Had enough

All your fibromyalgia experiences, questions and answers.

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Had enough

Postby Rachellou » Thu Jan 30, 2014 11:18 pm

This is me having a really truly moan,

So this this time last year I finally got my diagnosis I have suffered for years, from bad periods to skin problems continued headaches

I have a jaw problem all the aches and pains throughout my body and the this week I find out that my vitamin d is low it's 12 my doc says it needs to be above 50, so that's more tablets I have to now take 4 vitamin d tablets a day.

I even have a habit of forgetting to take my tablets so now set my phone alarm to remind me

I just don't know what to do with myself !!

My right hand is covered in small blisters now my left hand is starting with it too, the doc gave me some creams, it is a good job I've managed to buy a pre-prescription because in January alone I've had £60 of medication


I struggle walking and sometimes driving the car, I've asked my doc to be referred back to a specialist doctor,

An appointment has finally arrived and I will be going on the morning of my birthday so no I am living in hope of some good news!

When I first found information on this condition years ago everything that I was going through made sense, I had all the symptoms but the doctor is only working on controlling the pain I am sorry for the moan but the ppl around me struggle to understand what I am saying,


I think this is the moaning done with x
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Re: Had enough

Postby Eltham girl » Thu Jan 30, 2014 11:42 pm

We're listening and sending virtual hugs! X
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Re: Had enough

Postby carolwainwright » Thu Jan 30, 2014 11:46 pm

do you have any other conditions, if so look under free prescriptions to see if you qualify
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Re: Had enough

Postby Garyl » Fri Jan 31, 2014 12:01 am

RachelLou I am on ESA support group get my prescriptions free is good job too have 8 items a month, hope when you see specialist it helps, i am getting fed up myself struggling with the pains etc.
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Re: Had enough

Postby Mye » Fri Jan 31, 2014 12:39 am

Gary do u get your prescriptions because you are in the support group.. It's just that am in that group and I don't get anything free?
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Re: Had enough

Postby zappa20 » Fri Jan 31, 2014 1:04 am

Mye wrote:Gary do u get your prescriptions because you are in the support group.. It's just that am in that group and I don't get anything free?


Only those on Income based ESA or those with an ESA based top up even if only £1 get free prescriptions. Those on Contribution ESA even if in the Support group don't.

If your household income is low I beleive (think figure is roughly around 15680 but you'd need to check yourself) you can claim help or even free prescriptions by downlaoading either an HC1 or HC2 form.
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Re: Had enough

Postby sparkles87 » Fri Jan 31, 2014 7:21 am

Aaa I saw £60 I'm presuming you live in England what you need to do is apply for a prepayment certificate this is £104 a year which can be paid upfront or in monthly instalments of £10.40 this then entitles you to as many prescriptions as you require in that year at no extra cost to you there is a box on the back of the script to tick if you regularly get you scripts from the a&e chemist they should have notified you of this scheme it is open to everyone in the uk eligible to pay for prescriptions if you google prescription prepayment certificate you should yet through to the website to apply you ten simply wait for your car and tick exemption f on the back of the prescription when you recurve it If up until recoeving the card you get more preacriptions as for an NHS RECiEPT and when you get you card take this RECiEPT and card to a chemist and they will give you the money back for the value on the RECiEPT I am a fellow fibro warrior and work in a pharmacy aswell hence my in depth knowledge lol it has been my lifesaver no more worrying about whether I have the money for a prescription if you need any futer advise you can pm me or message me on fb, email me jammydodger1986@aol.com or message me on fb if you can find me Leanne Sparkes

Hope this helps!!!
*~*~*~*~*~*~wishing you all a pain free day*~*~*~*~*~*~

lots of gentle hug spakles
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Re: Had enough

Postby humphreys » Fri Jan 31, 2014 12:34 pm

I don't know what I would have done if I didn't get a pre-payment Certificate for my meds, I must have gone through hundreds of pounds in 12months. I live on the Isle of Man it's cheaper for perscriptions than the UK, but still I would have spent a lot on scrips.
I also have to have vitamin B tablets twice a day, I bought myself one of those daily med box's, they have little compartments for Morning, Lunch, Tea and night time for every day. When I fill it I'm amazed at how many pills I take, just to keep the pain away, and to stop me feeling depressed. No cure for Fibro. I'll just have to learn to live with it, and I will.
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Re: Had enough

Postby Zeberdi » Fri Jan 31, 2014 5:26 pm

I too keep forgetting to take tablets - all except the pain relief ones anyway!!

The prepay is a life saver to me. I could not manage and don't know what I would do without it.

I have had small blisters on my hands but they usually itch and i put them down to an allergy, as the anti hystamine makes me sleepy and relaxed I take one before bed anyway. It might not be a bad tablet to try for that reason alone and it might have benifits witht he skin. They don't sound like what you have though.

One supplement I take, when I remember, is oudourless garlic. An alternative therapist who trained in Japan just after the war I knew for 20 years begore he died told both me and my husband to take it. He said it is a natural antibiotic, anti inflamatory and that it detoxifies the blood while thinning it getting the blood round the body quicker - all things that help any illness. They would be good for skin conditions I would think.

Good luck with you appointment. I can just about make myself go to my Doctors. Situations at the hospital surrounding three deaths have left me with post traumatic stress, flash backs and panic attacks if I go to a hospital even with someone else.

Hope you get some help and relief.
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