Newpaper article on ME

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Newpaper article on ME

Postby Lindilou » Sun Mar 02, 2014 12:35 pm

I found this article on the internet, have any of you read it before?

The Times
Tue, 23rd April 2013

Biological breakthrough offers fresh hope for ME sufferers.
Hannah Devlin/Science Editor
Scientists have found compelling new evidence for an underlying biological cause for the constant fatigue suffered by ME patients.
The study revealed abnormalities in the muscle cells people suffering from ME which are likely to contribute to feelings of tiredness and the inability to cope with sustained physical activity that many experience.
An analysis of muscle biopsies suggested that the cells had undergone substantial changes making them less able to cope with exertion.
The finding shows that whatever the initial trigger for ME, the condition leads to a cascade of physical changes right down to cellular level.
Despite a growing body of evidence that ME has real physical symptoms, some patients still report facing stigma due to popular misconceptions that the condition is “all in the mind”.
Professor Julia Newton, dean for clinical medicine in Newcastle University who lead the study, said that the latest science was changing the way people view ME.
“You change people’s perception of this terrible symptom”, she said.
She added that in some cases the patients reported feeling vindicated by the findings which reveal basic biological differences between patients with ME and healthy volunteers.
Professor Newton presented the findings in London yesterday at a meeting marking the launch of a UK ME collaboration aimed at generating more high quality research into the disease.
In the study, scientists took muscle biopsies from ten healthy sedentary volunteers.
The muscle cells were grown into small pieces of muscle in culture, and subjected to “exercise” in the form of electrical impulses.
The cells from ME patients produced on average 20 times as much acid when exercised, suggesting an underlying cause for the aching muscles that patients often experience as soon as they began to exercise.
The cells also showed other abnormalities, such as reproducing more slowly.
“We have found very real abnormalities” said Professor Newton
The Newcastle team now hopes to use the muscle samples as in-vitro test beds for potential medications that could help reverse the symptoms of ME.
However, she said that scientists are still struggling to understand what cause the condition in the first place.
The disease affects more than 600,000 people in Britain with a quarter of those cases unable to perform even basic activities or look after themselves. Current treatments on the NHS include talking therapy and exercise.

Re: Newpaper article on ME

Postby hazely » Sun Mar 02, 2014 1:13 pm

Interesting article thanks for sharing, shame they didn't do the same research for fibro though.
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Re: Newpaper article on ME

Postby fibro2014me » Sun Mar 02, 2014 2:12 pm

Thanks for sharing. I got fibro diagnosis june 12 and M.E in October 13..been off sick from work since july 13.. I am 4"11 and weighing all of 6st8 ... the last sentence of the article mentions exercise. . I cannot do any kind of exercise. . Not even a little play chase with my beautiful 5 yr old daughter when she says "race me mamma" (heartbreaking).. my muscles are getting weaker from lack of living life whilst I await horrendous waiting lists from referrals
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Re: Newpaper article on ME

Postby Lindilou » Sun Mar 02, 2014 3:03 pm

Yes I wondered about the exercise bit too, it's impossible. It's exercise that blooming well makes it worse, so I don't understand that bit either.


Postby hollaway17 » Mon Mar 03, 2014 1:50 pm

I have seen 2 consultants, the first told me to take it easy and pace myself. The second advocated lots of exercise so now I have hydrotherapy exercises twice a week and a gentle stretching class. Each session leaves me very stiff and in even more pain. It seems my muscles never get used to the exercise. So can it really be good for me?
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Re: Newpaper article on ME

Postby FluppyPuffy » Mon Mar 03, 2014 3:07 pm

When it comes to exercise and CFS/ME, it is possible to start doing something and very, very gradually build on it. It tends to be done under the guidance of someone who specialises in dealing with CFS/ME, such as a specialist physio. The type of exercise chosen depends on the individual and what their capabilities are. A program is devised to build from the baseline and ultimately increase what they are able to do.
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