How do I learn to cope with pain?

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How do I learn to cope with pain?

Postby Revjan » Mon Mar 03, 2014 10:15 pm

Hi all, I'm new to the forum but was dx with FM 3 years ago. I also have rheumatoid arthritis and avascular necrosis (dead hip bones).
On top of this I suffer from temporal arteritis, which is inflammation of the arteries in the temples, which can cause blindness and is terribly painful.

I've been struggling to cope with all this for some time, then recently began getting terrible back pain and pain all around my ribs. I found out this week that I have osteoporosis of the upper spine and four of my vertebrae have collapsed and fractured, probably due to high doses of steroids I've been taking for other conditions.

I am now in so much pain I don't know what to do with myself, despite being on high doses of Zomorph and Oramorph. It seems that these new pains in my back have kicked off my FM really bad, maybe from the way I'm holding myself or lying at night maybe? I'm not sleeping and everything is a struggle.

I'm seeing a pain specialist at the end of this month but I'm not holding my breath for too much success there reading of others experiences. Does anyone have any tips to help me cope or manage the pain? Because of other problems I am unable to exercise at all. I can't even have a bath anymore cos I can't get in or out. I'm only 47 by the way, but I feel 97 and the thought of years ahead with pain like this is not inviting.

I know there are people worse off and I should be grateful it's not life threatening but I'm really struggling right now and nobody close to me seems to realise that, no matter what I tell them.
Thanks for listening! Xx
Last edited by FluppyPuffy on Tue Mar 04, 2014 3:07 pm, edited 1 time in total.
Reason: Split into smaller, clearer paragraphs for easier reading.
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Re: How do I learn to cope with pain?

Postby kerensasdad » Mon Mar 03, 2014 10:41 pm

Sadly if we chose not to cope with the pain, we are left with only one way out of it. You will learn to manage the pain, find a doc who is willing to try different med regimes until you hit something that works for you.
That's what I have done. Good luck!
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Re: How do I learn to cope with pain?

Postby Garyl » Mon Mar 03, 2014 10:46 pm

Agree with Karen my gp is very good and as tried different meds for pain currently ones i am on seem to help
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Re: How do I learn to cope with pain?

Postby Kiara » Mon Mar 03, 2014 11:07 pm

We take one day at a time, its surprising how strong you will find you are . Also talk to your GP please don't suffer in silence.
Gentle Hugs , Kiara x
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Re: How do I learn to cope with pain?

Postby libbiek30 » Mon Mar 03, 2014 11:11 pm

Ask it gp if u can b referred for acupuncture I found it really with pain and migraines. ((((( hugs)))))
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Re: How do I learn to cope with pain?

Postby denys » Mon Mar 03, 2014 11:18 pm

Dont be put off regarding pain clinics, you may find they have some very helpful advice for you, sometimes its simple things such as taking your medication differently that can have a big impact on the effect on your pain. So go with an open mind and you just may be pleasantly surprised.

Keep on trying and as has been said take things one day at a time :-D :-D :-D
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Re: How do I learn to cope with pain?

Postby FluppyPuffy » Tue Mar 04, 2014 3:12 pm

I've just finished my time with Pain Management, and found being with them has helped in quite a few ways. I went to them the first time with an open mind and the sole aim of getting as much from them as I possibly could.

They do vary from area~to~area in what they offer, so maybe consider calling the one you'll be seeing and find out what might be available to you treatment/therapy/meds~wise thru them.
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Re: How do I learn to cope with pain?

Postby painprincess1 » Tue Mar 04, 2014 7:32 pm

Bathing in Epsom salts it meant to help a lot with joint pain .ive not yet tried it myself ,and can u take a good cod liver oil ,or maybe that new crill one. I no that not a lot of help sorry xxxx
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Re: How do I learn to cope with pain?

Postby FluppyPuffy » Tue Mar 04, 2014 8:00 pm

painprincess1 wrote:Bathing in Epsom salts it meant to help a lot with joint pain .ive not yet tried it myself ,and can u take a good cod liver oil ,or maybe that new crill one. I no that not a lot of help sorry xxxx

No need to be sorry, and you never who might be reading this and find what you have suggested to be helpful :-D :-D :-D

I've been trying various bath salts out over the past few months, from Epsom thru to Himalayan and Dead Sea with various essential oil mixes in them, and out of all of them, the one I've found to be the best is Good Ole' Radox Muscle Soak Herbal Bath Salts With Thyme, a fraction of the cost of some of the others I've tried and has something about it that helps ease things more than others have.
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Re: How do I learn to cope with pain?

Postby debsmith » Wed Mar 05, 2014 8:30 pm

Hia all

Firstly :hugs: :hugs: poor u not nice,i agree go with a open mind and write a list of issue,s b4 u go that helped me,or write all down and give it to dr at clinic then it can go in ur file too,im on a lot of medz too plus oramorph + have butrans patches aswell ask gp to tweek ur meds try something else its awful being in pain all the time i also use hot water bottle,s + max strength deep heat,i also use 12 hour volterol gel + find that quite effective but no 1 is the same trial + error i still havent found the correct medz 4me and my pain clinic dr said im on way to much so each area differant good luck and hia all havent benn on 4 a bit knee+feet are awful work+bed most nites...! xxxxxxxx
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