Sleep Pattern

All your fibromyalgia experiences, questions and answers.

Moderators: perseus, *Lisa*, FluppyPuffy

Sleep Pattern

Postby Butterfly8588 » Wed Nov 20, 2013 11:38 pm

Hi there,
I have such bad quality sleep since having fibro. I cant sleep without tablets and these only work every now and then. How do you maintain a sleep pattern when you feel worse when you get up then you did before you went to bed? I find no rest at all in sleeping. I also have nightmares and very vivid dreams which I had before the fibro but its worse now then before.
Does anyone have any coping technics? I dont think I can face a lifetime of this.
I'm the ghost of a girl that I want to be most, I'm the shell of a girl that I used to know well.
Butterfly8588
UKFM Member
 
Posts: 148
Joined: Tue Jun 07, 2011 2:37 am

Re: Sleep Pattern

Postby denys » Wed Nov 20, 2013 11:43 pm

I think sleep is one of the most difficult things to master, I cope by trying not to nap in the day unless I really cant help it and also try to stop any stimulus at least an hour before going up
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
denys
UKFM Veteran
 
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm

Re: Sleep Pattern

Postby Mothership » Thu Nov 21, 2013 12:06 am

I too have been finding sleep difficult! My consultant prescribed me 10mg of Amitryptaline once a night, but I had weird trippy dreams, and I felt terrible the next day, tired, mood and irritable, so I stopped taking them, but having four children, I need my sleep, falling asleep at 2am and getting up at 7am was just stupid, so my GP suggested I take half the Amitryptaline and after a while start to take a full dose. And I think it is working? I am literally about to,turn out the lights now, and I can almost certainly say I will sleep well, and wake up on time, with a slight headache that will pass once I've had a cuppa. Perhaps speak to your go, perhaps your meds need adjusting. Hope you manage to get this sorted soon, I totally sympathise. Janine. X
Mothership
UKFM Newbie
 
Posts: 3
Joined: Sun Oct 13, 2013 11:38 pm

Re: Sleep Pattern

Postby Butterfly8588 » Thu Nov 21, 2013 12:16 am

Hi Guys,
Thank you for your replies. I already tried Amitriptyline and it stopped working for me so I'm now on Dosulepin. With me tablets always work to start with but after a few weeks (if I'm lucky) i start having problems again. This works with everything from sleeping tablets to pain killers and its so frustrating.
Sometimes i have to nap in the day because to be honest I'm dangerous. I knock things over, i walk into things, i cant think, I'm clumsy etc etc so i have to have a sleep. But generally i try not to unless it's really bad. The problem is is because i dont sleep well its becoming more frequent where i physically cant stay awake. I've been really unwell recently as well and theres a lot of stress around which isnt helping.

Thank you for your replies, any more advice would be very welcome.

Take Care xxx
I'm the ghost of a girl that I want to be most, I'm the shell of a girl that I used to know well.
Butterfly8588
UKFM Member
 
Posts: 148
Joined: Tue Jun 07, 2011 2:37 am

Re: Sleep Pattern

Postby whoami » Thu Nov 21, 2013 12:56 am

There are all types of things specialists teach you...

Going to bed at the same time every night

Not reading or watching the telly in bed

Keeping the bedroom as dark as possible

Keep a window open a bit for fresh air

Use the bedroom for S & S (sleep and snuggle) only

Try not to nap during the daytime

Cut back on caffeine before bed

Don't eat anything for at least 2 hours before bed

I am sure there are more tips I have forgotten.
[i][b]

Expect the worst in life you won't be disapointed and you'll be prepared!
whoami
UKFM Regular
 
Posts: 1537
Joined: Wed Jan 23, 2013 9:22 pm
Location: Ontario, Canada

Re: Sleep Pattern

Postby Carrie Nourse » Thu Nov 21, 2013 2:54 am

Hi, My sleep pattern is non-existence, I find I cannot go to bed until I am absolutely shattered as if I go before I just toss and turn. My doctor prescribed me Zopiclone which I can only take them now and again because they are addictive but I would argue that point as all sleeping tablets are and so what if its the only way we can guarantee a good sleep but they wont listen so what I generally do is have a 1 tablet every 4 nights and have a really good sleep.
Carrie Nourse
UKFM Member
 
Posts: 30
Joined: Wed Oct 09, 2013 10:27 pm

Re: Sleep Pattern

Postby dotty lotty » Thu Nov 21, 2013 7:18 am

I find valerian (Boots herbal) helps but maybe I should not take it with my amitriptyline :nono: I also have terrible vivid dreams which are never nice ones there always seems to be some turmoil in them. :yikes: :teddy-bear:
User avatar
dotty lotty
UKFM Member
 
Posts: 466
Joined: Thu Jan 10, 2013 8:52 am
Location: Fife

Re: Sleep Pattern

Postby libbiek30 » Thu Nov 21, 2013 8:12 am

I take 10 mg of amitriptyline and I usually sleep well. I do get really biased dreams but they r not unpleasant so I don't mind. I find fringing too much caffeine really makes a difference I have decaffee in the evening. :-D
libbiek30
UKFM Member
 
Posts: 121
Joined: Wed Sep 25, 2013 10:12 pm

Re: Sleep Pattern

Postby Garyl » Thu Nov 21, 2013 11:50 am

My sleep is so bad due to Fibro but refused amitriptyline as it messed with my mind. Last night was in bed at 10 ,30 woke up at 12.15 and then suffered with pains and 20 minute naps till i got up.
Garyl
UKFM Member
 
Posts: 229
Joined: Mon Sep 09, 2013 1:45 pm

Re: Sleep Pattern

Postby whoami » Thu Nov 21, 2013 12:33 pm

Gary, those symptoms seem to be quite common. I wonder if you talked to your Dr again, could he possibly offer other treatment.
[i][b]

Expect the worst in life you won't be disapointed and you'll be prepared!
whoami
UKFM Regular
 
Posts: 1537
Joined: Wed Jan 23, 2013 9:22 pm
Location: Ontario, Canada

Re: Sleep Pattern

Postby andycrazy » Mon Nov 25, 2013 12:26 am

I have never had a sleep pattern and when I was diagnosed with FM at 50 things that I experienced as a child fell into place. Since being a small child I have never had a regular sleep pattern and I always had aches and pains etc. As a child I was lucky if I got one full nights sleep a week so I am used to not having a sleep pattern. Sometimes I go to bed at 3 or 4am and get up anywhere between 7am and 1pm. I only sleep for an hour then wake up. I now sleep when I am tired and stay up when I am not. I take 50mg amytriptyline and 100mg tramadol about 11.00pm sometimes this helps make me tired sometimes it does not. The best way I find in dealing with irregular sleep is not to beat myself up about it - I just accept it. When exhaustion takes over and I cant get out of bed I dont worry about it or what others think. When I have been up for a few days I dont try to force myself to sleep or worry about it. I will sleep sooner or later. Luckily my girlfriend who I live with has got used to it and she dies not disturb me if I am in bed all day. She does not have a go at me for not going to bed at the same time as her. An understanding partner (if you live with one) does help with irregular sleep patterns. I also make any appointments as lates as possible in amorning or in the afternoon, as I never know what I am doing in a morning unless I have not been to sleep.

Worrying or thinking about not sleeping will make it worse.
andycrazy
UKFM Member
 
Posts: 13
Joined: Sun Oct 27, 2013 5:08 am

Re: Sleep Pattern

Postby Butterfly8588 » Mon Nov 25, 2013 3:01 am

Thank you all for your replies.
I've tried so hard to get a regular pattern going many times and it always goes to hell. Andycrazy your story is so like mine, i try so hard not to sleep in the day but sometimes i just have to. I've tried not to care about my sleeping pattern but I'm 25 years old and i feel like I've slept most of the last 4 years away. I'd love to have a family and amongst other problems i suffer from i feel like it's all been taken away from me.
I do have an understanding partner but i am his carer (it's a sensory disability not physical luckily) and i have responsibilities, more then ever at the moment because my dads in hospital because he had a stroke and I'm trying to run his household and mine and I'm not that successful at running mine!
I need to be awake at normal hours to sort things out and I'm finding it so hard at the moment, i just dont know what to do. Going to see the dr just isnt worth it because i cant get in any time soon round the festive period and to be honest i dont have a spare minute anyway.
Anyway I'm not really sure what i was hoping for in starting this thread but its nice that I'm not the only one (in a morbid kind of way).

Take Care xxx
I'm the ghost of a girl that I want to be most, I'm the shell of a girl that I used to know well.
Butterfly8588
UKFM Member
 
Posts: 148
Joined: Tue Jun 07, 2011 2:37 am

Re: Sleep Pattern

Postby Karou » Thu Nov 28, 2013 8:51 pm

Sometimes you just need to let it all out...vent.There's always someone here who'll listen and try to give advice and knowing that the replies you get here are honest and come from lovely and understanding people has helped me many times. So if tyou're struggling and don't know what to do keep posting here.

Regarding the sleep issues, I have them as well. I've tried tart cherry juice for a few weeks before bed and it was ok but too expensive for the tiny bit of effect it had on me. Then I was told about pillow spray and turns out the shop I went to for a gift had some. It's lavender and I use it every night. I still wake up a lot but the lavender helps me too calm down.

When I wake up in the middle of the night I put some more on the pillow and sometimes I'll listen to one of my imaginary walks. Not sure what the proper name is right now, bit foggy. It starts with focusing on breathing and then you focus on relaxing all muscles. Then it guides you through a nice place like mountain cabin or tropical garden etc. I found them free to download and even if I don't sleep, I feel calmer after this. What I don't understand is why I'm always freaking out before sleep. I get all tense and it's almost like I have to defend myself any second. :oops: :roll:

Oh how I miss the days when I fell into bed and woke up refreshed the next morning wondering how my head ended up where my feet should be. These days I fully wake up every time my body feels the need to turn over and refreshed sounds like an exotic rare delicacy.
Gentle :hugs: :hugs: , Karou

“Wishes are false. Hope is true. Hope makes its own magic.” - Brimstone
User avatar
Karou
UKFM Member
 
Posts: 248
Joined: Wed Aug 14, 2013 10:19 pm
Location: London


Return to Living with Fibromyalgia

Who is online

Users browsing this forum: No registered users and 14 guests