One BIG finding with Fibro

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One BIG finding with Fibro

Postby Tel1 » Fri Mar 14, 2014 9:37 pm

Hi all

As we all know that Fibro seems to make us ache and tired amongst 1001 other things... but I was kind of getting down because I wasn't sleeping properly....As some of you may have read some of my other posts about waking up at night can't breathe and all that sort of thing....

WELL:))) I went to the GP about all that and he sent me to a Thoracic Medicine Dept at the hospital.... Long story short I had to wear a monitor over two nights at home which monitored my pulse and oxygen levels, and then I had to take it back to the hospital and then they put it in the computer for the read out.. also I had chest Xrays and I had to blow into this machine for lung functions tests....

After all this was done, I was lead into the doctor/consultants room... he started talking to me about my results and said my Xrays were fine and so was the lung function tests.... but he said that the monitor showed that my oxygen levels dropped a little below what people are supposed to do and he diagnosed me with Obstructive Sleep Apnoea.... he went on to say that he noticed that I have Fibromyalgia and that people with this condition, their brains don't work properly, something to do with the neurotransmitter's not sending the right signals... and although I didn't say anything to him as I had heard this before, I wanted him to carry on talking with his
explanations to see what he knew, and he said that a great number of people with Fibro don't know it, but they can also suffer with Sleep Apnoea and that is why they never feel refreshed after sleep and a lot of people keep waking up...

He said that he was going to send me to another hospital to be given a CPAP machine ( that's an air machine you have by your bed each night with a mask you wear to keep your air passage open while you sleep ) and 99% of people who use this who have Sleep Apnoea find that they feel great and back to normal after using the machine.....SO:)))

Perhaps this machine would help loads of Fibro people IF they can cope with using it... although of course you would have to go to the hospital first for them to do the tests, but I thought it was worth mentioning this to all you people.....Keep Well Everyone :-)
Last edited by FluppyPuffy on Sat Mar 15, 2014 1:24 pm, edited 1 time in total.
Reason: Split large paragraph into smaller ones and a bit of punctuation twiddling for easier reading
Tel1
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Re: One BIG finding with Fibro

Postby lala » Fri Mar 14, 2014 10:48 pm

Hi, I really hopes this helps you. I am going to ask my gp about sleep apnoea as I cant remember ever waking up refreshed, certainly not in the 6 years since I was diagnosed. Thanks for sharing that.
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Re: One BIG finding with Fibro

Postby denys » Fri Mar 14, 2014 10:52 pm

A few other members have mentioned having this problem too and a number use CPAP machines so :fingerscrossed: :fingerscrossed: it helps you
Denys

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Re: One BIG finding with Fibro

Postby littlemac0191 » Sat Mar 15, 2014 11:41 am

Hi, what is this word waking up,lol, i could sleep for england, toss and turn during the night but dont wake up in the morning, have to be dragged out of bed. I am sure i would still be asleep at 4 in the afternoon and still feel exhausted. I really hope this does help others though.
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Re: One BIG finding with Fibro

Postby whoami » Sat Mar 15, 2014 7:20 pm

I have sleep apnea. Obstructive sleep apnea is when your throat is obstructed by possibly the way you sleep. a heavier neck and sleeping on your back or just that the muscles relax and close your airway. The machine forces air in and opens the airway. There are different types of sleep apnea.

I still stop breathing quite a bit through the night even with the machine. I have found that it does help me sleep a little longer, I now can get 3 hrs. I also stop breathing while I am awake. My lips go blue and I will gasp for air, naturally, your brain will not let you suffocate. That is why you gasp in your sleep.

Even with the machine I find no change in other symptoms related to fibro.
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Re: One BIG finding with Fibro

Postby Tel1 » Sat Mar 15, 2014 10:54 pm

Oh GOD!!! looks like you have more than just sleep apnoea :yikes:
Have you been checked out for what you are saying? If I had what you have and my lips went blue etc
then I would go straight to a hospital, no if but's or maybe's!! As with all things related to Fibro I am not
100% convinced that the air machine is the actual answer to us Fibro people being tired all the time, but
it was one thing that , that particular doctor/ consultant said to me, so I was all ears to see what he knew.
:-)
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Re: One BIG finding with Fibro

Postby reegogo » Sun Mar 16, 2014 1:25 am

Could not believe this post as i've also been referred for this and am just waiting for a phone call to pick up monitor to find out if sleep aponea or narcolepsy.
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Re: One BIG finding with Fibro

Postby whoami » Sun Mar 16, 2014 1:50 pm

Tel1......Yes, things have been checked out and it is a different type of disorder. All the specialists I have seen have suggested that there are quite a few people with fibro that have sleep apnea, there are many more with fibro that do not have sleep apnea. I personally don't think that sleep apnea is the cause of everyone's sleep issues. Ten that is just my opinion.


Reegogo.....Just curious, what are your symptoms that the Dr may think it is narcolepsy? My good friend has this. It is a very obvious condition.
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