Pain free?

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Pain free?

Postby SchroedingersCat » Sun Mar 16, 2014 12:21 pm

I was just wondering if anyone is a actually pain free, some or all of the time? There are lots of posts about medication and alternative pain relief methods, however it seems as if most people still have pain despite these...
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Re: Pain free?

Postby JDWench » Sun Mar 16, 2014 12:43 pm

Yes! Well, more or less the last few days, few spasms in my ribs, legs and back and still quite badly fatigued and have numbness but I feel like I've been overreacting the last few weeks, like my body has lied to me and is now going "just kidding, you aren't ill".
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Re: Pain free?

Postby Jeany » Sun Mar 16, 2014 1:12 pm

Mine pain is there most of the time as is the fatigue, but some days it is less than others. I have CFS/ME and fibro, and it is rare that I have a day where I feel like my old self.
You just have to learn to live with it, and set your own strategies for dealing with it. I suggest you learn as much as you can about your illness, and ask for help from GP and any other clinics etc. Ask to be referred to pain relief clinic, and find out if hospitals near you have specialist teams.
Good luck x
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Re: Pain free?

Postby JDWench » Sun Mar 16, 2014 1:25 pm

I'm finding water helps. If I could spend the rest of my life in a tank of warm water it'd be heaven. I'm cutting the crap from my diet and starting exercise with a ball tomorrow to strengthen my ligaments and core muscles so when the bad days come I can try to ride it out. I hate taking painkillers but usually take a couple of codeine and a naproxen to get me through work. I'm still very new to this but I think you just need to do your research, listen to your instincts and be open to try anything. I'm not finding amitriptylin is doing much but I'm on the absolute minimum dose so that can be adjusted. I also think a positive attitude goes a long way which is easier said than done when all you've managed to do in a day is sit and cry either in pain or because you feel so helpless. I'm trying to think of it like an irrational fear and it can't swallow me if I don't let it.
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Re: Pain free?

Postby littlemac0191 » Sun Mar 16, 2014 1:52 pm

Unfortunately I think you will find there are no such things as pain free days, I certainly havent had any in the last 6 years. good advice to seek out as much help as you can get. Pain clinics are very good, keep on at your doctor, rheumatologists are the best to advise on most pain killers available. Some help but the side effects are not good, a combination of different ones can take the edge off. Everyone is different and tablets that suit some people dont suit others it is basically trial and error. good luck, have a hug x
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Re: Pain free?

Postby DRM » Sun Mar 16, 2014 2:29 pm

Never :( x
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Re: Pain free?

Postby Zeberdi » Sun Mar 16, 2014 3:24 pm

I had two days before Christmas that were pain light, fog light and not too tired. It was like the best holiday I have ever had!! I sat on the settee one day just sighing with pleasure and enjoying the fact I felt comfortable and sane. It was bliss. Then Christmas having to push mself and off it all goes at full pelt and hasn't calmed down since.

Those two days were so wonderful. I actually wondered if it was all in my head and I really was going mental that there was actually anything wrong with me if all of a sudden I felt so normal. It can't just be ok then not?!! Truth is I looked no different to others on those two pain free days than I did any other day. The only long term benifit was my daughter asked me why I kept sighing and was so happy, I told her that I don't hurt, I feel ok and it is heaven. The reality that I enjoyed it so much and was so vocal about how wonderful it was I think it hit home how many times I say nothing and how bad it must be when I do. She understood something by the simple fact I was so happy not to have pain that the reality of the pain sank in. Being understood can be as wonderful as a pian free day, especially when it is someone you love and want to understand but hasn't got the expereince to.

O, to feel like I did those two days for a few months even - the rest of my life would be amazing - but reality soom comes back with all it's aches and pains. Thing is I might just get another 'holiday' someday and I will enjoy and remember it just as much.

Wish I knew what I did that made those two days happen - lol.
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Re: Pain free?

Postby Charmed » Sun Mar 16, 2014 4:02 pm

Never had a pain free day for years. If only :(
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Re: Pain free?

Postby SchroedingersCat » Sun Mar 16, 2014 4:41 pm

Thanks for all the helpful suggestions folks, though I wasn't looking for answers, I manage things myself anyway without meds and have done since before diagnosis 2 years ago, I was just curious whether anyone ever got any peace and whether it was down to meds or something else. I get days that are so low in pain that I don't notice the aching till I get into bed at the end of the day, but they've been rare for a while as it's been rather hectic since the New Year.
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Re: Pain free?

Postby migrembe » Sun Mar 16, 2014 8:57 pm

I wasn't pain free, as unable to cope or get out of bed kind of pain, for a very long time. But recently i have had one problem after another with medication that i am down to just two doses a day and I've even stopped the anti-depressant. I intend to stop all the medication eventually but i am not in a rush and if the worse happens i can start taking them again.

I think you have to believe you can be pain free or have got to the place in your life that if something doesn't change you would rather be dead. I had got to that point. I live on my own most of the time, although i have grown up children, they have a life of their own but would come if i needed them. So i have decided that the physio went so far, the counselling helped, i also try and meditate every night before bed as it helps me relax and sleep. Try learning about something called the body scan. Learn to check in with yourself and work with and not against your body. Look at your diet - i am working on this as well.

What affect is it having? Whilst i was on the anti depressant i would normally wake every night some times several times a night with nightmares and night terrors and wake up feeling shattered. This morning i woke up after 9 hours of peaceful sleep. Yesterday was my youngest daughter's birthday and in the morning i had a women's breakfast meeting at church and then later my children and i had dinner. I was shattered but then i have been mainly laying in bed for the last 4 years. I am also achy and tired today but certainly much better than i have been in the last 4 yrs.

I have no idea what may happen, not even tomorrow, but i intend to do all i can to get my life back at least to a point where i am a functioning human being. I am a registered nurse with many years experience and i always inform my GP about any changes in medication but i don't ask for his permission to do it, i would caution you that if you are on a variety of pills seek medical help before stopping and please don't waste your money on fancy potions unless it's a multi-vitamin and mineral tablet, but once your diet gets better then you won't need that either.

Our bodies have been broken and need the time to heal, but the body is a great healer with the right resources.

Good luck :flowers:
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Re: Pain free?

Postby SchroedingersCat » Sun Mar 16, 2014 10:03 pm

Hmmm.. I've never had a day so bad I didn't get out of bed, but I've had a fair few where I got back into bed a lot earlier than I'd planned! Today would be one of them if I didn't have to go pick the other half up from the train station at 22.20. :roll:
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Re: Pain free?

Postby FluppyPuffy » Sun Mar 16, 2014 11:32 pm

Is there any sign of things becoming any less hectic for you SC???
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Re: Pain free?

Postby Katieanne » Mon Mar 17, 2014 8:01 am

I don't have excruciating pain and I've never had a day when I can't get out of bed but I do have pain every day. Mostly I suffer with tiredness and the fog. I am on amitriptyline and naproxen so maybe this is helping for now. I never feel "well" though. I read posts on here and feel a bit of a fraud sometimes , and lucky! X
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Re: Pain free?

Postby SchroedingersCat » Mon Mar 17, 2014 10:31 am

Flup, thanks for asking. Not really. We're in the middle of buying a house, and dealing with a rather poorly cat (2 week now and counting, been back to vets this morning), OH has just been abroad on business for a week so I've been looking after the house on my own, once house purchase goes through we have to move, then clean our rented house from top to bottom and redecorate to return it to the proper standard (we've been here 10 years), in the next 10 weeks we've got 3 weekend events, a hen party (stag do in OH's case), and a wedding, plus OH is away on another weekend in that time) and once that's all out of the way I have to move my shed and some fruit bushes off my allotment to the new garden as I'm having to give it up (we're moving too far away for it to be feasible to get to it any more). And that's just the stuff I know about. Oh and of course we both work full time.

I think June is a quiet month, lol!
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Re: Pain free?

Postby FluppyPuffy » Mon Mar 17, 2014 1:35 pm

I think you're either going to need to clone both yourself and hubby SC, as well as find a few minions to help with getting thru all that :yikes: :yikes: :yikes: :yikes:

The house purchase and move alone are one of the most stressful things to juggle with, I dread to think how many times you'll meet yourself in the middle coming backwards over the next few weeks :yikes: :yikes: :yikes:

I know you normally keep things pretty well managed with otc meds etc, but should things reach a level that is more than you can mange in this way, don't hesitate to find something else to help tide you over the hecticness. From my own experiences during some manic times, if I could, I'd go back and follow my own advice for once :oops: :oops: :oops: :oops:
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