause it. As I said their are different types of sleep apnea.

I go again for another study in a month. I have about 3 or 4 a year to regulate the treatment. I also have a type that I am asleep but awake, as though that makes sense, LOL but it is true. There are times when my lips are turning blue and hubby slaps my shoulder and says breath. I can be doing something even walking with him and I stop breathing.

The mask can be awkward at the beginning but the fact that I can sleep for an hour now is really helpfull. Some people have it so bad they can rarely breath on their own. It is shocking sometimes to hear how little you can breath on your own

Anyway, I am sorry, I should not be telling you my issues as we are all different and it will confuse you. I was told at the sleep clinic that sleep apnea is quite common in fibro patients, them having a mild case that a CPAP machine can make some difference in sleep. If you feel your sleep is interfering with your normal activities then talk to your Dr again.

You likely have heard of all the ways to help get a better sleep such as no tv in the bedroom, have it dark, keep it cooler, do nothing but sleep and snuggle, LOL they call it ...S&S ..... at the clinic, in your bed. Things like that do help you sleep better.

Hope you get some better sleep soon, Lorraine x
[i][b]

Expect the worst in life you won't be disapointed and you'll be prepared!
whoami
UKFM Regular
 
Posts: 1537
Joined: Wed Jan 23, 2013 9:22 pm
Location: Ontario, Canada

Re: Sleep Study anyone?

Postby Wackers34 » Wed Nov 20, 2013 6:38 pm

thanks for all the replies - im the same also, hardly any sleep...body jerks awake, havent slept through the night for years...but after researching, a lot, there can be sleep disorders that can add to this, not just apnea, but Peridodic Limb movement, Restless legs all sorts...Im on amitriptyline 50mg and no sleep med helps me either...I can be on that and 10mg of temazepam and still only get a few hours...we are all in the same boat and i think we should get to the bottom of this sleep business and figure out why we are waking up...ie pain, needing a wee, limbs jerking around, anxiety, aponea etc
I was just curious how you go about getting a sleep study done in UK, as in US its more popular...and if anyone had got one done. Im not sure mine could be aponea also...how do we know unless we try these things :lol:
Wackers34
UKFM Member
 
Posts: 139
Joined: Tue Apr 30, 2013 11:41 am

Re: Sleep Study anyone?

Postby Tel1 » Fri Nov 22, 2013 10:33 pm

Hi All

You may have see my other posts in the past about all the things related to Fibro.... but as you have posted this on here, I thought I had to reply. I have woken up in the middle of the night when I assumed I was totally relaxed....however when I have woken suddenly, it feels as though I have stopped breathing and I fly back the bed covers and try to establish what the hell is going on... I feel like as though I have been smothered. I have to say that it has frightened me to death! :yikes: I have had it lets say about 5 times in the last 2 years but of course when I go to bed I am worried in the back of my mind that I am not going to wake up... My GP is sending me to the sleep disorder clinic in December... although I am going I am worried sick really as to what they are going to tell me is wrong.
I was supposed to have had a Endoscopy a few days ago as a day patient, but because I have had this every so often, I was worried sick that I would die while they gave me the anesthetic, so I didn't go. I feel as though I am waking up in a panic attack... but I have heard
that you can't wake up in the middle of the night with a panic attack, but that is how it feels!! so in a nutshell I am really worried as to what the hell is wrong with me. Is it common for us people with Fibro to get this? I know a 5 people personally, and none of them seem to get this... Thanks for listening :-)
Tel1
UKFM Member
 
Posts: 119
Joined: Thu Feb 21, 2013 2:06 am

Re: Sleep Study anyone?

Postby whoami » Sat Nov 23, 2013 12:30 am

Tel1.........first of all relax .

Can you re- schedule your scope? Some anesthetics given for this procedure are local and do not put you to sleep. It more or less freezes your throat. Other Dr's put you right out. Either way, they are not going to let you die. I can only say because I have had over 30 general anesthetics and have woke every time. This scope must have been inportant so get it done.

As far as your sleep goes you need to not worry so much. You will add to your anxiety and make your sleep pattern worse. I know kids can wake up having anxiety, both mine did and a grandson does.

The sleep study is very easily done. You will be asked questions about your habits and daily sleep. It is important to tell the truth but try not to exaggerate things. I am not saying you will but some people get so stressed they do not intentionally. It is important to know what is going on so they can read results.

You will go to bed with wires attatched all over your body and a camera records your moves. Don't worry, everything is done professionally . If you stop breathing it is recorded.

Please....don't worry you will stop breathing and not wake up. Our bodies protect themselves from this happening. That is why when people who stop breathing wake up in a gasp.
You can not hold your breath long enough to die, you automatically want to breath. That is how people drown.

When you have your study done, if they find something such as sleep apnea it is an easy fix.

To be honest you are over thinking all of this. Get all these tests done. Relax hun!
[i][b]

Expect the worst in life you won't be disapointed and you'll be prepared!
whoami
UKFM Regular
 
Posts: 1537
Joined: Wed Jan 23, 2013 9:22 pm
Location: Ontario, Canada

Re: Sleep Study anyone?

Postby Tel1 » Sat Nov 23, 2013 10:36 pm

Hi whoami:))

I read all that you said and yes you are right, well partly right:)) I tried to have the scope done with * nothing* and I couldn't
do it.. so on the same day they said that they were going to give me some sedation,, but when I had the sedation before to
have a colonoscopy it was as though they had given me nothing....I was completely awake and knew everything they were
doing... So then the specialist said, that they would give me a GA and put me to sleep for the next attempt:))
Although everyone and even the nurses at the hospital said ( you will be fine honey ) Its not the same when it is actually yourself having it done...I know I have a hiatus hernia, so I am dreading what else there are going to find bad and tell me :yikes: :yikes:

As for the sleep clinic I am dreading that as well... I want to have it done, but I don't want to have it done... you know what I mean eh.
Whatever they come up with, I just do not understand as to why I sometimes wake up in this breathless panic?? It just can't be normal?
Even people I know *with* breathing problems don't even get that... so I went to the doctors and I told them about it, and they started scratching their head and said to me... Hmmm!! I don't think you are waking up in panic?? so of course now I am dreading what the
real reason is...?? I am dreading that is is my heart that stops!!! although I have been on a heart research programme which involved going for 6 weeks and a different test done each time, and they told me that I don't have heart disease and blood flow is normal..

So with that worry going on in my head, plus the Endoscopy, and the symptoms of Fibro as well... my life just feels terrible as there always *seems* to be something not right and something to worry about :-? :yikes:
Thanks for trying to make me see sense:)) but I will let you know what happens:) I assume you are in Canada? I haven't been there
since 1983 when I went to Toronto and Detriot:)
Tel1
UKFM Member
 
Posts: 119
Joined: Thu Feb 21, 2013 2:06 am

Re: Sleep Study anyone?

Postby whoami » Sun Nov 24, 2013 1:28 am

Tel1....what you are describing is what can happen in sleep apnea. I have woke up many times over the years thinking that my hubby had put the pillow over my face...he would never do that, LOL.. It is "normal" in a lot of people. There is absolutely nothing that can hurt you in a sleep study.

Like I said I have had many anesthetics, probably every type there is. You will be fine. I have a hiatus hernia also and I realize how you are worrying. What is bringing all this anxiety about having tests done?

You can't live your life worrying about what they might find. You have no control over some things in life. I have been dealing with many issues beside fibro. I have just finished treatments for cancer, one issue, and am at high risk of it returning, showing itself in another organ. I can't afford the time, wasting it, worrying about what the next test might reveal. If I stressed about having to be at the Dr's 3x a week and wondering what is new, I would go crazy.

Have you discussed all this built up anxiety you have with your Dr? I think it would help if you knew why you are like this. Make an appointment to talk to him/her.
[i][b]

Expect the worst in life you won't be disapointed and you'll be prepared!
whoami
UKFM Regular
 
Posts: 1537
Joined: Wed Jan 23, 2013 9:22 pm
Location: Ontario, Canada


Return to Living with Fibromyalgia

Who is online

Users browsing this forum: No registered users and 12 guests